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The Rare Disorder Podcast

Shivani Vyas

The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Sh... more

PublishesWeeklyEpisodes43Founded4 years ago
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ScienceNatural Sciences

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Latest Episodes

This episode isn’t about rare disease, advocacy, or biotech—at least not directly. It’s different. It’s slower. It’s personal.

I recorded this audio piece on my summer abroad in Switzerland and Italy, where I spent time hiking, wandering, and rethin... more

Welcome to "Innovate, Iterate, Impact" ft. Co-Founder of AdaptTrack, Samuel Taggard. This is a podcast exploring the transformative journey of entrepreneurship through the lens of academic learning and real-world insights. Join Shivani Vyas, a Duke U... more

Show Notes:

In this episode, I chat with Wes Michael, President at Rare Patient Voice.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregi... more

Show Notes:

In this episode, I chat with Ben LeNail, Healthcare Investor & Consultant. 

Ben Lenail, based in Palo Alto CA, has consulted with biotech companies such as Minoryx Therapeutics, Autobahn Therapeutics, and Deep Genomics. Ben is an inve... more

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How many episodes of The Rare Disorder Podcast are there?

The Rare Disorder Podcast launched 4 years ago and published 43 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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