Untold Stories: Life with a Severe Autoimmune Condition
iHeartPodcastsFor people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership w... more
| Publishes | Twice monthly | Episodes | 28 | Founded | 2 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Life SciencesHealth & FitnessMedicineScience | |||
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Latest Episodes
Lea was just 12 when her symptoms began, but six years passed before doctors finally gave her an MG diagnosis. In that time, she lost the ability to walk, speak, and swallow, yet never lost her determination to live fully. Join Martine as Lea shares ... more
Corbin is an engineer who faced a dual diagnosis with a 1.8% survival rate as a problem to solve. He didn’t see despair with that number - he saw a possibility. The possibility that, if he was able to keep living, doctors would find a way to increase... more
Leah is a Mexican American who experienced symptoms from slurring her words and choking on food with multiple doctors struggling to see the full picture. In this episode, hear how an MG crisis helped Leah uncover a diagnosis and how she turned that e... more
Jamilah went from daily dance rehearsals to struggling to move through her own home, while her symptoms were continuously dismissed. In this episode, hear how finally getting a diagnosis changed everything: from relearning her body and rebuilding rel... more
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Reviews
- Slop
This is obviously astroturf content backed by whatever company makes the drug that treats it
Apple Podcasts1sympleko
United Statesa month ago - Repetitive Ads
I’m sure this is a worthwhile podcast for the narrow audience to which it directly applies. I am not this audience (even as a scientist interested in the health journey of others). Please consider targeting your ads more directly - I am hearing them 4x in an hour podcast, for several weeks now. It’s a skip every time and now a negative review in hopes the message arrives.
Apple Podcasts1Elizanor23United Statesa month ago - Great show
Congratulations for having an amazing show, but I have one HUGE ask!!!
Please take out Natalia Grace from your promotional clips that pop up on other podcasts. Please please! I get a weird feeling when hearing her voice. And I know I am not the only one!!
Thank you!
Apple Podcasts5Danny Baez!
Mexicoa year ago - So important to the community
This podcast is so important for this community. Such a great space to share the stories of the people living with these conditions. Despite the challenges of living with MG, this fills me with so much hope.
Apple Podcasts5MESTRKUnited States2 years ago - It’s the little things
I was shocked to find this show and see myself in every story. 12 years into life with MG and things have gotten easier to manage. At the end of the day it’s realizing your not alone that fills in the cracks on the hard days. Thank you for making this show!
Apple Podcasts5C BuhayUnited States2 years ago
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Chart Rankings
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Apple Podcasts | #198 | United States/Health & Fitness/Medicine |
Apple Podcasts | #203 |  Australia/Health & Fitness/Medicine |
Apple Podcasts | #49 |  Netherlands/Health & Fitness/Medicine |
Apple Podcasts | #122 |  Hong Kong/Health & Fitness/Medicine |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
This podcast explores the diverse experiences of individuals living with severe autoimmune conditions like myasthenia gravis and chronic inflammatory demyelinating polyneuropathy. The show brings personal stories to the forefront, highlighting the struggles and triumphs of those affected by these rare illnesses. Conversations emphasize themes of resilience, self-advocacy, community support, and the importance of mental health in managing chronic diseases. Unique in its focus, the podcast not only shares patient narratives but also features insights from caregivers, underscoring the collective journey towards wellness and understanding within the autoimmune community.
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1. This Is Actually Happening
2. Betrayal: Weekly
3. Family Secrets
4. What Came Next
5. American History Hotline
How many episodes of this podcast are there?
this podcast launched 2 years ago and published 28 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Lea Middeldorf
2. Corbin Whittington
3. Leah Gaetan-Diaz
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