A Mama’s Xtra Love
A Mama’s Xtra LoveTalk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individua... more
| Publishes | Infrequently | Episodes | 72 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Non-ProfitBusiness | |||
Listen to this Podcast
Latest Episodes
It’s the first episode of A Mama’s Xtra Love Podcast! Woohoo! Tune in to hear about the power of early intervention and how it’s impacted our son’s life tremendously.
Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!
I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including Fragile X Syndrome!
Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!
It’s great to be back on the Podcast! I have many updates for you all that I can’t wait for you to hear about. Tune in to this week’s episode of Talk FX to hear more!
During Fragile X Awareness Month there’s lots in store, including an update on my family and I’s journey with Fragile X!
It’s Fragile X Awareness Month! As we kick off this important month, Talk Fragile X has an important announcement!
It’s great to be back on Talk Fragile X Podcast! I share some updates to our Fragile X journey, what you can expect from the podcast this year, and more!
Key Facts
Host
Reviews
You are awesome thanks for all the info you give us, God Bless you and your family!!
Audible5Luis DRasso
United States3 years ago- Overall
You are awesome thanks for all the info you give us, God Bless you and your family!!
Audible5Anonymous UserUnited States3 years ago - Grateful
Talk Fragile X is an extremely beneficial podcast for anyone wanting to know more about Fragile X! Nicole has crafted these episodes so well with a fantastic variety of guests. As a mom with a new diagnosis walking into the fragile x world not knowing where to turn - listening to the podcast has helped me understand the uniquenesses of this disability and has made me feel less alone. Thankful for the time and passion Nicole puts into this amazing resource.
Apple Podcasts5AH&WUnited States3 years ago Thanks for spreading awareness. I did not know about Fragile X until after my son was born. S1E13 has an eerily similar story to my son's. Born with torticollis and flat side of head. Crossed eyes. Tongue tie. The only difference was my son also made a constant noise. Like a combination between a groan and a moan. It was excruciating to hear over and over all day long. He only stopped when he was finally able to say words and understand basic language. I would say almost 3 years. Amazing
Podcast Addict4 years agoFXMomThanks for spreading awareness. I did not know about Fragile X until after my son was born. S1E13 has an eerily similar story to my son's. Born with torticollis and flat side of head. Crossed eyes. Tongue tie. The only difference was my son also made a constant noise. Like a combination between a groan and a moan. It was excruciating to hear over and over all day long. He only stopped when he was finally able to say words and understand basic language. I would say almost 3 years. Amazing
Podcast Addict54 years agoFXMom- Fragile X
Great podcast!! I have two FMFX boys and this podcast is so supportive and encouraging!
I’m so glad I found it!!
-Breea S from Texas
Apple Podcasts5BreeaSTexasUnited States5 years ago - So informative!!
This podcast is a great help! All the speakers have a wealth of knowledge! It can really help you get through some of your difficult issues!
Apple Podcasts5Cathy Ann BUnited States5 years ago - Really enjoying Talk FX!!
I’m a Fragile X Full-Mutation Carrier and since discovering Talk FX Podcast I have been listening to every episode!! It is so nice to know that there’s a resource out there like a Podcast for the Fragile X Community!
Apple Podcasts5coliee11United States5 years ago - Talk FX
This has been such a helpful podcast by hearing similar journeys as mine. An absolute relief to know I’m not alone and so many have paved the road ahead of me. For that I’m forever grateful.
Apple Podcasts5FXMommaUnited States5 years ago
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Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #211 |  Ireland/Business/Non-Profit |
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Frequently Asked Questions About A Mama’s Xtra Love
What is A Mama’s Xtra Love about and what kind of topics does it cover?
A platform aimed at fostering understanding and support for Fragile X Syndrome, bringing together personal stories, expert insights, and advocacy initiatives related to this genetic condition. The discussions focus on the unique challenges and journeys of families affected by Fragile X, promoting community engagement and awareness about the disorder and related developmental disabilities. Noteworthy episodes include updates on personal experiences in the Fragile X community, advocacy related to National Fragile X Awareness Month, and insights into relevant stakeholders like research organizations and healthcare professionals. This podcast serves as a vital resource for parents, caregivers, and individuals seeking information and support in ... more
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How many episodes of A Mama’s Xtra Love are there?
A Mama’s Xtra Love launched 5 years ago and published 72 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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