Untold Stories: Life with a Severe Autoimmune Condition
iHeartPodcastsFor people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership w... more
| Publishes | Twice monthly | Episodes | 39 | Founded | 3 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Life SciencesMedicineHealth & FitnessScience | |||
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Latest Episodes
Amanda shares how a CIDP diagnosis changed nearly every aspect of her life, ultimately leading her to become a powerful advocate for the rare disease community. Join Martine Hackett as she explores the emotional impact of diagnosis, the power of conn... more
Alicia, an artist and musician living with seronegative MG, shares her story of persistence, self-advocacy, and finding the right support system. Join Martine Hackett as she explores how connection and shared experiences can help people navigate even... more
Mel is a dancer living with CIDP. Lindsay is a writer living with dermatomyositis. In this episode, Martine Hackett explores how similar the emotional journey can feel as two people living with different rare diseases navigate uncertainty, self-advoc... more
In the season premiere, J’Sean shares what it’s like to live with MG with ocular symptoms. Join Martine Hackett as she explores the real impact of ocular symptoms–– and how understanding that impact can help you be heard and find the right support. more
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Reviews
- Slop
This is obviously astroturf content backed by whatever company makes the drug that treats it
Apple Podcasts1sympleko
United States10 months ago - Repetitive Ads
I’m sure this is a worthwhile podcast for the narrow audience to which it directly applies. I am not this audience (even as a scientist interested in the health journey of others). Please consider targeting your ads more directly - I am hearing them 4x in an hour podcast, for several weeks now. It’s a skip every time and now a negative review in hopes the message arrives.
Apple Podcasts1Elizanor23United States10 months ago - Great show
Congratulations for having an amazing show, but I have one HUGE ask!!!
Please take out Natalia Grace from your promotional clips that pop up on other podcasts. Please please! I get a weird feeling when hearing her voice. And I know I am not the only one!!
Thank you!
Apple Podcasts5Danny Baez!
Mexico2 years ago - So important to the community
This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.
Apple Podcasts5MESTRKUnited States2 years ago - It’s the little things
I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!
Apple Podcasts5C BuhayUnited States2 years ago
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Chart Rankings
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Apple Podcasts | #132 | United States/Health & Fitness/Medicine |
Apple Podcasts | #133 |  Saudi Arabia/Health & Fitness/Medicine |
Apple Podcasts | #161 |  Norway/Health & Fitness/Medicine |
Apple Podcasts | #227 |  South Africa/Health & Fitness/Medicine |
Apple Podcasts | #246 |  Poland/Health & Fitness/Medicine |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
Explores lived experiences of people with rare autoimmune conditions such as myasthenia gravis (MG) and CIDP, highlighting diagnostic journeys, treatment decisions, daily adaptations, and resilience. Episodes center on personal narratives, advocacy, caregiver and family dynamics, and the role of healthcare teams, with guest voices ranging from patients to clinicians and advocates. A recurring through-line is navigating uncertainty, leveraging patient-led communities, and translating medical information into practical strategies for living and thriving despite chronic illness. The show often weaves in perspectives on trials, community support, and awareness-building to empower listeners who share similar health journeys or are seeking care r... more
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Which podcasts are similar to this podcast?
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5. Becker’s Healthcare Podcast
How many episodes of this podcast are there?
this podcast launched 3 years ago and published 39 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Brandon Cutrell
2. Dr. Sujata Thawani
3. Lea Middeldorf
4. Corbin Whittington
5. Leah Gaetan-Diaz
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