For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership w... more
Publishes | Twice monthly | Episodes | 28 | Founded | 2 years ago |
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Number of Listeners | Categories | Life SciencesHealth & FitnessMedicineScience |
Lea was just 12 when her symptoms began, but six years passed before doctors finally gave her an MG diagnosis. In that time, she lost the ability to walk, speak, and swallow, yet never lost her determination to live fully. Join Martine as Lea shares ... more
Corbin is an engineer who faced a dual diagnosis with a 1.8% survival rate as a problem to solve. He didn’t see despair with that number - he saw a possibility. The possibility that, if he was able to keep living, doctors would find a way to increase... more
Leah is a Mexican American who experienced symptoms from slurring her words and choking on food with multiple doctors struggling to see the full picture. In this episode, hear how an MG crisis helped Leah uncover a diagnosis and how she turned that e... more
Jamilah went from daily dance rehearsals to struggling to move through her own home, while her symptoms were continuously dismissed. In this episode, hear how finally getting a diagnosis changed everything: from relearning her body and rebuilding rel... more
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This is obviously astroturf content backed by whatever company makes the drug that treats it
I’m sure this is a worthwhile podcast for the narrow audience to which it directly applies. I am not this audience (even as a scientist interested in the health journey of others). Please consider targeting your ads more directly - I am hearing them 4x in an hour podcast, for several weeks now. It’s a skip every time and now a negative review in hopes the message arrives.
Congratulations for having an amazing show, but I have one HUGE ask!!!
Please take out Natalia Grace from your promotional clips that pop up on other podcasts. Please please! I get a weird feeling when hearing her voice. And I know I am not the only one!!
Thank you!
This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.
I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!
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This podcast explores the diverse experiences of individuals living with severe autoimmune conditions like myasthenia gravis and chronic inflammatory demyelinating polyneuropathy. The show brings personal stories to the forefront, highlighting the struggles and triumphs of those affected by these rare illnesses. Conversations emphasize themes of resilience, self-advocacy, community support, and the importance of mental health in managing chronic diseases. Unique in its focus, the podcast not only shares patient narratives but also features insights from caregivers, underscoring the collective journey towards wellness and understanding within the autoimmune community.
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this podcast launched 2 years ago and published 28 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on this podcast include:
1. Lea Middeldorf
2. Corbin Whittington
3. Leah Gaetan-Diaz
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