CDKL5 in Color
Marissa BishopOn the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a ... more
| Publishes | Weekly | Episodes | 29 | Founded | a year ago |
|---|---|---|---|---|---|
| Number of Listeners | Category | Society & Culture | |||
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Latest Episodes
Episode 28: Understanding CDKL5 Deficiency Disorder
There are people all over the world whose children are living with CDKL5 deficiency disorder. We prepared the free eBook "Understanding CDKL5 Deficiency Disorder" for our fellow CDKL5 moms and dads... more
Episode 27: CDKL5 Science Chat with Ben Goult
Put your thinking caps on because we have a scientist in the studio with us! In this episode we welcome Ben Goult, a biochemist and professor of mechanistic cell biology at the University of Liverpool. H... more
Episode 26: Keshia’s Life with Emani (age 16)
Our guest, Keshia, shares about the beautifully complex life she has with her daughter, Emani. We discuss the challenges of rural life and limited support systems as well as the mindset Keshia has cultiv... more
Episode 25: Let’s Talk About AAC
While most people living with CDKL5 Deficiency Disorder are non-speaking, this does not mean they cannot communicate! AAC or Augmentative and Alternative Communication refers to any method or tool that helps someone ... more
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- Great job!
Very informative! Great job! I’ve learned a lot!
Apple Podcasts5MaryW52!
United States8 months ago - Community!
Where else can you hear about CDKL5 like this?! It’s so important to connect as a community 💚
Apple Podcasts5walkmo1United States9 months ago - Just what I needed 👏🏽
We are a year into our CDKL5 journey and this podcast has been a great help! Even though I cry every time I listen, I hang out for the next episode. The stories are so relatable, it makes us feel we are not alone. Thanks for making our journey a little better, keep up the good work ladies x
Apple Podcasts5Beckyhendo
Australia9 months ago - Openness
My husband and I have enjoyed listening so far! It has allowed us to see CDKL5 in different aspects and think about ways we can help our daughter and it shares the same feelings we’ve felt!
Apple Podcasts5HBWilliams0618United Statesa year ago - True Colors
Marissa and Amanda are off to a great start! I came to learn more about life with CDKL5. I’m staying for the personal stories and authentic experiences. If the world makes you crazy, and you've taken all you can bear, come hang out with these amazing moms!
Apple Podcasts5vtgeekUnited Statesa year ago
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Frequently Asked Questions About CDKL5 in Color
What is CDKL5 in Color about and what kind of topics does it cover?
Content encompasses a range of experiences shared by co-hosts and guests who are parents and caregivers to children with CDKL5 Deficiency Disorder. Themes frequently explored include the challenges of navigating healthcare systems, the emotional journey of caregiving, and the importance of community support. Episodes often feature personal stories that highlight the unique difficulties faced by families dealing with this rare condition and emphasize the significance of advocacy and awareness-raising. The approach is notably inclusive, as it seeks to connect diverse voices from the CDKL5 community, offering a rich tapestry of experiences that resonate deeply with listeners in similar situations. This format likely fosters a supportive enviro... more
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How many listeners does CDKL5 in Color get?
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How many episodes of CDKL5 in Color are there?
CDKL5 in Color launched a year ago and published 29 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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