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Let's Talk MND

Jane Simpson
Motor Neurone Disease
MND
Australia
Sydney
Fightmnd
MND (motor Neurone Disease)
Healthcare Professionals
Frontal Lobe Dementia
Brain Computer Interface
Trust In Healthcare
Evercare
Australia, Queensland
Epilepsy
MND Victoria
Curalysis
Psychology
Camino De Santiago
Brisbane, Australia
Gunnedah
University Of Wollongong

🎙️ Let's Talk MND Hosted by Jane Simpson | #EndMND 💙 Hosted by Jane Simpson, whose late husband Robert fought MND for 10 months, Let's Talk MND shares the real stories of those affected by Motor Neurone Disease. Through heartfelt conversations with people living with MND, their families, carers, and leading experts, the podcast brings together a community of strength, understanding, and hope — p... more

PublishesTwice monthlyEpisodes81Founded7 months ago
Number of ListenersCategories
Health & FitnessMedicine

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Artwork for Let's Talk MND

Latest Episodes

Professor Tom Oxley

In this episode, I’m joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.

We discuss how Synchron’s Brain Computer Implant is helping people living with Motor N... more

Tom Oxley

In this episode, I’m joined by Professor Tom Oxley, CEO and co-founder of Synchron, a company pioneering brain-computer interface technology.

We discuss how Synchron’s Brain Computer Implant is helping people living with Motor Neurone Dis... more

In this episode, Todd Johnson shares his personal journey with MND, the challenges of diagnosis, and his passionate advocacy for improved care and innovation in the sector.

Todd is also the Chair on MND Victoria

Discover insights on care gaps, tech... more

Gary Suntup is a deep thinker, he is a psychologist he shares his personal journey of losing hobbies and passions due to health issues, exploring how this impacts identity and self-understanding.

He also discusses his practice of radical acceptance.... more

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Recent Guests

Tom Oxley
Professor, Synchron founder and neurosurgeon
Synchron
Episode: Let's Talk MND - Prof. Tom Oxley
Todd Johnson
Person living with MND
Episode: Let's Talk MND - Todd Johnson
Gary Suntup
Clinical psychologist and psychotherapist, living with MND
Sydney, Australia
Episode: Let's Talk MND - Gary Suntup
Jeff Jenkins
Husband living with MND, former podiatrist
Episode: Let's Talk MND - Jeff Jenkins & Sarah Rigg
Sarah Rigg
Wife and caregiver to Jeff, former HR professional
Episode: Let's Talk MND - Jeff Jenkins & Sarah Rigg
Joseph Skewes
Person living with MND, co-creator of Curalysis
Curalysis project
Episode: Let's Talk MND - Curalysis Joseph Skewes & Bec Francis
Bec Francis
Co-creator of Curalysis, epilepsy navigator
Curalysis project
Episode: Let's Talk MND - Curalysis Joseph Skewes & Bec Francis
Bill Mcartney
Founder of Family Record and Cahoots, expert in storytelling interviews
Family Record; Cahoots
Episode: Let's Talk MND - Bill Mcartney
Nicole Baker
A member of the MND community and advocate
MND community member, Fight MND supporter
Episode: Let's Talk MND - Nicole Baker

Host

Jane Simpson
Host of the show, speaking with guests about lived experiences with neurological conditions

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

Let's Talk MND - Prof. Tom Oxley
Q: What is a Brain Computer Interface and how does it work in practice?
BCI is a system that uses a brain implant delivered via the jugular vein to listen to motor cortex signals and convert intended movements into computer control, such as moving a cursor or selecting items on a screen, with ongoing calibration and adaptation to each user.
Let's Talk MND - Prof. Tom Oxley
Q: Who is Professor Tom Oxley and what is Synchron?
Tom describes himself as a neuroscientist-turned-clinician who pursued the development of neurointerventions and Brain Computer Interfaces. Synchron is his company working on implantable devices that listen to brain activity through the vascular system to enable users to control digital devices.
Let's Talk MND - Damian & Jane Andrews
Q: What advice do you have for people who are newly diagnosed?
It's not the end; focus on living as fully as possible, lean on family and community for support, and keep fighting to maximize every moment while advocating for better treatments and resources.
Let's Talk MND - Damian & Jane Andrews
Q: How are you making changes within the MND world, and what changes do you want to achieve?
We are making changes by raising our voices, creating an organized community, and expanding awareness through events, merchandise, and social media to build a larger, louder army that pushes for more government funding and faster progress in research.
Let's Talk MND - Jeff Jenkins & Sarah Rigg
Q: What advice would you give to someone newly diagnosed or in the early, overwhelmed year?
Embrace the moment, be present, and build a simple routine that anchors you—sunrise, exercise, meditation. Allow honesty with your feelings, seek support, and don't wait to get outside or reach out to others; the ordinary moments become the most meaningful.

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Frequently Asked Questions About Let's Talk MND

What is Let's Talk MND about and what kind of topics does it cover?

Conversations center on Motor Neurone Disease (MND) through intimate, patient- and caregiver-focused storytelling, expert insight, and advocacy. Episodes span lived experiences with MND, family dynamics, caregiving strategies, research participation, fundraising and governance for MND initiatives, and the role of community and healthcare systems in shaping care. A notable throughline is the emphasis on human resilience, practical support, and ethical, collaborative approaches to data, care, and research that can improve daily life and long-term outcomes. The show frequently features individuals living with MND, their partners and carers, researchers, and nonprofit or industry partners connected to care, treatment, and storytelling, offering... more

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Which podcasts are similar to Let's Talk MND?

These podcasts share a similar audience with Let's Talk MND:

1. No Filter
2. Conversations
3. MID
4. Double A Chattery with Amanda Keller and Anita McGregor
5. Mamamia Out Loud

How many episodes of Let's Talk MND are there?

Let's Talk MND launched 7 months ago and published 81 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Let's Talk MND?

Recent guests on Let's Talk MND include:

1. Tom Oxley
2. Todd Johnson
3. Gary Suntup
4. Jeff Jenkins
5. Sarah Rigg
6. Joseph Skewes
7. Bec Francis
8. Bill Mcartney

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