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Artwork for Make Visible: Complex Chronic Illness Explored

Make Visible: Complex Chronic Illness Explored

Visible with Emily Kate Stephens
Long COVID
Brain Fog
Fibromyalgia
Myalgic Encephalomyelitis/chronic Fatigue Syndrome
Chronic Overlapping Pain Conditions
Me-Cfs
Complex Chronic Illness
Health Care Education
ME/CFS
Cognitive Impairment
Centers For Disease Control and Prevention (CDC)
Community Support
Chronic Migraine
Postural Orthostatic Tachycardia Syndrome
Chronic Fatigue Syndrome
Cognitive Neurology
Chronic Illness
Mind, Body, and Soul
Medscape
Endometriosis

Shining a light on invisible illness.Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, MCAS, Chronic Lyme, IACCs and more, we dive into the science of energy-limiting, complex illness, whilst providing pa... more

PublishesTwice monthlyEpisodes25Foundeda year ago
Number of ListenersCategories
Health & FitnessMedicine

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Artwork for Make Visible: Complex Chronic Illness Explored

Latest Episodes

Dr Peter Rowe is a leading voice for adolescents and young people with Ehlers Danlos Syndrome (EDS) and Fatigue-related conditions.  An expert in orthostatic intolerance (OI), which is prevalent in nearly 100% of his patients, he believes that these ... more

YouTube

Amy Mooney’s aim is to improve the quality of life for her patients.  She is an occupational therapist specialising in the treatment of conditions that cause post-exertional malaise (PEM) and their comorbidities  – working with patients with ME/CFS, ... more

YouTube

Dr. Kevin Tracey is a pioneer in understanding the molecular basis of inflammation, and identifying the way in which neurons control the immune system via the Vagus Nerve. A neurosurgeon, scientist and entrepreneur, he is CEO of Feinstein Institutes,... more

YouTube

In a change to our usual format, this week Emily Kate Stephens sits down with fellow journalist, podcaster and chronic illness sufferer, Gez Medinger to explore their personal anecdotes and discuss the strategies that have made a difference in the tr... more

YouTube

Key Facts

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Number of Listeners
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Recent Guests

Amy Mooney
Occupational therapist focusing on chronic illness management
Episode: #23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney
Dr. Kevin Tracey
Neurosurgeon, scientist, and entrepreneur, CEO of the Feinstein Institute in New York.
Feinstein Institute
Episode: #22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Dr. Melanie Hoppers
Physician and co-founder of Physicians Quality Care Center, with focus on ME-CFS and Long Covid
Bateman Horne Center
Episode: #20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Abigail Goodship
Biomedical scientist and researcher at Imperial College
Imperial College
Episode: #19 Female hormones and the immune system, with Abigail Goodship
Dr. Rob Wüst
Exercise physiologist at Vrije Universiteit Amsterdam, specializing in Long Covid and ME-CFS research
Vrije Universiteit Amsterdam
Episode: #17 PEM: measuring the threshold and understanding the cause with Dr. Rob Wüst
Dr. Michal Caspi Tal
Researcher at the Tal Research Group, MIT
MIT
Episode: #16 Why are women more susceptible to complex illness? Predicting chronic conditions with Michal Caspi Tal PhD
Dr. David Putrino
Researcher and clinician at Mount Sinai focusing on complex chronic illnesses.
Mount Sinai
Episode: #14. Wearable technology and patient-led innovation with Dr. David Putrino
Suzanne Vernon
Research Director for the Bateman Horne Center and part of the Recover Initiative
Bateman Horne Center
Episode: #11 Post-Pandemic prevalence of ME/CFS - what we can learn from the increase with Suzanne Vernon, PhD
Suzy Bolt
Expert in managing complex chronic illness and facilitator of online support programs
Episode: #10 Staying connected (Part 2): Dealing with isolation and limitations in complex illness with Suzy Bolt

Host

Emily Kate Stephens
Host of Make Visible, a journalist and Long Covid sufferer focusing on complex chronic illness and advocating for improved understanding and management strategies for those affected by invisible illnesses.

Reviews

4.8 out of 5 stars from 132 ratings
  • So informative and helpful

    I just discovered this podcast today and the first episode I listened to was Emily and Gez sharing a bit about their personal journeys. Many deep sighs (and nearly tears) emanated from me as I listened to Emily and Gez articulate their challenges and insights that so closely resemble my experience with LC and ME/CFS. I am now sharing this episode with loved ones in the hopes that they will better understand what I’ve been going through for the past 2.5+ years. Would love to hear more details abo... more

    Apple Podcasts
    5
    tootsie5678
    United Statesa month ago
  • Outstanding - A Must-Listen For Long Covid Sufferers

    Emily Kate Stephens’ prior podcast was a light for me in the first dark years of Long Covid. Visible is an even better podcast - not only for Long Covid, but for anyone living with energy-limiting conditions. I love staying on top of medical perspectives and studies and hearing from a diverse group of experts. The links to additional information are helpful in identifying medical studies that I’m interested in exploring further.

    Thank you, Emily Kate, for providing information on medical condi... more

    Apple Podcasts
    5
    jenras
    United Statesa month ago
  • Ep.18 Cognitive Pacing

    Since being diagnosed with CFS & FMS fifteen years ago, this is the first time I’ve heard ‘cognitive pacing’ being mentioned and I couldn’t agree more.

    Apple Podcasts
    5
    pk42
    United Kingdom2 months ago
  • Thank you!

    The recent episode on pacing was fabulous! I found more info in this one hour than weeks of Gp appointments and clinics. Keep up the good work!!

    Apple Podcasts
    5
    EddieGeee
    United Kingdom3 months ago
  • Pacing & PEM episode

    This was an awesome episode and so many great nuggets to utilise. So appreciate this work - thank you 🧡

    Apple Podcasts
    5
    CazComyn
    Australia3 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the in-depth discussions on complex chronic illnesses and the inclusion of both expert insights and personal narratives.
Many find the content empowering and informative, particularly in relation to managing symptoms and improving quality of life.
Some feedback suggests that while the information is valuable, there is a desire for more engaging storytelling formats to maintain interest.
There are commendations for the clarity of explanations and practical advice shared by the guests and host.
Overall, the reception indicates a strong community feeling among listeners who resonate with the topics discussed.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Q: What is the Vagus Nerve that everyone talks about?
Dr. Tracey explains the anatomy and function of the Vagus Nerve, including its role in sensory and motor information processing in the body.
#22 Vagus Nerve & inflammation: the body’s healing reflex with Dr. Kevin Tracey
Q: Can you talk me through how you went from being a child who wanted to understand what was happening to people, to being someone now who is running an institute?
Dr. Tracey reflects on his journey, highlighting the importance of understanding personal values and making conscious choices in life and career.
#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Q: How can people recognize if it's actually a cognitive or emotional thing that has pushed them into PEM?
Keeping a log can help identify patterns; symptoms like trouble concentrating or losing train of thought are clues to needing a break.
#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Q: What is that physiological and biological basis that means medications don't work in PEM?
The autonomic nervous system is on overdrive and your mitochondria aren't functioning properly, leading to ineffective medication absorption and increased sensitivity.
#20 Practical guide to pacing and managing Post Exertional Malaise (PEM) with Dr Melanie Hoppers, Bateman Horne Center
Q: Can you tell me what this document is?
It's a clinical care guide for treating patients with ME-CFS and Long Covid, focusing on breaking down care approaches.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

The content focuses on complex chronic illnesses including ME/CFS, Long Covid, Ehlers Danlos Syndrome, Fibromyalgia, and various related conditions. It features discussions with leading experts, healthcare professionals, and researchers, emphasizing the latest scientific insights and practical management tools for patients. This podcast is particularly noteworthy for its commitment to shedding light on invisible illnesses and providing a platform for sharing personal experiences alongside empirical research. Each episode aims to empower listeners by offering a blend of medical information and patient-centered care strategies, making it relevant for both those affected by chronic illnesses and the healthcare community.

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. Long Covid Podcast
2. The Slowdown: Poetry & Reflection Daily
3. Feel Better, Live More with Dr Rangan Chatterjee
4. Ground Truths
5. The Hidden 20%

How many episodes of this podcast are there?

this podcast launched a year ago and published 25 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Amy Mooney
2. Dr. Kevin Tracey
3. Dr. Melanie Hoppers
4. Abigail Goodship
5. Dr. Rob Wüst
6. Dr. Michal Caspi Tal
7. Dr. David Putrino
8. Suzanne Vernon

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