If you're new to myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), we're here to tell you that you are not alone. There are millions of others like you. At #MEAction, our mission is to advocate for people with ME to raise awareness, educate, and fight for better access, better treatments, and ultimately a cure. Whether you’re new to this disease or you’ve been... more
Publishes | Monthly | Episodes | 8 | Founded | 2 years ago |
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Categories | ScienceLeisure |
Cynthia Adinig is a marketing specialist turned Long COVID advocate. She is the co-founder of BIPOC Equity Agency which is a diversity, equity, and inclusion agency with a focus on healthcare, policy, and research. She is a board member of SolveME, a... more
David Tuller obtained his Doctorate in public health from UC Berkeley. He is a senior fellow in public health and journalism at UC Berkeley’s Center for Global Public Health. more
Steven and Jaime sit down with #MEAction's executive director, Laurie Jones, as the end-of-year fundraiser winds down to a close. Laurie has years of experience working in non-profits and in the arts. Prior to joining the #MEAction team, Laurie was t... more
Ryan Prior sits on #MEAction's board of directors. He is a journalist for CNN, a filmmaker who co-directed the documentary Forgotten Plague, and author of the newly released book, The Long Haul: Solving the Puzzle of the Pandemic's Long Haulers and ... more
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I want to say so much, but I don't have the energy and it frustrates me to no end. I had to tell these doctors and hosts how unbelievably grateful I am to know there are actually new doctors who are interested in helping us, the lepers of the medical community. I have been buried alive in my bed for 7 years now with me/cfs and I've just about given up hope of ever having any kind of life- but listening to you guys made me think, and it feels dangerous, but it made me think just maybe someday...... more
We need so much more of this conversation around being chronically ill. Really thought provoking episode! Looking forward to the next one.
Great to have a professional sounding Podcast that is relaxing to listen to and informative. Helps to stave off feelings of isolation, knowing that we are all connected in a disparate community. Having one of the presenters describe himself as a healthy ally is a balanced touch that connects us to the wider society as well.
As a person with ME, I long for safe spaces that discuss chronic illness with respect, insight and nuance. Chronically Complex hits all the marks. I really appreciate that the hosts and the guest only used the terms “M.E.” and “ME/CFS” instead of the other less fortunate term that is more often used. Jamie and Steven did a great job and I look forward to hearing more in the future.
Finally - a podcast devoted to this invisible, unexplained illness! The first episode is a promising start - with a knowledgeable guest and perceptive hosts asking intelligent questions and follow-up. I’ve lived with ME/CFS since 2011 and it’s heartening to know that the CC podcast is working to get the word out. Thank you ME Action!
Listeners, engagement and demographics and more for this podcast.
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Chronically Complex launched 2 years ago and published 8 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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