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The Neuroendocrine Cancer Foundation Podcast - Top 10 FAQs with neuroendocrine cancer experts

Neuroendocrine Cancer Foundation
Neuroendocrine Tumors
Clinical Trials
Neuroendocrine Cancer
NANETS Symposium
Patient Care
Cancer Treatment
Immunotherapy
Nutrition For NET Patients
Carcinoid Heart Disease
Supportive Care
Dr. Guillaume Will Pegna
Nausea
Vanderbilt University
Oncology
Pancreatic Enzymes
Cabozantinib
Patient Care Coordination
PRRT
Fatigue
Mental Health

The Neuroendocrine Cancer Foundation Podcast is a monthly series where we interview neuroendocrine cancer experts on various NET topics. Each expert will answer the top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the Neuroendocrine Cancer Foundation Podcast serves as a tool to help anyone better understand neu... more

PublishesMonthlyEpisodes56Founded5 years ago
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Artwork for The Neuroendocrine Cancer Foundation Podcast

Latest Episodes

Since its FDA approval on March 26, 2025, cabozantinib has emerged as the newest treatment option for neuroendocrine tumors (NET) patients—adding another valuable tool to the treatment toolbox. It’s become a hot topic in support groups and forums, wi... more

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In this episode, surgical oncologist Dr. Seth Concors of Emory’s Winship Cancer Institute discusses the role of the surgical oncologist within the multidisciplinary care team for neuroendocrine cancer. We explore what surgical oncologists do, why NET... more

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Who is a genetic counselor, and who should see one? How do they fit into the neuroendocrine cancer care team? In this episode, Samantha Greenberg, PhD, MS, MPH, CGC, Director of the UT Southwestern Genetic Counseling Program, demy... more

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ABOUT THIS EPISODE

In this special annual episode, OHSU medical oncologist Dr. Guillaume (“Will”) Pegna joins us once again to break down the highlights from the 2025 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical... more

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ABOUT THIS EPISODE 

Who is a pharmacist, and how are they involved in the care of neuroendocrine cancer patients? In this episode, Dr. Amanda Cass, a clinical pharmacist in the Thoracic Oncology Clinic at Vanderbilt Medical Center, explains the uniq... more

ABOUT THIS EPISODE 

Carcinoid syndrome can be confusing and often difficult to diagnose. In this episode, Dr. Joseph Dillon, Endocrinologist and Director of the University of Iowa Neuroendocrine Multidisciplinary Tumor Clinic, explains what carcinoi... more

ABOUT THIS EPISODE

DLL3 is emerging as a promising new target for neuroendocrine cancers. In this episode, Dr. Rohit Thummalapalli, medical oncologist at Memorial Sloan Kettering Cancer Center, explains what DLL3 is, how it works, who might benefit,... more

ABOUT THIS EPISODE

Every provider on a multidisciplinary neuroendocrine cancer (NET) team brings a distinct and valuable perspective. In this episode, UCLA endocrinologist Dr. Run Yu sheds light on the unique role of the endocrinologist. He explains... more

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Recent Guests

Seth Concors
Surgical Oncologist at Emory University's Winship Cancer Institute
Emory University Winship Cancer Institute
Episode: Episode 53: Spotlight on Surgical Oncology
Samantha Greenberg
Director of the UT Southwestern Genetic Counseling Program; cancer genetic counselor with focus on NETs
UT Southwestern Medical Center
Episode: Episode 52: "Spotlight on Genetic Counselors" with Samantha Greenberg, PhD, MS, MPH, CGC
Dr. Guillaume Will Pegna
Medical oncologist at Oregon Health and Science University, focuses on gastrointestinal cancers and neuroendocrine tumors.
Oregon Health and Science University
Episode: Episode 51: "Highlights of the 2025 NANETS Symposium" with Dr. Will Pegna
Dr. Amanda Cass
Clinical pharmacist specializing in thoracic oncology
Vanderbilt University Medical Center
Episode: "Spotlight on Pharmacists" with Amanda Cass, PharmD, BCPS, BCOP
Dr. Joseph Dillon
Professor of Medicine in the Division of Endocrinology and Director of the Neuroendocrine Multidisciplinary Tumor Clinic
University of Iowa
Episode: "Understanding Carcinoid Syndrome & GLP-1 Drugs in Neuroendocrine Tumors" with Dr. Joseph Dillon
Dr. Rohit Thummalapalli
A gastrointestinal medical oncologist, an assistant attending physician at Memorial Sloan Kettering Cancer Center, specializing in clinical care and research in patients with neuroendocrine and biliary tract cancers.
Memorial Sloan Kettering Cancer Center
Episode: "NEN Treatments: Focus On DLL3" with Dr. Rohit Thummalapalli
Dr. Run Yu
Clinical expert in endocrine tumors and neuroendocrine cancer
UCLA
Episode: "Spotlight on Endocrinology" with Dr. Run Yu
Tiffany Valone
Certified Physician Assistant in the Department of Gastrointestinal Oncology
Moffitt Cancer Center
Episode: "Spotlight on Advanced Practice Providers (NPs & PAs)" with Tiffany Valone
Sandy Kotiah, MD
Director of the Neuroendocrine Tumor Center at Mercy and a board-certified medical oncologist
Mercy
Episode: Episode 45: "Spotlight on Medical Oncology" with Sandy Kotiah, MD

Host

Lisa Yen
Director of Programs and Outreach; caregiver and advocate for a patient with neuroendocrine cancer; extensive involvement in outreach and patient education

Talking Points

Recent interactions between the hosts and their guests.

Episode 53: Spotlight on Surgical Oncology
Q: What about carcinoid crisis and anesthesia?
Preoperative evaluation includes echocardiograms and hormone level checks when indicated; anesthesia teams at NET centers are experienced with perioperative management to minimize risk during surgery.
Episode 53: Spotlight on Surgical Oncology
Q: How is tumor board involvement used in NET cases?
Tumor boards bring together surgical oncologists, medical oncologists, radiologists, and other specialists to review challenging NET cases and ensure a coordinated plan; patients can request cases be presented to a tumor board for input.
Episode 53: Spotlight on Surgical Oncology
Q: How often should patients see their surgical oncologist around surgery?
Usually two or more visits before surgery, plus a postoperative visit at 2-3 weeks with pathology review, and then a baseline CT at 3 months followed by ongoing surveillance every 6-12 months as appropriate.
Episode 52: "Spotlight on Genetic Counselors" with Samantha Greenberg, PhD, MS, MPH, CGC
Q: What is a genetic counselor and what kind of training is needed for this role?
Genetic counselors are masters-trained health care providers who focus on genetics, with two years of master's training followed by board certification; they work to identify hereditary conditions and support families in coping with genetic risk.
Episode 45: "Spotlight on Medical Oncology" with Sandy Kotiah, MD
Q: What questions should I be asking or thinking about in preparation for that appointment?
Dr. Kotiah emphasizes core questions about the diagnosis and treatment plan that patients should prepare for their first visit.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

This series centers on neuroendocrine cancer (NET) expertise delivered by leading clinicians, researchers, and allied professionals. Episodes routinely explore practical facets of NET care—from genetics and testing options to emerging therapies, symptom management, and multidisciplinary treatment pathways. A standout pattern is the emphasis on translating complex medical advances into actionable guidance for patients, families, and healthcare teams, with guests often offering concrete tips for navigating consultations, testing, and treatment decisions. The format tends to pair in-depth explanations of niche topics (eg, genetic counseling, DLL3-targeted approaches, GLP-1–related considerations) with broad context about how these advances fit... more

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These podcasts share a similar audience with this podcast:

1. NETWise
2. NETCast
3. The Daily
4. BibleProject
5. Pod Save America

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this podcast launched 5 years ago and published 56 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Seth Concors
2. Samantha Greenberg
3. Dr. Guillaume Will Pegna
4. Dr. Amanda Cass
5. Dr. Joseph Dillon
6. Dr. Rohit Thummalapalli
7. Dr. Run Yu
8. Tiffany Valone

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