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Artwork for Make Visible: Chronic Illness Explored

Make Visible: Chronic Illness Explored

Visible with Emily Kate Stephens
Long COVID
Chronic Illness
Me-Cfs
Fibromyalgia
ME/CFS
Brain Fog
Chronic Overlapping Pain Conditions
Myalgic Encephalomyelitis/chronic Fatigue Syndrome
Vagus Nerve
Post-Exertional Malaise
Mental Health
Inflammation
Complex Chronic Illness
Health Care Education
Postural Orthostatic Tachycardia Syndrome
Chronic Migraine
Chronic Fatigue Syndrome
Cognitive Impairment
Centers For Disease Control and Prevention (CDC)
Community Support

Shining a light on invisible illness.Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, Ehlers Danlos (EDS), Fibromyalgia, POTS, Mast Cell Activation Syndrome (MCAS), Chronic Lyme, Infection Associated Chronic Conditions (IACCs) and more, we dive... more

PublishesTwice monthlyEpisodes38Founded2 years ago
Number of ListenersCategories
Health & FitnessMedicine

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Artwork for Make Visible: Chronic Illness Explored

Latest Episodes

SCIENCE: Are ME/CFS research breakthroughs finally helping us understand the disease and move closer to treatments?

ME/CFS has been underfunded and under-researched for decades.  Despite the scale and severity of the illness, major gaps remain in dia... more

YouTube

STORIES: What do you do when your medical training has no answers for your own child?

This is the question that Dr Binita Kane found herself facing in the aftermath of the Covid-19 pandemic.

As a Consultant Respiratory Physician, Dr Kane was among t... more

YouTube

SCIENCE: What if a small, non-invasive device could help regulate your nervous system, reduce inflammation, improve cognitive function, and support recovery from chronic illness?

Dr Elisabetta Burchi, psychiatrist, entrepreneur, and Head of Research ... more

YouTube

STRATEGIES: Physical rehabilitation for chronic pain conditions.

If you live with fibromyalgia, ME/CFS, EDS or chronic pain, you've likely heard that exercise may help. You've also probably learned, the hard way, that the wrong kind of effort costs y... more

YouTube

Key Facts

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Recent Guests

Dr. Vicky Whittemore
Program director at the National Institute of Neurological Disorders and Stroke, NIH
National Institutes of Health (NIH)
Episode: #37 ME/CFS breakthroughs: are treatments getting closer?
Amy Rochlin
CEO of the Complex Disorders Alliance
Complex Disorders Alliance
Episode: #37 ME/CFS breakthroughs: are treatments getting closer?
Steve Gardner
CEO of PrecisionLife
PrecisionLife
Episode: #37 ME/CFS breakthroughs: are treatments getting closer?
David Tuller
Senior Fellow in Public Health, UC Berkeley
University of California, Berkeley
Episode: #37 ME/CFS breakthroughs: are treatments getting closer?
Sonya Chowdhury
CEO of Action for ME
Action for ME
Episode: #37 ME/CFS breakthroughs: are treatments getting closer?
Elisabetta Burchi
Psychiatrist, works with Parasym and researcher in neuromodulation
Parasym
Episode: #35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi
Ryan Bourdo
Physical therapist at Oregon Health and Science University
Oregon Health and Science University (Portland, OR)
Episode: #34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist
Dr. Lucy Foulkes
Academic psychologist and senior research fellow at Oxford University; author; focus on adolescent mental health and social development
Oxford University
Episode: #33 Hypermobile Ehlers-Danlos Syndrome (hEDS) undiagnosed for 23 years with Dr Lucy Foulkes
Avindra Nath
Clinical Director at the NIH/NINDS; ME/CFS and post-infectious research expert
National Institute of Neurological Disorders and Stroke (NIH/NINDS)
Episode: #32 Hidden Virus, Immune Exhaustion & the Brain: Long Covid, ME/CFS and post-viral illness with Dr Avindra Nath (NIH)

Hosts

Emily Kate Stephens
Host of the show; journalist and Long Covid sufferer; affiliated with Visible (Visible Health)
Gez Medinger
Co-host and facilitator; interviewer; public advocate for chronic illness awareness

Reviews

4.8 out of 5 stars from 193 ratings
  • Helps patients AND to raise awarness 💚

    This podcast is of extremly high quality and is based on the most actual research. Very informative and also casual and easy to listen - complex medical terms are well explained 👍🏼

    Apple Podcasts
    5
    SlowGreenJulez
    Germany3 months ago
  • Fantastic Show!

    This show is amazing! As someone who has been dealing with complex chronic illnesses for almost 10 years, I have found this to be one of the most informative and empathetic podcasts I have listened to on the subject matter. I adore Emily Kate Stephens, and I think the addition of Gez Medinger’s expertise has been wonderful.

    I would love if y’all interviewed Dr. Andrea Chadwick of Swing Care and Dr. Ginevra Liptan, who wrote the Fibro Manual. (Swing Care is an amazing telehealth program for peo... more

    Apple Podcasts
    5
    L. C. Ross
    United States3 months ago
  • Very helpful

    I’ve found this podcast very helpful for myself as I navigate Long COVID and ME/CFS. Would love an episode specifically on nutrition, especially as it pertains to mitochondrial health. An episode on caregiving while sick (for kids or elderly) would also be great. Thank you!

    Apple Podcasts
    5
    WFisthe
    United States4 months ago
  • Now it’s excellent

    I am updating my early criticism, now the show is excellent! The sleep one was so helpful, and think the interplay between the scientific speaker and how you have both implemented stuff is the way to go, really relatable and informative. Not to mention so sick of listening to other podcasts on sleep trot out the same ole same ole for healthy ppl who simply don’t prioritise sleep! One thing though you ask for feedback but there is no email address so how? Will you even read this? And lastly promp... more

    Apple Podcasts
    5
    Sulamaye
    United Kingdom4 months ago
  • Thank you both

    I am so sorry that you have both had to deal with Long COVID. Thank you for all you are doing to help others. Your discussions have been so helpful for my family.

    Apple Podcasts
    5
    hou756
    United States4 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Shows high-quality, research-backed content with empathetic hosts.
Listeners appreciate practical tips and credible guests, especially for Long Covid/ME/CFS.
Listeners want more on topics like nutrition and caregiving; feedback is welcomed.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#37 ME/CFS breakthroughs: are treatments getting closer?
Q: What are the three primary focus areas identified for ME-CFS research roadmap?
The three primary focus areas are genetics to understand polygenic contributions and brain-immune interactions, brain inflammation and its reversibility, and immune system dynamics including T-cell exhaustion, aiming for precision, individualized treatments.
#35 Vagus nerve stimulation for chronic illness and better health with Dr Elisabetta Burchi
Q: What exactly is the device and how does it work to stimulate the vagus nerve?
The device is a non-invasive taVNS worn on the ear (tragus) that delivers electrical stimulation to activate the auricular branch of the vagus nerve, signaling the brainstem and engaging pathways that influence autonomic balance, inflammation, and neuroplasticity.
#34 Fibromyalgia and chronic pain management with Ryan Bourdo, Physical Therapist
Q: From the off, that exercise messaging can be divisive; how do you interpret that with patients who have fibromyalgia?
Exercise should be framed as problem-solving for the individual's current pain and functional barriers, not as a generic cardio prescription. Start with small, non-threatening movements and gradually scale based on patient feedback and daily realities.
#32 Hidden Virus, Immune Exhaustion & the Brain: Long Covid, ME/CFS and post-viral illness with Dr Avindra Nath (NIH)
Q: What are the potential therapeutic avenues discussed, and what are the caveats?
Therapies like IVIG and PD-1 checkpoint inhibitors are being explored to reset immune function, but there are safety concerns and the need for rigorous trials to avoid autoimmunity or unintended complications before they can be recommended.
#32 Hidden Virus, Immune Exhaustion & the Brain: Long Covid, ME/CFS and post-viral illness with Dr Avindra Nath (NIH)
Q: What did your deep phenotyping study reveal about immune differences between men and women with ME/CFS?
The study found divergent immune activation patterns: more B cell activation in men and more T cell activation in women, with both groups showing immune exhaustion, suggesting sex-specific pathways in disease mechanisms and implications for treatment.

Audience Metrics

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Frequently Asked Questions About Make Visible: Chronic Illness Explored

What is Make Visible: Chronic Illness Explored about and what kind of topics does it cover?

The show centers on chronic, energy-limiting illnesses (ME/CFS, Long Covid, POTS, EDS, fibromyalgia, MCAS) and how science translates into practical living. Conversations blend biomedical research with patient lived experience, featuring clinicians, researchers, and advocates who discuss neuromodulation, autonomic regulation, sleep, pacing, rehabilitation, and pragmatic strategies for daily life. Notable strengths include a patient-forward perspective coupled with access to cutting-edge science, plus an emphasis on actionable tips, care navigation, and advocacy resources that listeners can apply immediately. A consistent through-line is building understanding across complex multisystem conditions and translating research into everyday tools... more

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Which podcasts are similar to Make Visible: Chronic Illness Explored?

These podcasts share a similar audience with Make Visible: Chronic Illness Explored:

1. Bendy Bodies with Dr. Linda Bluestein
2. Long Covid Podcast
3. Mast Cell Matters: Deep dives on MCAS with Tania Dempsey, MD - Presented by The POTScast
4. Tara Brach
5. The Telepathy Tapes

How many episodes of Make Visible: Chronic Illness Explored are there?

Make Visible: Chronic Illness Explored launched 2 years ago and published 38 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Make Visible: Chronic Illness Explored?

Recent guests on Make Visible: Chronic Illness Explored include:

1. Dr. Vicky Whittemore
2. Amy Rochlin
3. Steve Gardner
4. David Tuller
5. Sonya Chowdhury
6. Elisabetta Burchi
7. Ryan Bourdo
8. Dr. Lucy Foulkes

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