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Artwork for Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

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For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership w... more

PublishesWeeklyEpisodes12Founded10 months ago
Categories
ScienceHealth & FitnessMedicineLife Sciences

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Artwork for Untold Stories: Life with a Severe Autoimmune Condition

Latest Episodes

Raymond, a retired designer, lived with HIV for 40 years before the onset of his myasthenia gravis (MG) symptoms. As a longtime caregiver for his mother, he was no stranger to the hospital visits and advocacy that is part of seeking quality care. How... more

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2 months ago

Jacqueline, also known as Jacq, lived in New York City with big dreams of succeeding in the fashion industry. However, her life took a significant turn after she was diagnosed with myasthenia gravis (MG), which had a profound impact on her career and... more

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3 months ago

As a successful and resilient attorney, Rorey was blindsided by the onset of debilitating muscle weakness and fatigue. After months of countless tests, he found a sense of relief when doctors diagnosed him with chronic inflammatory demyelinating poly... more

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3 months ago

Nicole is an epidemiologist whose life took an unexpected turn with an MG diagnosis between pregnancies. She had to prioritize how she cared for herself through postpartum depression, while also adapting to parenthood with MG. Nicole discusses how he... more

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4 months ago

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Reviews

4.5 out of 5 stars from 22 ratings
  • It’s the little things

    I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!

    Apple Podcasts
    5
    C Buhay
    United States2 months ago
  • Untold Story

    I ran upon this podcast while in my car would love to tell the story of my Aunt who was a star athlete and got diagnosed with this disease in 1982 she passed in 88

    Apple Podcasts
    4
    Breesa2
    United States9 months ago
  • I’m just two eps in and already so thankful.

    Wow. This podcast is full of resources that have helped me better understand my MG diagnosis, and connected me with other MG communities. I am based in southern WI and heard about Conquer MG (which is Chicago-based) through this pod… Have already made fast friends with some of the folks involved with that org. Thank you, and please make MORE episodes!

    Apple Podcasts
    5
    FrankAllen1123
    United States9 months ago
  • Really

    The audience for this is tiny. There is absolutely no reason I should be hearing ads for this, multiple times an episode, every single podcast I listen to. This has 5 reviews total now, the ads obviously aren’t working chill out

    Apple Podcasts
    1
    yhkocvmigfvnl
    United States9 months ago
  • So important for the MG community

    This is the first time there has been an entire show dedicated to those living with MG. Thank you for making this!!!!

    Apple Podcasts
    5
    andypkelly
    United States10 months ago

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this podcast launched 10 months ago and published 12 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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