The Hyper IgM Podcast
Ezra FinemanIn the world of rare diseases, amplifying patient voices is crucial for empowering others to make informed treatment decisions and for providing insights to healthcare professionals and researchers about the patient experience and its impact on quality of life. With conditions like Hyper IgM Syndrome, a rare immune deficiency affecting one in a million individuals, the majority of those affected a... more
| Publishes | Infrequently | Episodes | 7 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Categories | BusinessHealth & FitnessMedicineNon-Profit | ||||
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Latest Episodes
In episode 7 of the Hyper IgM podcast, Marcus, a 23-year-old from Sweden, joins us to share his unique journey with Hyper IgM. Marcus walks us through the effects Hyper IgM had on his family and friends, his relationship with his transplant doctor, a... more
In episode 6 of the Hyper IgM Podcast, Chris returns to share an update on his remarkable journey as the first patient to undergo gene editing therapy for Hyper IgM Syndrome. He discusses hospital life, the emotional and physical challenges faced dur... more
In episode 5 of the Hyper IgM Podcast, we change the focus from patients to doctors with this in depth interview of Dr. Susan Prockop, Program Director, Clinical and Translational Research; Outpatient Clinic Director, Hematopoietic Stem Cell Transpla... more
In Episode 4 of our Paitent Voices Hyper IgM Podcast, Chris shares revolutionary info about a new experimental treament plan for Hyper IgM Syndrome, gene editing, and much more! Enjoy the episode!
In Episode 3 of our Paitent Voices Hyper IgM Podcast, Josh shares his experience going through transplant and his significant post transplant complications involving a rare form of kidney cancer called Renal Cell Carcinoma (RCC). Josh, 16, lives in t... more
In the second episode, Ezra sits down with 12 year old Simon from Utah who is currently living with Hyper IgM syndrom. Simon delves into all the challenges that comes with living with Hyper IgM.
In the debut episode, Ezra sits down with 11-year-old Idan Zablocki from New York. Idan, diagnosed with X-linked Hyper IgM Syndrome, also known as CD40 Ligand Deficiency, at just 8 months old, faced a life-threatening battle with a rare pneumonia cal... more
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How many episodes of The Hyper IgM Podcast are there?
The Hyper IgM Podcast launched 2 years ago and published 7 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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