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Artwork for Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

Susan Newman Manfull, PhD
PANDAS
PANS
Lyme Disease
Neuroinflammation
Psychosis
Neuropsychiatric Disorders
Pediatric Acute-Onset Neuropsychiatric Syndrome
Bartonella
Children's Health
Gut Microbiome
Autoimmune Disorders
Healthcare Insurance Denial
Claimable
DNA Damage Response Genes
Cognitive Behavioral Therapy
Borrelia Burgdorferi
Neuropsychiatric Symptoms
Georgetown University
Tonsillectomy
Assembly Bill 2105

Hello and welcome to Untangling PANDAS & PANS, a podcast about two relatively unknown medical disorders characterized by the sudden and dramatic onset of obsessions and compulsions, vocal or motor tics, or restricted eating behavior -- and a whole host of other symptoms -- following strep or other bacterial or viral infection. Sometimes overnight. I have the privilege of interviewing some of the... more

PublishesMonthlyEpisodes21Foundeda year ago
Number of ListenersCategories
Health & FitnessMedicine

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Artwork for Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

Latest Episodes

Transitioning to college marks a significant milestone for any young adult, but for those with PANS/PANDAS, this journey demands unique preparation and understanding. In this illuminating conversation, Dr. Susan Manfull welcomes Sheila Gauch, Princip... more

Dr. Andrew Baumel's story reveals how curiosity, compassion, and clinical observation can lead to breakthrough care for children suffering from immune-mediated neuropsychiatric disorders.

After 18 years as a traditional pediatrician, Dr. Baumel's pr... more

How does a common strep infection become a brain disorder? Dr. Uğur Akcan's journey from Istanbul to the cutting edge of PANDAS research with Dr. Dritan Agalliu reveals the fascinating intersection of immune system and brain function that could trans... more

In this powerful episode of Untangling PANDAS and PANS, host Susan Manfull, PhD sits down with Jen, a resilient young woman whose health took a devastating and mysterious turn in her early twenties. From being taken out of work on a stretcher—twice—t... more

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Recent Guests

Sheila Gauch
Principal and Clinical Director of Dearborn Academy, expert in mental health and education for students with PANS and PANDAS
Dearborn Academy
Episode: S2 E17: Sheilah Gauch Offers Eight Tips for Students with PANS and their Parents on How to Successfully Transition to College...or Anywhere Else
Dr. Andrew Baumel
General practitioner with over 30 years of experience, specializing in treating pediatric cases of PANDAS and PANS.
Framingham Pediatrics
Episode: S2 E16: Dr. Andrew Baumel: One Pediatrician's Journey to Include Mild Cases of PANDAS/PANS into his Everyday Practice
Dr. Uğur Akcan
Post-doctoral neuroscience researcher at Columbia University
Columbia University
Episode: S2 E15: Science Under Siege: A conversation with Dr. Uğur Akcan and Dr. Dritan Agalliu about PANDAS Research, NIH Cuts, and the Power of Community
Dr. Dritan Agalliu
Associate Professor of Pathology and Cell Biology at Columbia University
Columbia University
Episode: S2 E15: Science Under Siege: A conversation with Dr. Uğur Akcan and Dr. Dritan Agalliu about PANDAS Research, NIH Cuts, and the Power of Community
Dr. Sarah O'Dor
Instructor in psychiatry at Harvard Medical School and Director of Research at the Pediatric Neuropsychiatry and Immunology Program at Massachusetts General Hospital
Massachusetts General Hospital
Episode: S2 E13: Understanding the Role of a Psychologist in PANDAS and PANS: A Conversation with Dr. Sarah O'Dor
Dr. Warris Bokhari
CEO and co-founder of Claimable, specializing in healthcare insurance claim assistance.
Claimable
Episode: S1 E9: Dr. Warris Bokhari Vows to Make Healthcare Equitable One Unjust Insurance Denial at a Time
Dr. Mark Pasternack
Chief of Pediatric Infectious Disease at Mass General Hospital.
Mass General Hospital
Episode: S1 E9: Dr. Warris Bokhari Vows to Make Healthcare Equitable One Unjust Insurance Denial at a Time
Dr. Pawel Kiela
Leading expert in autoimmune and autoinflammatory disorders
University of Arizona College of Medicine
Episode: S1 E8: Dr. Pawel Kiela Discusses the Gut Microbiome, Microglia, and PANDAS
Dr. Tim Ubhi
Pediatrician specializing in neuropsychiatric disorders
London PANS Clinic and Research Center
Episode: S1 E7: Dr. Tim Ubhi Talks about Treating PANDAS/PANS in the UK at his new London PANS Clinic

Host

Dr. Susan Manfull
Host and Executive Director of The Alex Manfull Fund, with a background in social psychology and personal experience with neuropsychiatric disorders.

Reviews

4.9 out of 5 stars from 35 ratings
  • So informative

    This show is awesome for education on PANDAS and PANS. Up to date on many aspects and relevant topics dealing with care and treatment of people with P/P and great support for families. This podcast is a superb resource!

    Apple Podcasts
    5
    JayhawkSunrise
    United States9 months ago
  • Untangling PANDAS and PANS

    As a PANDAS parent, I am so grateful to Susan and the Alex Manfull Fund for this podcast. Not only is it spreading awareness of these neuroimmune illnesses, but is bringing all the parties to the table, so to speak. If we keep putting our collective heads together, we will figure this stuff out sooner. All these children and young adults needed it yesterday.

    Apple Podcasts
    5
    JenAct64
    United Statesa year ago
  • Incredibly insightful podcast!!!

    Expanding the understanding of neuropsychiatric disorders, and creating a space for rethinking autoimmunity, infection and mental illness.

    Apple Podcasts
    5
    Daniela-S-S
    United Statesa year ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the educational focus on PANDAS and PANS, highlighting the podcast as a vital resource for families and professionals alike.
Many parents express gratitude for the support and awareness raised, noting the emotional connection to the host's personal story.
Feedback frequently mentions the insightful discussions with experts in the field, reflecting a deep appreciation for the content's relevance and quality.

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Talking Points

Recent interactions between the hosts and their guests.

S2 E17: Sheilah Gauch Offers Eight Tips for Students with PANS and their Parents on How to Successfully Transition to College...or Anywhere Else
Q: Can you elaborate on the first tip for caregivers or parents?
Empower your child to understand PANS and PANDAS, ensuring they know their illness and can advocate for themselves at college.
S2 E17: Sheilah Gauch Offers Eight Tips for Students with PANS and their Parents on How to Successfully Transition to College...or Anywhere Else
Q: How did you get into this area?
Sheila explains her personal experience with her own children's mental health issues, which led her to discover PANS and PANDAS when traditional approaches weren't working.
S2 E14: When Everything Changes: Jen's Journey with PANS/PANDAS and the Fight to Be Believed
Q: What would you like to share with others who are in a similar situation?
Pursue answers within your limits, and don't just accept anxiety as the cause, because it doesn't explain everything.
S2 E16: Dr. Andrew Baumel: One Pediatrician's Journey to Include Mild Cases of PANDAS/PANS into his Everyday Practice
Q: What are some of the other diagnoses that you may consider when looking at your patient?
You should consider trauma, Sydenham's Chorea, other OCD disorders, and anxiety disorder in differential diagnoses.
S2 E16: Dr. Andrew Baumel: One Pediatrician's Journey to Include Mild Cases of PANDAS/PANS into his Everyday Practice
Q: Can you tell us a little bit about your intake interview?
Before I schedule a new appointment, I have them make me a parent timeline detailing everything strange that has happened in the child's life.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

This podcast explores the little-known medical disorders PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus) and PANS (Pediatric Acute-onset Neuropsychiatric Syndrome), characterized by sudden onset of obsessive-compulsive behaviors and other neuropsychiatric symptoms following infection. The host interviews leading researchers and healthcare professionals in the field, providing insights into the complexities of these disorders, including the role of the immune system and the significance of early diagnosis and treatment. Unique to this series is the combination of personal narrative from the host, who has firsthand experience with the ramifications of these disorders, making the content both educational a... more

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. Demystifying PANS/PANDAS Podcast
2. Mom & Doc Talk: Healing PANS/PANDAS
3. The Dr. Hyman Show
4. The Doctor Youn Show
5. Dr. Ruscio Radio, DC: Health, Nutrition and Functional Healthcare

How many episodes of this podcast are there?

this podcast launched a year ago and published 21 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Sheila Gauch
2. Dr. Andrew Baumel
3. Dr. Uğur Akcan
4. Dr. Dritan Agalliu
5. Dr. Sarah O'Dor
6. Dr. Warris Bokhari
7. Dr. Mark Pasternack
8. Dr. Pawel Kiela

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