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Surviving out of Spite

G-PACT non profit
Gastroparesis
Chronic Illness
G-Pact
Ehlers-Danlos Syndrome
Surviving Out Of Spite
Eosinophilic Esophagitis
Type 1 Diabetes
G-Poem
Chronic Pain
Advocacy
Medical Trauma
GI Psychology
Social Media
Nutrition
Celiac Disease
Gluten-Free Diet
Anxiety
Tuut
Washington, DC
SIBO

Welcome to Surviving out of Spite, a G-PACT podcast hosted by two patients living with gastroparesis. This show dives into the challenges , triumphs and everything in between that comes with managing a chronic condition. From heartfelt personal stories to practical advice and lots of laughs along the way, we explore the patient experience, provide informative content, and create a space where you'... more

PublishesWeeklyEpisodes50Foundeda year ago
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Artwork for Surviving out of Spite

Latest Episodes

How can patients use artificial intelligence to better understand their health, and should they trust it?

In Part 1 of this conversation, Sam chats with Erika Warren, founder of InsightfulMed, to discuss AI literacy in healthcare and how technology ... more

YouTube

In this episode of Surviving Out of Spite, Sam chats with Amber Tresca of AboutIBD to discuss the realities of living with inflammatory bowel disease (IBD), gastroparesis, and other chronic health challenges. Amber shares her personal journey with J-... more

YouTube

In this episode of Surviving Out of Spite, Sam sits down with Dr. Sarah Cohen Solomon for a deeply honest conversation about chronic illness, Ehlers-Danlos Syndrome (EDS), and what it really takes to build a more humane healthcare system.

Dr. Solomo... more

In this episode of Surviving Out of Spite, Sam sits down with Maddie, the voice behind Eosinophilic Chick, to talk about what it’s really like living with Eosinophilic Esophagitis (EOE).

Maddie shares her personal journey; from early symptoms and di... more

YouTube

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Recent Guests

Casey Cromwell
Advocate and gluten-free/Celiac disease educator known online as College Celiac Casey
Online presence: College Celiac Casey
Episode: Surviving Celiac Disease: Hidden Gluten, Hard Lessons & Learning to Live Anyway
Sarah Lusgarden-Fella
Person with gastroparesis who is a writer and traveler
G-PACT (Gastroparesis advocacy group)
Episode: She Refused to Let Gastroparesis Define Her | A Powerful Patient Story
Lara Bloom
President and CEO of the Ehlers-Danlos Society
Ehlers-Danlos Society
Episode: Ehlers-Danlos Syndrome (EDS): The Fight for Diagnosis, Care & Advocacy
Ty Gipson
Organ transplant recipient and advocate
Episode: He Survived Multiple Organ Transplants, and Chose Hope Anyway
Ali Navidi
Clinical psychologist specializing in GI
GI Psychology
Episode: It’s Not in Your Head—It’s Your Gut (And Here’s Why)
Lilly Stairs
Advocate, professional in biotech/healthcare, chronic illness survivor
Chronic Boss; autoimmune association
Episode: Chronic Illness Might Be Your Superpower
Donna Sullivan
Advocate and mother of three medically complex kids with Ehlers-Danlos syndrome
Coalition Against Pediatric Pain, GPACT collaborator
Episode: ‘Complicated’ and Chronic Illness: Patient Advocacy, Mental Health, and Healthcare Awareness
Hannah Keim
Heart patient, founder of Heart Charge nonprofit
Heart Charge
Episode: What Doctors Miss: HCM, Women’s Health, and Patient Voices
Dahlia Marin
Co-founder of Married to Health; Integrative Registered Dietitian
Married to Health
Episode: Gut-Immune Connection Explained

Host

Samantha
Host of Surviving out of Spite, G-PACT podcast

Reviews

5.0 out of 5 stars from 3 ratings
  • Podcast Review

    I love this podcast so much. There’s a raw, real quality to the episodes that really resonates with me. As someone with a lifelong chronic illness, I can’t recommend this podcast enough—for those who are struggling with chronic illness, those who love someone with chronic illness, and those who want to understand what survival with a chronic illness truly looks like.

    Apple Podcasts
    5
    Steve Schleuder
    United States8 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Guests bring diverse lived experiences and expertise, from clinicians to advocates.
The hosts create a supportive, honest space for chronic illness stories.
Listeners likely appreciate authentic perspectives over clinical detachment.
Episodes blend personal experiences with practical tips for living with GI conditions.
Community-focused, often highlighting advocacy and mutual support.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Episode 08: Gastroparesis Food Fight: Finding What Works
Q: How can someone approaching nutrition with gastroparesis decide between different protein options or supplements when there isn't a clear right answer?
Prioritize what works for your body, consider taste, texture, ingredients, and practicality, and use a prioritization approach with your provider to rank what matters most and try options accordingly.
Survival Mode to Self-Discovery: Lessons from Living with Chronic Illness
Q: Could you share a Reader's Digest version of your gastroparesis journey for listeners new to the space?
Crystal describes her diagnosis in 2004 at 23, the long-term living with variable gastric emptying, and her evolution from surviving to living well with gastroparesis, including pursuing health coaching and authoring a book to help others.
Episode 14: From Patient to Pioneer: Krystyna Houser’s Journey to mBIOTA
Q: What makes M.Biota different from existing options and why is patient-first approach central to the company?
M.Biota is built around the patient experience, with a focus on safety, efficacy, and taste. It isn't a drug and aims to support the body's healing naturally. The team emphasizes clinical grounding and transparent communication, ensuring patients can trust what they're using and how to use it, all while fostering a supportive community.
Episode 14: From Patient to Pioneer: Krystyna Houser’s Journey to mBIOTA
Q: Can you share what your experience was like in trying to treat your symptoms and how this product came to be?
My journey began after a difficult birth, followed by years of misdiagnosis. When a doctor finally identified SIBO, I learned that the most effective path was an elemental diet, but the taste was a major barrier. That frustration fueled the development of a better-tasting, patient-friendly version, leading to M.Biota and a broader mission to improve quality of life for GI patients.
Episode 26: When Fitness isn't Built for Us
Q: If someone is starting or restarting movement after a long period of inactivity, what is the first step you would recommend?
Start with a light, non-taxing movement—something like cozy cardio—to gauge tolerance, track response over a few weeks, and gradually increase duration while closely monitoring symptoms before adding more intense activities.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Surviving out of Spite

What is Surviving out of Spite about and what kind of topics does it cover?

The show centers on living with gastroparesis and other chronic GI conditions through candid storytelling, practical advice, and community-based support. Across episodes, conversations spotlight patient experiences, advocacy work, mind-body approaches to GI health, and strategies for navigating healthcare, diagnosis, and daily life with chronic illness. A notable throughline is empowering listeners to build communities, seek credible care, and pursue resilient living, often with a blend of humor and candor that makes difficult topics approachable. The program tends to feature patient advocates, clinicians who specialize in GI psychology or chronic illness care, and caregivers, offering actionable tips for managing symptoms, stress, and heal... more

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Which podcasts are similar to Surviving out of Spite?

These podcasts share a similar audience with Surviving out of Spite:

1. The Living Well Pod
2. unPAUSED with Dr. Mary Claire Haver
3. Being Well with Forrest Hanson and Dr. Rick Hanson
4. The Mel Robbins Podcast
5. 10% Happier with Dan Harris

How many episodes of Surviving out of Spite are there?

Surviving out of Spite launched a year ago and published 50 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Surviving out of Spite?

Recent guests on Surviving out of Spite include:

1. Casey Cromwell
2. Sarah Lusgarden-Fella
3. Lara Bloom
4. Ty Gipson
5. Ali Navidi
6. Lilly Stairs
7. Donna Sullivan
8. Hannah Keim

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