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Artwork for Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Visible with Emily Kate Stephens
Long COVID
ME/CFS
Chronic Illness
Me-Cfs
Fibromyalgia
Post-Exertional Malaise
Brain Fog
Chronic Overlapping Pain Conditions
Myalgic Encephalomyelitis/chronic Fatigue Syndrome
Vagus Nerve
Mental Health
Inflammation
Complex Chronic Illness
Health Care Education
Postural Orthostatic Tachycardia Syndrome
Chronic Migraine
Chronic Fatigue Syndrome
Cognitive Impairment
Centers For Disease Control and Prevention (CDC)
POTS

Shining a light on invisible illness.Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive... more

PublishesTwice monthlyEpisodes44Founded2 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored

Latest Episodes

Putting patients at the heart of chronic illness care and research whilst supporting and educating practitioners, to develop robust, proven pathways and positive outcomes for those with ME/CFS, Long Covid, Fibromyalgia, EDS and related conditions.

Ta... more

YouTube

Bringing together research across Long Covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS) and other co-morbid conditions heralding faster, patient-specifi... more

YouTube

PrecisionLife are cracking the genetic code in complex chronic illness with their latest research in ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) and Long Covid.

Through large-scale studies in with DecodeME, the LOCOME Project, Sano... more

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REVIEW: with Nancy Klimas, Peter Rowe, Lucinda Bateman, Todd Davenport & Theoharis Theoharides

For decades, people living with ME/CFS, Long Covid, fibromyalgia, EDS and other complex chronic illnesses have faced too few answers. But research is givin... more

YouTube

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Recent Guests

Tahlia Ruschioni
Executive Director of the Bateman Horne Center
Bateman Horne Center
Episode: #43 Patient-focused care and practitioner education with Bateman Horne Center’s, Tahlia Ruschioni
Amy Rochlin
CEO of the Complex Disorders Alliance
Complex Disorders Alliance (CODA)
Episode: #42 Uniting the field to move faster together with Complex Disorders Alliance's Amy Rochlin
Steve Gardiner
CEO of PrecisionLife, AI health and life sciences leader
PrecisionLife
Episode: #41 Cracking the genetic code of complex chronic illness with Steve Gardner, PrecisionLife
Nancy Klimas
Immunologist, Director of the Institute of Neuroimmune Medicine
Nova Southeastern University
Episode: #40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
Peter Rowe
Professor of Pediatrics
Johns Hopkins University
Episode: #40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
Lucinda Bateman
Founder and Medical Director
Bateman Horne Center
Episode: #40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
Theoharis Theoharides
The Mast Cell Master
Institute of Neuroimmune Medicine
Episode: #40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
Todd Davenport
Professor of Physical Therapy
Workwell Foundation
Episode: #40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
Clayton Powers
Episode reference
Workwell Foundation
Episode: #40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS

Hosts

Emily Kate Stephens
Host of Make Visible
Gez Medinger
Co-host and interviewer

Reviews

4.8 out of 5 stars from 217 ratings
  • Live this Podcast!

    Could you do more on personal experience? Hearing the reality of living with a chronic illness from other people is very comforting and I’d love to hear more like episode #33

    Apple Podcasts
    5
    the not so clumsy nija
    United States2 months ago
  • Helps patients AND to raise awarness 💚

    This podcast is of extremly high quality and is based on the most actual research. Very informative and also casual and easy to listen - complex medical terms are well explained 👍🏼

    Apple Podcasts
    5
    SlowGreenJulez
    Germany7 months ago
  • Fantastic Show!

    This show is amazing! As someone who has been dealing with complex chronic illnesses for almost 10 years, I have found this to be one of the most informative and empathetic podcasts I have listened to on the subject matter. I adore Emily Kate Stephens, and I think the addition of Gez Medinger’s expertise has been wonderful.

    I would love if y’all interviewed Dr. Andrea Chadwick of Swing Care and Dr. Ginevra Liptan, who wrote the Fibro Manual. (Swing Care is an amazing telehealth program for peo... more

    Apple Podcasts
    5
    L. C. Ross
    United States7 months ago
  • Very helpful

    I’ve found this podcast very helpful for myself as I navigate Long COVID and ME/CFS. Would love an episode specifically on nutrition, especially as it pertains to mitochondrial health. An episode on caregiving while sick (for kids or elderly) would also be great. Thank you!

    Apple Podcasts
    5
    WFisthe
    United States7 months ago
  • Now it’s excellent

    I am updating my early criticism, now the show is excellent! The sleep one was so helpful, and think the interplay between the scientific speaker and how you have both implemented stuff is the way to go, really relatable and informative. Not to mention so sick of listening to other podcasts on sleep trot out the same ole same ole for healthy ppl who simply don’t prioritise sleep! One thing though you ask for feedback but there is no email address so how? Will you even read this? And lastly promp... more

    Apple Podcasts
    5
    Sulamaye
    United Kingdom8 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate high-quality medical discussion that is accessible and empathetic.
Audience finds the show helpful for understanding complex conditions and navigating care, with room for broader topics like nutrition and caregiving.
Guests and experts are consistently engaging and credible, with practical takeaways for managing chronic illness.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#43 Patient-focused care and practitioner education with Bateman Horne Center’s, Tahlia Ruschioni
Q: What is the Medical Education Resources Center and the Clinical Care Guide, and how do they help clinicians and patients?
The Center provides multimodal education including lectures, patient-focused materials, and hands-on training; the Clinical Care Guide offers a structured, multi-system framework for diagnosing and managing ME/CFS and Long Covid, with emphasis on patient-centered care and practical resources for clinicians.
#43 Patient-focused care and practitioner education with Bateman Horne Center’s, Tahlia Ruschioni
Q: How did you arrive at Bateman Horne Center and become Education Director?
Tahlia discusses a long career in clinical education, how meeting ME/CFS patients personally shaped her approach, and how collaboration with Bateman Horne Center grew from an initial partnership into a dedicated education program.
#37 ME/CFS breakthroughs: are treatments getting closer? With ActionForME, NIH, CODA, Bateman Horne Center & PrecisionLife
Q: What are the three primary focus areas identified for ME-CFS research roadmap?
The three primary focus areas are genetics to understand polygenic contributions and brain-immune interactions, brain inflammation and its reversibility, and immune system dynamics including T-cell exhaustion, aiming for precision, individualized treatments.
#35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi
Q: What exactly is the device and how does it work to stimulate the vagus nerve?
The device is a non-invasive taVNS worn on the ear (tragus) that delivers electrical stimulation to activate the auricular branch of the vagus nerve, signaling the brainstem and engaging pathways that influence autonomic balance, inflammation, and neuroplasticity.
#34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist
Q: From the off, that exercise messaging can be divisive; how do you interpret that with patients who have fibromyalgia?
Exercise should be framed as problem-solving for the individual's current pain and functional barriers, not as a generic cardio prescription. Start with small, non-threatening movements and gradually scale based on patient feedback and daily realities.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

This show centers on invisible illnesses, with a focus on ME/CFS, Long Covid, POTS, EDS, fibromyalgia, MCAS, and related multi-system conditions. Across episodes, listeners are treated to expert discussions on biology, immunology, autonomic dysfunction, sleep, rehab, and precision medicine, often paired with practical strategies for pacing, symptom tracking, and patient advocacy. The format blends clinician/researcher insights with patient perspectives, occupational therapy and rehabilitation approaches, and real-world care pathways, making it a valuable resource for patients, caregivers, clinicians, and researchers seeking evidence-informed avenues and a holistic view of chronic illness care. Notably, the show frequently explores how multi... more

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1. The Recovery Room with Jackie Baxter
2. Therapy Works
3. Bendy Bodies with Dr. Linda Bluestein
4. As the Season Turns
5. ADHD Chatter

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this podcast launched 2 years ago and published 44 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Tahlia Ruschioni
2. Amy Rochlin
3. Steve Gardiner
4. Nancy Klimas
5. Peter Rowe
6. Lucinda Bateman
7. Theoharis Theoharides
8. Todd Davenport

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