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Artwork for A Friend for the Long Haul: A Long Covid Podcast

A Friend for the Long Haul: A Long Covid Podcast

A Friend for the Long Haul
Long COVID
Chronic Illness
Mental Health
Community Support
Covid-19
Disability Justice
Community Care
Patient Advocacy
Me-Cfs
Grief
Creativity
Self-Care
ADHD
ME/CFS
Glp-1 Medications
Empathy
EECP Therapy
Misinformation
Chronic Illnesses
COVID

Are you struggling with Long COVID-19, ME/CFS, chronic illness, or disability? "A Friend for the Long Haul" is a Long COVID podcast that aims to be a supportive companion. This podcast offers insights, humor, and shared stories within a community that understands. Each episode features a Long COVID patient or ally to help you feel less isolated, because you are not alone.

PublishesWeeklyEpisodes59Founded2 years ago
Number of ListenersCategories
RelationshipsSociety & Culture

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Artwork for A Friend for the Long Haul: A Long Covid Podcast

Latest Episodes

Welcome to A Friend for the Long Haul - A Long Covid Podcast! This is the last season 4 episode. I'll be taking a break for a few weeks. Season 5 is going to be about friendship, sex, and relationships and I've already lined up a lot of coaches and t... more

Welcome to a new episode of A Friend for the Long Haul - A Long Covid Podcast! Claire Jones, co-founder of Sista Creatives Rising and creator of Musings of a Black Disabled Elder, is a repeat guest of the pod. She has developed a five-part framework ... more

In this episode of A Friend for the Long Haul - A Long COVID Podcast, I'm joined by Charlie McCone. Charlie is a Long COVID advocate, contributor to The Sick Times, member of the Patient-Led Research Collaborative, someone whose work has become deepl... more

What happens when the life you planned collides with the reality of chronic illness or disability? Is it still possible to build something meaningful, even if your energy, body, and definition of success have changed?

In this episode of A Friend for... more

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Recent Guests

Dr. Wes Ely
Grant W. Little Professor of Medicine and Critical Care at Vanderbilt; founder/co-director of SIBS; leader in ICU outcomes research
Vanderbilt; SIBS
Episode: Long COVID Clinical Trials, Tirzepatide & Finding the Right Doctor (Dr. Wes Ely & Dr. Julia Moore Vogel)
Claire Jones
Co-founder of Sista Creatives Rising; writer and advocate sharing experiences around disability and illness
Sista Creatives Rising
Episode: Clarity, Awareness, Presence, Acceptance, and Gratitude: A Conversation with Claire Jones of Sista Creative Rising and Musings of a Black Disabled Elder
Charlie McCone
Long COVID patient advocate and leader in Patient-Led Research Collaborative
Patient-Led Research Collaborative
Episode: Why Stories Matter in the Fight for Long COVID Awareness with Charlie McCone - A Friend for the Long Haul Podcast
April Thompson
ME/CFS patient and forager, founder of Chronic Market
Chronic Market
Episode: Foraging with ME (Myalgic Encephalomyelitis) with April Thompson of Chronic Market
Megan Hamilton
Tarot reader, public speaking coach, and host of Embracing Enchantment; works with clients on voice, visibility, and personal growth
Episode: Finding the Magic in Surviving: Tarot, Self-Efficacy, and Reclaiming Joy with Megan Hamilton
Amaranthia Sepia
Artist and co-founder of Sista Creatives Rising; art director for Sistah Seeds
Sista Creatives Rising; Sistah Seeds
Episode: Rooted in Community: Art, Disability Justice, and Growing Something Beautiful with Amaranthia Sepia
Nina Storey
Singer, songwriter, comedy writer and long COVID advocate
Independent artist /Long COVID advocate
Episode: A Friend for the Long Haul - A Long Covid Podcast: Strangely Optimistic, A Long Covid Film by Nina Storey
Olivia Belknap
Associate Marriage and Family Therapist in California
Self-employed/private practice (supervised)
Episode: Long Covid, Mental Health, and Finding a Therapist Who Gets It: A Conversation with Olivia Belknap
Katrina Dreamer
Pacing buddy and online community member
Episode: The Friends Who Show Up: Love Letters to the Long Covid Community

Host

Beth
Host of the show, guiding conversations and introducing guests across episodes

Reviews

4.9 out of 5 stars from 65 ratings
  • Great podcast

    Listen to have your world rocked and to wake up to what’s going on with Long Covid

    Apple Podcasts
    5
    SmilezForLyfe
    United Statesa year ago
  • 🌟🌟🌟🌟🌟

    The chronically ill community here is incredible 💖🥄

    Apple Podcasts
    5
    Qian Xiaoman
    United States2 years ago
  • Long COVID is lonely, AFFTLC makes you feel seen 💜

    At first I didn’t think I wanted to listen to a podcast with just other Long Haulers talking but I was wrong. It has been such a gift listening to Beth and everyone else share their experiences and what has helped and hurt with such authenticity and vulnerability. I look forward to it weekly and am truly grateful for this podcast and the newsletter.

    Apple Podcasts
    5
    RockGIrl
    United States2 years ago
  • My Favourite Podcast!

    I look forward to listening every week! This podcast is joyful & real and Beth is an excellent host. It’s so nice to hear stories from other long haulers. I’m grateful A Friend for The Longhaul exists.

    Apple Podcasts
    5
    suddendeparture
    Canada2 years ago
  • Thank you! ♥️

    Thank you for creating this podcast and having on such amazing guests! It makes me feel so much less alone. So much wisdom is shared each episode! ♥️

    Apple Podcasts
    5
    Margaret000
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The community feel and sense of belonging stand out.
Listeners appreciate the authenticity and vulnerability in guest stories.
Episodes are consistently hopeful, practical, and validating for long-haulers.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Long COVID Clinical Trials, Tirzepatide & Finding the Right Doctor (Dr. Wes Ely & Dr. Julia Moore Vogel)
Q: How are researchers balancing the need for rigor with the lived experiences of patients?
Researchers emphasize listening to patients, incorporating patient-led insights, and ensuring that outcomes reflect real-world function (like step counts and day-to-day activity) rather than solely clinical or surrogate measures.
Long COVID Clinical Trials, Tirzepatide & Finding the Right Doctor (Dr. Wes Ely & Dr. Julia Moore Vogel)
Q: What design choices make these trials robust given the heterogeneity of Long Covid?
The trials use large sample sizes, randomized controlled designs, biomarker-informed subgroup analyses, and remote participation to maximize accessibility, with plans for interim analyses and a Data Safety Monitoring Board to ensure safety and integrity.
Long COVID Clinical Trials, Tirzepatide & Finding the Right Doctor (Dr. Wes Ely & Dr. Julia Moore Vogel)
Q: Can you explain what the Lockett trial is testing and why it matters for Long Covid?
The Lockett trial is testing trisepetide, a GLP-1 receptor agonist, to see if it helps Long Covid patients by repurposing a drug with a known safety profile. It's designed as a large, fast, no-touch study to capture broad data across subgroups and to identify which patients benefit most.
Why Stories Matter in the Fight for Long COVID Awareness with Charlie McCone - A Friend for the Long Haul Podcast
Q: What do you wish the general public understood more about long COVID and disability as a whole?
That people remain at risk with new infections, that long COVID can have broad health effects, and that post-exertional malaise is a core, painful aspect of the condition that deserves serious understanding and accommodation.
Rooted in Community: Art, Disability Justice, and Growing Something Beautiful with Amaranthia Sepia
Q: What role does community play in sustaining your artistic projects?
A supportive, accessible community sustains us through mutual aid, shared resources, and collective fundraising, turning personal challenges into collective impact and ongoing projects like microgrants and virtual events.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

A collaborative, listener-friendly show centered on Long COVID, ME/CFS, chronic illness, and disability. Episodes foreground personal experiences, community support, advocacy, and practical strategies for living with long-term health challenges. Guests range from patient advocates and clinicians to artists and entrepreneurs, all exploring resilience, care, and trauma-informed perspectives. The program often spotlights community-building, mutual aid, mindfulness, and accessible resources, making it a steady source of solidarity and actionable tips for spoonies and allies alike. A notable strength is its inclusive, witness-focused approach to storytelling, which blends vulnerability with concrete guidance for navigating health systems, work, ... more

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this podcast launched 2 years ago and published 59 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Dr. Wes Ely
2. Claire Jones
3. Charlie McCone
4. April Thompson
5. Megan Hamilton
6. Amaranthia Sepia
7. Nina Storey
8. Olivia Belknap

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