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Artwork for Coffee & Community: Cutaneous Lymphoma Conversations

Coffee & Community: Cutaneous Lymphoma Conversations

Cutaneous Lymphoma Foundation
Cutaneous Lymphoma Foundation
Cutaneous T-Cell Lymphoma
Global Skin
Artificial Intelligence
PRIDD
Grid
Cutaneous Lymphoma
Quality Of Life
Mental Health
Young Investigator Awards
Multi-Stakeholder Workshop
Diagnosis

A podcast to bring together the many voices of the cutaneous lymphoma community to share both their experiences and knowledge about cutaneous lymphomas. In each episode, we will dive into the unique stories and perspectives of our guests; exploring cutaneous lymphoma through their lens. No matter who you are, a person living with CL, a healthcare or industry professional, or simply someone interes... more

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Artwork for Coffee & Community: Cutaneous Lymphoma Conversations

Latest Episodes

Summary: In this Espresso episode Co-CEO's of the Cutaneous Lymphoma Foundation, Susan Thornton and Holly Priebe, share a brief reflection on their thoughts and take-a-ways as the World Congress of Cutaneous Lymphomas concluded.

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• Globa... more

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In this episode of Coffee and Community, Rich shares his personal journey with cutaneous lymphoma, detailing his diagnosis, treatment options, and the importance of building a support system. He emphasizes the need for realistic expectations ... more

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In this episode of Coffee and Community, Scott shares his personal journey with cutaneous lymphoma, detailing his diagnosis, treatment, and the emotional impact of living with a chronic condition. He discusses the importance of finding specia... more

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In this episode of Coffee and Community, host Holly Priebe speaks with Allison Fitzgerald, Director of Operations for GlobalSkin, about the GRIDD and PRIDD projects aimed at improving quality of life for individuals living with skin diseases,... more

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Recent Guests

Rich M.
Member of the Cutaneous Lymphoma Community sharing his journey
Cutaneous Lymphoma Foundation community member
Episode: Rich M. A Patient's Journey - Living with Cutaneous Lymphoma
Allison Fitzgerald
Director of Operations for Global Skin
Global Skin
Episode: From Data to Impact: GlobalSkin’s GRIDD & PRIDD with Allison FitzGerald

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From Data to Impact: GlobalSkin’s GRIDD & PRIDD with Allison FitzGerald
Q: Anything else you can think of that people in our community should know about this work and why it's valuable?
Participation is highly valuable; the data helps demonstrate meaningful patient burdens, guides advocacy, and although sharing results can lag, the effort behind the scenes is aimed at producing robust, globally applicable evidence.
From Data to Impact: GlobalSkin’s GRIDD & PRIDD with Allison FitzGerald
Q: What are the on-the-horizon plans for Global Skin and data and publishing and kind of what's next?
Future plans include partnering with organizations like CLF and ILDS to expand data collection, validate a broader burden of disease subset for cutaneous lymphoma, and drive advocacy at national and payer levels.
From Data to Impact: GlobalSkin’s GRIDD & PRIDD with Allison FitzGerald
Q: No, that's great information. Actually, where has it been presented and/or published?
PRIDD has been published and presented in leading dermatology journals, reinforcing its scientific basis and global relevance for clinicians and policymakers.
From Data to Impact: GlobalSkin’s GRIDD & PRIDD with Allison FitzGerald
Q: So cumulatively, we can do that as an organization with larger data sets. How will an individual use it? Or is this not intended for individuals specifically?
The primary goal is patient empowerment and shared decision-making; individuals can use PRIDD directly via the app to capture their own burden and share results with their doctors to inform conversations beyond just the physical skin condition.
Rich M. A Patient's Journey - Living with Cutaneous Lymphoma
Q: What has been the impact on daily life and travel plans since February?
Treatment schedules, radiation, and phototherapy routines heavily influence daily life, but Rich emphasizes planning around life events, maintaining mobility, and pursuing travel and meaningful activities with support from family and clinicians.

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this podcast launched a year ago and published 9 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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1. Rich M.
2. Allison Fitzgerald

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