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Bruised But Not Broken: Living with ITP

PDSA
Immune Thrombocytopenia (ITP)
PDSA
Immune Thrombocytopenia
PDSA Conference
ITP Awareness Month
Aging
Vaccines
Clinical Trials
Inherited Thrombocytopenia
ITP
ICON
Pediatric ITP
Systemic Lupus Erythematosus (lupus)
ITP (immune Thrombocytopenia)
Car Show
Physical Therapy
Observational Studies
Genetic Testing
Inborn Errors Of Immunity
Evans Syndrome

The diagnosis of immune thrombocytopenia may leave you wondering – how can I really live my life with ITP? PDSA’s podcast, “Bruised but not Broken: Living with ITP”, brings you empowering stories, lifestyle tips, and answers to the real-life questions the ITP community is asking.

PublishesMonthlyEpisodes34Founded8 months ago
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Artwork for Bruised But Not Broken: Living with ITP

Latest Episodes

What should you do if an ITP emergency happens? While critical bleeding is rare, knowing the warning signs and acting quickly can make all the difference. In this episode, renowned hematologist Dr. Donald Arnold discusses the new Emergency Management... more

In this episode of Bruised but Not Broken: Living with ITP, Barbara Pruitt talks with hematologist Dr. Camila Masias about how ITP is diagnosed and why it’s considered a “diagnosis of exclusion.” They discuss the tests doctors use to rule out other c... more

In recognition of Lupus Awareness Month, this episode explores the important connection between lupus and immune thrombocytopenia (ITP), two autoimmune conditions that can sometimes overlap. Host Barbara Pruitt is joined by guests Cathy Aldama and Be... more

If treating pediatric ITP can sometimes feel like trial and error, this episode helps explain why—and what’s being done to change that. Host Barbara Pruitt talks with Dr. Kristin Shimano about the growing role of collaboration in advancing research, ... more

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Recent Guests

Dr. Camila Masias
Hematologist and clinical investigator at Miami Cancer Institute, Baptist Health of South Florida; ASH Clinical Guidelines Committee member
Miami Cancer Institute / Baptist Health of South Florida; American Society of Hematology
Episode: ITP Diagnosis Explained: Why the Right Tests Matter
Cathy Aldama
ITP and Lupus patient
Episode: When Symptoms Don't Add Up: The Overlap of Lupus and ITP
Beth Siegelbaum
ITP and Lupus patient
Episode: When Symptoms Don't Add Up: The Overlap of Lupus and ITP
Kristin Shimano
Pediatric hematologist and bone marrow transplant physician at UCSF Benioff Children's Hospital; Operations Committee Chair of ICON
UCSF Benioff Children's Hospital; ICON
Episode: Transforming Pediatric ITP Research: Inside the Pediatric ITP Consortium of North America (ICON)
Michael Barden
ITP patient with Evans syndrome
Independent patient advocate
Episode: A Life-Altering Battle with ITP, Evans Syndrome, and Uncertainty: Michael's Journey
Peter Pruitt
Chair of the Board for PDSA for 17 years, involved since early on
PDSA
Episode: How PDSA's Board Helps Shape the Future of the ITP Community
Derek Zimmerman
Board member since 2018, CFO and VP of Business Operations at a consulting engineering firm
PDSA
Episode: How PDSA's Board Helps Shape the Future of the ITP Community
Michele Lambert
Pediatric hematologist at Children's Hospital of Philadelphia; associate professor of pediatrics at the University of Pennsylvania; former chair of Pediatric ITP Consortium of North America; chair of PDSA's Medical Advisory Board
Children's Hospital of Philadelphia; University of Pennsylvania; PDSA
Episode: Understanding the Difference Between Inherited and Immune Thrombocytopenia
Dr. Rachael Grace
Pediatric hematologist at Boston Children's Hospital; Associate Professor of Pediatrics at Harvard Medical School; Medical Director of the Hematology Clinical Research Program; Member of the PDSA Medical Advisory Board
Boston Children's Hospital; Harvard Medical School; PDSA
Episode: Your Role in ITP Research: When to Consider a Clinical Trial

Host

Barbara Pruitt
Host of PDSA podcast and Bruised But Not Broken: Living with ITP

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Talking Points

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Transforming Pediatric ITP Research: Inside the Pediatric ITP Consortium of North America (ICON)
Q: Question, if a health care provider is interested in joining ICON or getting more information, how would they go about doing that?
They should visit the ICON website where there is information for health care providers, a map of participating sites, and the process to join, including the memorandum of understanding and requirement to participate in a committee.
Understanding the Difference Between Inherited and Immune Thrombocytopenia
Q: When might genetic testing be considered for a patient thought to have ITP?
Genetic testing is considered when there is a strong family history of high or low platelet counts, unusual response to standard ITP therapies, or clues suggesting an inherited platelet disorder or IEI. (timestamp to be inferred from discussion around 1|638445 and 1|680305)
Understanding the Difference Between Inherited and Immune Thrombocytopenia
Q: Why is family history important in diagnosing ITP versus inherited thrombocytopenia?
Family history helps distinguish inherited causes from immune-mediated cases, as a history of low platelets or related bleeding across relatives suggests a genetic basis and may change the treatment approach.
Understanding the Difference Between Inherited and Immune Thrombocytopenia
Q: What is the fundamental difference between inherited platelet disorders and immune-mediated platelet disorders like ITP?
Inherited disorders are due to genetic changes that affect platelet production and are a platelet problem, while immune-mediated disorders have normal platelet production but the immune system destroys platelets, making it an immune destruction problem.
ITP Awareness Month: Why September Matters and How to Get Involved
Q: What does ITP Awareness Month mean to the organization?
It means elevating visibility for a rare disease, mobilizing patients, caregivers, and volunteers, and coordinating a global (and local) effort to educate and engage communities through events, social media, and partnerships.

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Frequently Asked Questions About Bruised But Not Broken: Living with ITP

What is Bruised But Not Broken: Living with ITP about and what kind of topics does it cover?

The show focuses on lived experiences with immune thrombocytopenia (ITP), practical guidance for navigating diagnosis, treatment decisions, and daily life, and a strong emphasis on patient advocacy and community support. Episodes frequently feature clinicians explaining medical concepts, researchers outlining new studies or trials, and patients and family members sharing firsthand journeys, coping strategies, and fundraising or awareness efforts. A notable strength is its blend of medical context, real-world patient perspectives, and actionable resources for clinicians, patients, and caregivers alike, including guideline updates, genetic considerations, and access-to-care challenges. The format appears to balance expert commentary with pers... more

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2. Two Onc Docs
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5. SHE MD

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Bruised But Not Broken: Living with ITP launched 8 months ago and published 34 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Bruised But Not Broken: Living with ITP?

Recent guests on Bruised But Not Broken: Living with ITP include:

1. Dr. Camila Masias
2. Cathy Aldama
3. Beth Siegelbaum
4. Kristin Shimano
5. Michael Barden
6. Peter Pruitt
7. Derek Zimmerman
8. Michele Lambert

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