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Artwork for Unlocking Myasthenia gravis

Unlocking Myasthenia gravis

medthority
Myasthenia Gravis
Thymectomy
Complement Inhibitors
Patient-Physician Communication
Artificial Intelligence
Digital Health Tools
Depression
Daily Life Function
Antibody (achr) In MG
Acetylcholine Receptor Antibody
Immunosuppression
Plasma Exchange
FCRN Blockers
Infections
Respiratory Crisis
Fcrn Inhibitors
Drug Access Cost
Remission
Charité – Universitätsmedizin Berlin
Fears About Treatments and Exacerbations

Join our host Professor Nils Erik Gilhus, and a panel of experts in myasthenia gravis (MG) as they discuss a range of medical and clinical challenges related to the management of MG. Coming soon - Professor Maria Teressa Ferretti will be joined by her friend and MG patient Maya Uccheddu, to discuss patient perspective and the burden of this disease.This content is intended for Healthcare Professio... more

PublishesTwice monthlyEpisodes25Founded3 years ago
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Education

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Artwork for Unlocking Myasthenia gravis

Latest Episodes

Episode 25 – Lorenzo Maggi and Nils Erik Gilhus discuss triggers of exacerbations in MG, focusing on how to recognize and manage worsening symptoms in clinical practice. They highlight common triggers and the challenges of distinguishing normal fluct... more

Episode 24 – Nils Erik Gilhus and Elena Cortés‑Vicente share their clinical perspective and experience on the evolving landscape of MG in older adults, highlighting the rising incidence after age 65 and the distinct clinical features seen in this pop... more

Episode 23 – Sophie Lehnerer joins Nils Erik Gilhus to discuss how chat-based digital communication and remote symptom monitoring can support follow-up in MG. They describe how symptom tracking using validated outcome measures and optional wearable a... more

Episode 22 – Maria Da Silva Leite and Nils Erik Gilhus examine how MG treatment approaches are evolving, with a focus on antibody-defined subtypes, treatment goals, and long-term disease control. They highlight how improved disease characterization i... more

Gil Wolfe joins Nils Erik Gilhus to discuss thymectomy in people with MG, with a focus on indications, patient selection, and optimal timing. They reflect on which people with AChR-positive generalized MG are likely to benefit from surgery, how age a... more

Episode 20 – John Vissing discusses what patients with MG often leave unsaid in clinic, including why symptoms may not be volunteered without targeted questioning, how patients prioritize functional impact over measured muscle strength, and the hidde... more

Episode 19 – Henry Kaminski and Nils Erik Gilhus reflect on how MG care has evolved. From the impact of targeted therapies, such as complement and FcRn inhibitors, to breakthroughs on the horizon, they unpack why patients are doing better today, the ... more

Episode 18 – Digital innovation is transforming the way we manage MG. Henry Kaminski joins Nils Erik Gilhus to discuss the role of AI, remote monitoring, and patient-driven tools in shaping future care. Kaminski shares insights on how these technolog... more

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Contact Information
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Number of Listeners
Find out how many people listen to this podcast per episode and each month.

Recent Guests

Sophie Lehnerer
Neurologist discussing MG communication tools
Charité University Hospital, Berlin
Episode: Episode 23 – Communication with patients
Maria Isabel Leite
Consultant Neurologist, Senior Professor at University of Oxford
University of Oxford
Episode: Episode 22 – Myasthenia gravis treatment landscape: What to expect in the future
Gil Wolfe
Professor of Neurology specializing in neuromuscular disorders; long-time focus on thymectomy in MG
University at Buffalo, SUNY
Episode: Episode 21 – Understanding thymectomy in MG
John Vissing
Professor of Neurology and Neuromuscular Specialist
Copenhagen Neuromuscular Center, National Hospital, Copenhagen, Denmark
Episode: Episode 20 – Understanding patients and the questions they don’t ask
Henry Kaminski
Professor at George Washington University
George Washington University
Episode: Episode 19 – MG then and now: How the landscape has changed

Host

Professor Nils Erik Gilhus
Host of the MG-focused medical discussions; long-standing clinician and researcher in neurology.

Top Education Podcasts

Talking Points

Recent interactions between the hosts and their guests.

Episode 17 – The urgency of myasthenic crisis
Q: How do you detect crisis and what red flags should clinicians and patients watch for?
Key indicators include new or worsening respiratory weakness, dropped head or chin, dysphagia with coughing, nasal speech, and signs of infection; these signs suggest imminent crisis and should prompt urgent evaluation and escalation to appropriate care.
Episode 17 – The urgency of myasthenic crisis
Q: Could you briefly introduce yourself, Tobias?
Tobias Ruck introduces himself as a neurologist at the University of Bochum, leading the department of Neurology, with a focus on peripheral neurology and MG.
Episode 23 – Communication with patients
Q: Are there any major disadvantages to digital communication in MG care?
A key drawback is the fragmentation of data due to multiple non-interacting tools, which hampers seamless documentation and accessibility for the whole care team.
Episode 23 – Communication with patients
Q: How does digital monitoring affect follow-up structure and resource use?
Digital monitoring can save resources by reducing unnecessary in-person visits, allowing appointments every six months instead of more frequently, while maintaining the ability to trigger urgent interventions as needed.
Episode 23 – Communication with patients
Q: What types of digital communication tools are most useful for MG patients beyond face-to-face visits?
A chat-based platform that patients can use to ask urgent questions is highly valued, as it reduces the delay between symptom changes and physician response. Combining this with data from validated scores and wearables provides a more complete picture of the patient's status.

Audience Metrics

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Professions
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Household Income
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Frequently Asked Questions About Unlocking Myasthenia gravis

What is Unlocking Myasthenia gravis about and what kind of topics does it cover?

- The discussion across episodes centers on Myasthenia gravis (MG) from multiple clinical angles: diagnostic nuances, evolving treatment landscapes, and practical care delivery. Topics frequently cover thymectomy, antibody status, novel therapies (e.g., complement inhibitors, FcRn blockers, B-cell–targeted approaches), and how to optimize patient care via improved communication, real-world data, and digital health tools. Several episodes emphasize balancing efficacy with safety, managing crises, and the patient perspective, including daily-life impact and access barriers. A notable strength is the ongoing integration of technology and AI concepts to enhance monitoring and trial design, suggesting a forward-looking, research-oriented show ai... more

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Unlocking Myasthenia gravis launched 3 years ago and published 25 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Unlocking Myasthenia gravis?

Recent guests on Unlocking Myasthenia gravis include:

1. Sophie Lehnerer
2. Maria Isabel Leite
3. Gil Wolfe
4. John Vissing
5. Henry Kaminski

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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