The Fine, But Not Fine Podcast
Fine, But Not FineFine, But Not Fine is a podcast for anyone navigating the messy, frustrating, and often invisible challenges of rare diseases, chronic illness, and the healthcare system. Hosted by Kelly Paul, who has lived with Mycosis Fungoides (a rare form of Cutaneous T-Cell Lymphoma) since 2015, this podcast dives into the real-life struggles of managing an incurable condition while still trying to live a ful... more
| Publishes | Twice monthly | Episodes | 38 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Category | Society & Culture | |||
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Latest Episodes
Rare lymphomas are hard to build an awareness campaign around — and a global awareness day does matter. Why one day of visibility does what three thousand patients a year can't do alone.
This episode is about telling clients, partners, and vendors about a cancer diagnosis. I share how I read someone before I decide, what I actually say, and why I still wonder whether I say too much.
Most people with mycosis fungoides spend 2–6 years being told it’s “just eczema.” I wasn’t one of them. And it wasn’t because I got biopsied early (I did, and it was wrong). I got diagnosed in 4–6 months because I accidentally landed with a dermatolo... more
A patch showed up on my lower eyelid practically overnight. Itchy, red, scaly — and it could have been almost anything.
Having mycosis fungoides doesn't make you immune to ordinary skin problems. It just turns every ordinary skin problem into a ques... more
Most hard things come with a finish line — six rounds, twelve weeks, "get through this and you're on the other side." I don't get that sentence. My treatment doesn't end; it just continues, for as long as my body needs it. This episode is about treat... more
When you treat a cancer that can't be cured, you don't just manage the disease, you manage what the treatment does to the rest of you. My liver numbers climbed high enough that I had to come off my medication entirely. This episode is the cascade tha... more
150 in-office treatment appointments in a single year. Three days a week, every week, driving to another city because there's no NBUVB light where I live — or where I work. In this episode, I'm talking about what treatment actually costs: the miles, ... more
What does it actually look like to walk into a state legislature and fight for rare disease patients? This episode, I share what I learned from two days advocating at the NC Legislature with the Everylife Foundation for Rare Diseases — what surprised... more
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The Fine, But Not Fine Podcast launched 2 years ago and published 38 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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