Rephonic
Artwork for Aging with Down Syndrome
Down Syndrome
Alzheimer's Disease
Alzheimer's
Aging
Dementia
Caregiving
Alzheimer's Dementia
Stress Management
Seizures
Aging Caregivers
Family Support
Ntg-Edsd
Autism
Advocacy
Independent Living
Personal Growth
Grief
CARE Down Syndrome
Epilepsy
Succession Planning

Join a mother, a sister, and a niece as they share honest and heartfelt conversations about the changing needs of their loved ones aging with Down syndrome. You will hear from leading experts about insights and advances in the field. You will meet professionals who are supporting individuals with Down syndrome through their senior years, and hear first-hand accounts from families who have navigate... more

PublishesTwice monthlyEpisodes17Founded8 months ago
Number of ListenersCategory
Education

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Artwork for Aging with Down Syndrome

Latest Episodes

Kristin learned some valuable lessons as her brother Matthew progressed through Alzheimer’s disease. Here, she shares her advice for caregivers who are on the dementia journey. 

Takeaways include:

• Take care of yourself!

• Trust your gut and trust... more

YouTube

Have you ever wished you lived closer to a specialized Down syndrome medical clinic? Have you had to rely on healthcare providers who—even if they are well-meaning—lack the expertise or experience to provide knowledgable care for your loved one? Well... more

YouTube

Jadene, Kristin, and Molly look back and share what they recall were the earliest signs of dementia in their loved ones. They discuss which symptoms were the same and which were different between the three of them, the importance of documentation, an... more

YouTube

John Nadworny—a retired Certified Financial Planner with over 30 years of experience working with families of individuals with special needs—reveals how true succession planning goes beyond financial security and legal documents. Succession planning ... more

YouTube

Key Facts

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Recent Guests

Kandi Pickard
CEO of the National Down Syndrome Society
National Down Syndrome Society
Episode: CARE Down Syndrome | A Conversation with Kandi Pickard and Brian Chicoine
Brian Chicoine
Medical Director of the Advocate Adult Down Syndrome Clinic
Advocate Health Care (Park Ridge)
Episode: CARE Down Syndrome | A Conversation with Kandi Pickard and Brian Chicoine
John Nadworny
Certified financial planner who works with special needs families
Episode: Succession Planning with John Nadworny
Dr. Seth Keller
Neurologist specializing in seizures and Down syndrome
(not specified in transcript)
Episode: Seizures with Dr. Seth Keller | Part 2
Seth Keller
Neurologist specializing in seizures and epilepsy
Independent practice near Philadelphia, Southern New Jersey
Episode: Seizures with Dr. Seth Keller | Part 1
Ruth Brown-Ennis
Doctor of psychology specializing in mental health for adults with developmental disabilities
NDSS Adult Summit alum / expert in mental health for Down Syndrome
Episode: Aging and Anxiety
Dr. Lucille Esralew
Clinical neuropsychologist with extensive experience in dementia and developmental disabilities.
California Department of Developmental Services
Episode: A Tool to Help Screen for Dementia

Hosts

Molly
Solo host for episodes and key caregiver voice, often sharing personal caregiving experiences.
Kristen Daly
Co-host and family member offering perspectives on the aging journey and EDSD tooling for families.
Jadine Ransdell
Host sharing advocacy and familial experiences, often focusing on diagnosis journeys and family support.

Reviews

5.0 out of 5 stars from 30 ratings
  • Beautiful podcast!

    Wonderful stories highlighting the love, support and special bonds from relatives of those with down syndrome. Highly recommend!

    Apple Podcasts
    5
    RLD Reviews
    United States8 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Episodes are deeply personal and informative, offering real-world strategies for caregiving and advocacy.
The mix of expert insights and family experiences helps families feel less alone navigating aging with Down syndrome.
Beautiful podcast! Wonderful stories highlighting the love, support and special bonds from relatives of those with down syndrome. Highly recommend!
Practical caregiving tips and heartfelt stories make complex decisions feel more manageable.

Talking Points

Recent interactions between the hosts and their guests.

A Tool to Help Screen for Dementia
Q: Can you tell us a little bit about the practical use of this tool?
Dr. Esralew explains that the EDSD captures observations of change, serving as an administrative screening to identify and track changes in behavior and daily living skills.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
Location
Interests
Professions
Age Range
Household Income
Social Media Reach

Frequently Asked Questions About Aging with Down Syndrome

What is Aging with Down Syndrome about and what kind of topics does it cover?

This show centers on families navigating aging with Down syndrome, often intersecting with Alzheimer's disease and dementia. Conversations mix practical caregiving tactics, medical planning, and personal stories to illuminate daily realities, resources, and emotional resilience as loved ones age. Noteworthy elements include caregiver-led insights, practical tools for communication and documentation, and expert perspectives that help families balance safety, quality of life, and independence. The format tends to be intimate, experience-driven, and solution-oriented, making it a potentially valuable resource for families, clinicians, and advocates alike who are seeking compassionate, real-world guidance.

Where can I find podcast stats for Aging with Down Syndrome?

Rephonic provides a wide range of podcast stats for Aging with Down Syndrome. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Aging with Down Syndrome and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Aging with Down Syndrome get?

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What are the audience demographics for Aging with Down Syndrome?

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How many subscribers and views does Aging with Down Syndrome have?

To see how many followers or subscribers Aging with Down Syndrome has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Aging with Down Syndrome?

These podcasts share a similar audience with Aging with Down Syndrome:

1. The Moth
2. Relatable with Allie Beth Stuckey
3. The Luminescence Podcast with Schuyler Grant
4. This American Life
5. Crime Junkie

How many episodes of Aging with Down Syndrome are there?

Aging with Down Syndrome launched 8 months ago and published 17 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Aging with Down Syndrome?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Aging with Down Syndrome?

Rephonic pulls ratings and reviews for Aging with Down Syndrome from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

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What guests have appeared on Aging with Down Syndrome?

Recent guests on Aging with Down Syndrome include:

1. Kandi Pickard
2. Brian Chicoine
3. John Nadworny
4. Dr. Seth Keller
5. Seth Keller
6. Ruth Brown-Ennis
7. Dr. Lucille Esralew

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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