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Artwork for Lipedema Stories Podcast

Lipedema Stories Podcast

lippylymphladies
Lipedema
Lymphedema
Surgery
Glp-1
Insurance
Boston
Vibration Plate
Compression Therapy
Pycnogenol
Liposuction
Green Bay
Bariatric Surgery
Tiktok
Lipedema Research
Glp-1s
Germany
Nome, Alaska
Physical Therapy
Compression Garments
Metal Hypersensitivity

What do you get when you have an OT, RN, and COTA? A Lipedema and Lymphedema podcast, of course! Join the three lippy lymph ladies as we are joined by guests who will be telling their Lipedema or lymphedema stories. Laugh with us, cry with us, and find a community with us.

PublishesWeeklyEpisodes45Founded10 months ago
Number of ListenersCategories
Health & FitnessMedicine

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Artwork for Lipedema Stories Podcast

Latest Episodes

In this episode the hosts open with a research moment on GLP-1 therapies (including tirzepatide) and their potential to reduce inflammation, fibrosis, and support weight loss in lipoedema patients. They discuss clinical implications, insurance challe... more

Hosts start with a research spotlight on ketogenic diets as a potential therapeutic option for lipoedema, then invite Carrie to share her lifelong experience with the condition—childhood onset, family reactions, and the struggle to find answers.

Car... more

This episode opens with a research moment comparing lymphedema and lipedema, highlighting higher pain and neuropathic symptoms in lipedema and similar emotional burden in both conditions.

Guests Alice and Candice, a mother-daughter duo, share their ... more

Hosts Lisa, Janine, and Janae discuss a recent April study showing a calorie-restricted, low-carb high-fat diet reduced body weight, leg volume, and pain in women with lipedema, then welcome guest Aurora McCausland.

Aurora shares how she discovered ... more

Key Facts

Accepts Guests
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Number of Listeners
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Intermittent FastingDr. Stephen Cabral

Recent Guests

Aurora McCausland
Lipidemia-impacted individual who shared her diagnosis journey and advocacy work
Individual guest (Lipedema awareness advocate)
Episode: Thin Frame, Big Battle: Aurora’s Lipedema Story and Insurance Fight
Gloria Pippa
Lipedema Warrior and founder of Brave & Lee Global
Brave & Lee Global
Episode: From Misdiagnosis to Movement: Gloria’s Lipoedema Fight and Recovery
Katie Tar
Physical therapist and lipedema surgery patient
Roxbury Institute / Roxbury Institute physicians referenced
Episode: When Vein Treatment Falls Short: New Research and One Woman's Lipedema Journey
Nicole Santanastosso
Registered dietitian and Lipedema patient sharing her journey
Nome, Alaska
Episode: From Nome to Recovery: One Woman’s Lipoedema Journey
Cassie Moser
Lipedema patient who shares her diagnosis journey and treatment experience
Patient; Lipedema patient treated at Roxbury
Episode: After 30 Years: Finding Lipedema and Getting My Life Back
Jessica Johnson
Patient of one of the hosts; underwent Lipedema-related surgery and shares her journey
Episode: Lipedema Stories: When Men Have It Too — Research & Real Talk
Patty Unfinished
Lipedema advocate sharing her journey
Independent patient advocate
Episode: Lipoedema Truths: From Misdiagnosis to Momentum

Hosts

Lisa
Host of Lipedema Stories Podcast
Janine
Co-host of Lipedema Stories Podcast
Janae
Host of Lipedema Stories Podcast

Reviews

5.0 out of 5 stars from 17 ratings
  • LISTEN LISTEN

    Love listening to these ladies share their stories! Thank you for starting this. You ladies are all AMAZING

    Apple Podcasts
    5
    Kassie Avila
    United States10 months ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

– Compassionate, story-driven insights that feel authentic and supportive.
– Strong emphasis on practical care tips and navigating care pathways.
– Consistently helpful for listeners seeking understanding and community around lipedema.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Keto & Lipoedema: What the Research Says
Q: What were the early signs and challenges before Lipedema was understood, and how did treatment evolve?
She describes puberty-related changes, early misinterpretations of weight gain, family pressures about fitness, and the turn to surgery after unsuccessful non-surgical approaches, followed by the realization of lipedema and the impact of post-operative care.
Keto & Lipoedema: What the Research Says
Q: Who are you without Lipedema, and what do you do in daily life?
Carrie shares that she is a home health diabetic specialist nurse, loves her job, and is a grandmother who enjoys interior design and spending time with her grandchildren.
Teresa’s Lipedema Story
Q: Teresa, if you don't mind just starting us off by telling us how you figured out you had Lipedema.
Teresa explains that she had Lipedema for a long time but didn't know what it was. After a series of health issues and seeing multiple doctors, she learned from a cardiologist that she had Lipedema, which led her to research and seek treatment.
Vibration Plates, Surgery & Survival: Nikki’s Lipedema Journey
Q: Nikki, how did you first become aware that what you had was Lipedema rather than a broader obesity issue?
Nikki explains she was initially misdiagnosed and later identified by a lymphedema clinic as lipedema, which led her to pursue targeted treatments and clinical guidance.
Unmasking Intimacy: Lipedema's Hidden Impact
Q: What has changed after your lipedema removal surgeries?
Sam describes improved mobility, easier cardio, and less pain while performing daily activities and exercise.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
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Frequently Asked Questions About Lipedema Stories Podcast

What is Lipedema Stories Podcast about and what kind of topics does it cover?

Lipedema Stories Podcast centers on real patient journeys and clinical perspectives around lipedema and lymphedema, often featuring personal stories, advocacy, and practical care strategies. Episodes frequently explore treatment options (including surgery, compression, and CDT), access to care, and the emotional impact of living with lipedema, with a strong emphasis on patient experiences, medical context, and community support. Noteworthy traits include a steady focus on insurance navigation, multidisciplinary care, and the role of families and caregivers in the lipedema journey, making it a valuable resource for listeners seeking empathetic, experience-rich insights and evidence-informed guidance.

Where can I find podcast stats for Lipedema Stories Podcast?

Rephonic provides a wide range of podcast stats for Lipedema Stories Podcast. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Lipedema Stories Podcast and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Lipedema Stories Podcast get?

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What are the audience demographics for Lipedema Stories Podcast?

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How many subscribers and views does Lipedema Stories Podcast have?

To see how many followers or subscribers Lipedema Stories Podcast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Lipedema Stories Podcast?

These podcasts share a similar audience with Lipedema Stories Podcast:

1. Stronger than Lipedema
2. Lipedema Mamas Podcast
3. Bendy Bodies with Dr. Linda Bluestein
4. unPAUSED with Dr. Mary Claire Haver
5. Intermittent Fasting

How many episodes of Lipedema Stories Podcast are there?

Lipedema Stories Podcast launched 10 months ago and published 45 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Lipedema Stories Podcast?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Lipedema Stories Podcast?

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How do I access podcast episode transcripts for Lipedema Stories Podcast?

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What guests have appeared on Lipedema Stories Podcast?

Recent guests on Lipedema Stories Podcast include:

1. Aurora McCausland
2. Gloria Pippa
3. Katie Tar
4. Nicole Santanastosso
5. Cassie Moser
6. Jessica Johnson
7. Patty Unfinished

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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