Untold Stories: Life with a Severe Autoimmune Condition
iHeartPodcastsFor people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership w... more
| Publishes | Twice monthly | Episodes | 31 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Health & FitnessScienceLife SciencesMedicine | |||
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Latest Episodes
After closing her beloved yoga studio and losing her mother, Tanya Chiu was faced with a new challenge–she was diagnosed with myasthenia gravis. Her story is one of resilience, reclaiming purpose and rediscovering joy when life takes an unexpected tu... more
Trent was a new father when his life changed overnight, losing the ability to walk, speak or even lift a phone. He spent years in a wheelchair before finding his way back through sport and self-advocacy. Join Martine as Trent shares how he went from ... more
Lea was just 12 when her symptoms began, but six years passed before doctors finally gave her an MG diagnosis. In that time, she lost the ability to walk, speak, and swallow, yet never lost her determination to live fully. Join Martine as Lea shares ... more
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Reviews
- Slop
This is obviously astroturf content backed by whatever company makes the drug that treats it
Apple Podcasts1sympleko
United States2 months ago - Repetitive Ads
I’m sure this is a worthwhile podcast for the narrow audience to which it directly applies. I am not this audience (even as a scientist interested in the health journey of others). Please consider targeting your ads more directly - I am hearing them 4x in an hour podcast, for several weeks now. It’s a skip every time and now a negative review in hopes the message arrives.
Apple Podcasts1Elizanor23United States2 months ago - Great show
Congratulations for having an amazing show, but I have one HUGE ask!!!
Please take out Natalia Grace from your promotional clips that pop up on other podcasts. Please please! I get a weird feeling when hearing her voice. And I know I am not the only one!!
Thank you!
Apple Podcasts5Danny Baez!
Mexicoa year ago - So important to the community
This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.
Apple Podcasts5MESTRKUnited States2 years ago - It’s the little things
I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!
Apple Podcasts5C BuhayUnited States2 years ago
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Chart Rankings
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Apple Podcasts | #154 | United States/Health & Fitness/Medicine |
Apple Podcasts | #98 |  Austria/Health & Fitness/Medicine |
Apple Podcasts | #234 |  Singapore/Health & Fitness/Medicine |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
The program offers heartfelt and personal narratives from individuals living with severe autoimmune conditions such as myasthenia gravis (MG) and chronic inflammatory demyelinating polyneuropathy (CIDP). Through inspiring stories, it captures the resilience and struggles of those diagnosed, detailing their unique experiences navigating health challenges, the importance of community support, and the ongoing journey towards wellness. The emphasis on personal advocacy, emotional health, and the necessity of understanding in healthcare makes it a valuable resource for patients, caregivers, and anyone interested in the broader implications of living with chronic illnesses.
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Which podcasts are similar to this podcast?
These podcasts share a similar audience with this podcast:
1. Stuff You Missed in History Class
2. Life Kit: Money
3. Life Kit: Health
4. Stuff You Should Know
5. The Moth
How many episodes of this podcast are there?
this podcast launched 2 years ago and published 31 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Lea Middeldorf
2. Corbin Whittington
3. Leah Gaetan-Diaz
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