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Artwork for Hidradenitis SuppuraDIVAS

Hidradenitis SuppuraDIVAS

HS Connect
Hidradenitis Suppurativa
Mental Health
Community Support
Advocacy
Intimacy
Patient Advocacy
Nutrition
Dating
Managing Pain and Flares
My Magic Killer
Dermatology
General Dermatology Practices
CLN Clean Body Wash
Dermalieve
Lumi
Cooking
Misconceptions
Natural Skin Healing
Comfort In Clothing
HS Connect

Welcome!! We're glad you found us! If you have Hidradenitis Suppurativa (HS), or know someone who does, this is the podcast for you! Join Brindley and Cyd who each have unique perspectives on what living with HS looks like, as we talk about life with HS. We'll cover common misconceptions, motherhood, talk with experts, mental health, sex and intimacy with HS, getting diagnosed, and everything i... more

PublishesTwice monthlyEpisodes51Founded3 years ago
Number of ListenersCategories
EducationHealth & FitnessMental Health

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Latest Episodes

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In Episode 9 of SuppuraDivas, the conversation gets deeply personal as Brin, Cyd, and a group of special guests open up about intimacy, dating, relationships, vulnerability, and learning to feel worthy of love while living with hidr... more

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Episode 8 of SuppuraDivas opens up an honest and empowering conversation around HS, hair removal, body confidence, and making personal care choices that work for you. Joined by special guest Hannah — former professional wax speciali... more

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In this powerful and deeply honest episode of Healing Space, Brin and Cyd are joined by special guest Dr. Katelyn Baker (@thatfatadvocate), clinical psychologist and HS Connect Program Director, for a conversation we all need — reco... more

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In Episode 6 of Season 5 of Hidradenitis SuppuraDivas, hosts Brindley and Cydney get real about what it means to live—and work—with HS. From navigating painful flare-ups on the job to the emotional toll of hiding a chronic illness i... more

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Recent Guests

Dr. Katelyn Baker
Doctor of clinical psychology, founder of Healing Space
Healing Space
Episode: Season 5 | Episode 7: Back in Your Body: Healing the Mind-Body Disconnect with Dr. Katelyn Baker
Ashley Dalton
Patient with HS who has undergone multiple surgeries and leads HS awareness efforts
HS warrior / advocate
Episode: Season 5 | Episode 2: HS Warrior Ashley Dalton on Surgery, Self-Advocacy & Community
Christina Curp
COO of HS Connect, chef, and advocate for nutrition and health management related to Hidradenitis Suppurativa.
HS Connect
Episode: Nutrition, Not Restriction: A Real Conversation with HS Connect COO, Christina Curp
Athena Jerobolini
President of Hope for HS, an HS advocacy group
Hope for HS
Episode: Season 3: Episode 7 - Hope for HS
Dr. Colleen Cotton
Pediatric dermatologist specializing in Hidradenitis Suppurativa
Children's National Hospital and George Washington University School of Medicine
Episode: Season 2: Episode 9 - Pediatric HS with Dr. Colleen Cotton
Denise Fixon
Co-founder of HS Connect and HS advocate for over 43 years
HS Connect
Episode: Season 2: Episode 6 - Dishing with Denise, HS Connect Co-Founder
Jillian Ondreyka
Founder of Embrace Health Nutrition and registered dietitian specializing in HS nutrition.
Embrace Health Nutrition
Episode: Season 2: Episode 5 - Nutrition Talk with Jillian, HS Warrior & Registered Dietitian
Dr. Barry Resnik
Founder of the Resnik Skin Institute
Resnik Skin Institute
Episode: Season 2: Episode 3 - More HS Info with Dr. Resnik
Cristina Curp
Chef and founder of The Castaway Kitchen, who also has Hidradenitis Suppurativa.
The Castaway Kitchen
Episode: Season 2: Episode 2 - Nutrition with Cristina Curp

Host

Cyd
Co-host of Hidradenitis SuppuraDIVAS, often discussing HS education and community support

Reviews

5.0 out of 5 stars from 38 ratings
  • Zero Shame

    It’s great to see a podcast that is focusing on HS because it’s just not talked about enough. This affects our mental health and our physical health and our daily lives. I don’t see a lot of this out there, but I’m pretty sure there’s a correlation between endometriosis and other autoimmune conditions along with HS. We talk about how our periods can trigger flareups I’m just wondering how many women probably have a endometriosis they don’t know it.

    I only found out about mine a few years back an... more

    Apple Podcasts
    5
    Aimeekakes
    United States3 months ago
  • It’s a good feeling to feel supported and understood

    Living with HS can be very lonely. People cannot always see your scars and flares, yet you are in the pain, physically and mentally. Not having control over your body can be devastating. It’s awesome to have a community that understands this disease and that talks about triggers, helpful things, and just about the struggle and how to overcome it. I have had HS since age 11 and was diagnosed at 29. The average HS person gets misdiagnosed for 17 years. I went to countless urgent cares and emergen... more

    Apple Podcasts
    5
    danilaurem
    United States3 years ago
  • Thank you

    This podcast came at just the right time in my life. I was recently diagnosed and I have felt so isolated in that diagnosis. No one in my life understands and this podcast has made my feel like there are people who relate to me in my struggles with HS.

    Apple Podcasts
    5
    TeacherLady2428
    United States3 years ago
  • Wowwwww 🥹🥹🥹🥹🥹

    I feel so seen, so heard!!! I cried listening to this. The emotions right now. I love this. Please never stop advocating for us!!! 🤞🏼🤞🏼💜 💜

    Apple Podcasts
    5
    angie1922
    United States3 years ago
  • Amazing

    It’s amazing to have a podcast dedicated to HS. It can be such a lonely disease and you feel like you are the only one. It’s great to know we aren’t alone!

    Apple Podcasts
    5
    Cmemovemmmarshall
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Community aspect is a strong draw for ongoing engagement and support.
Listeners value the show's focus on HS, a topic not widely covered in health media.
Guests and hosts are praised for candidness and practical advice.
Audience appreciates authentic, hopeful narratives from real people with HS.

Talking Points

Recent interactions between the hosts and their guests.

Postpartum, HS, and Showing Up as a Mom: The Truth We Don’t Talk About
Q: How has your HS made showing up as a mom difficult for you?
It impacts daily activities, making it tough to play and engage with kids, especially during flares.
Nutrition, Not Restriction: A Real Conversation with HS Connect COO, Christina Curp
Q: What does your program entail?
My program includes a comprehensive initial consult, intake paperwork, and a framework for dietary changes. I focus on gradual changes instead of strict elimination diets, providing email support and resources for my clients.
Dating, Masculinity & HS: A Raw Conversation With Parish & Joey
Q: What advice would you give to men who feel like they can't be in a relationship because of their HS?
Joey emphasizes that masculinity is defined by one's perspective and highlights the importance of supporting one's partner in different ways, not just financially due to health issues.
HS Treatment Talk: Finding Your Path & Overcoming Fear
Q: How long am I supposed to be on treatment?
You may need to remain on treatment for the rest of your life if it works for you, as HS is a lifelong chronic condition.
HS Treatment Talk: Finding Your Path & Overcoming Fear
Q: When do you think it's time to realistically start considering surgery?
Surgery should be considered when treatments like antibiotics fail and when abscesses recur repeatedly; de-roofing procedures are particularly effective.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About Hidradenitis SuppuraDIVAS

What is Hidradenitis SuppuraDIVAS about and what kind of topics does it cover?

A health-focused show about living with hidradenitis suppurativa, blending personal journeys with practical guidance. Across episodes, listeners hear candid storytelling from patients, caregivers, and advocates, plus expert perspectives on dermatology, nutrition, mental health, and navigating the healthcare system. Noteworthy are episodes that center teen advocacy, motherhood, dating, body positivity, and accessibility in care, all delivered with a warm, community-driven approach. The format consistently bridges lived experience with actionable resources, making it a valuable resource for HS patients and their families as well as professionals seeking authentic patient voices and real-world strategies.

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Which podcasts are similar to Hidradenitis SuppuraDIVAS?

These podcasts share a similar audience with Hidradenitis SuppuraDIVAS:

1. Learn Skin with Dr. Raja and Dr. Hadar

How many episodes of Hidradenitis SuppuraDIVAS are there?

Hidradenitis SuppuraDIVAS launched 3 years ago and published 51 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Hidradenitis SuppuraDIVAS?

Recent guests on Hidradenitis SuppuraDIVAS include:

1. Dr. Katelyn Baker
2. Ashley Dalton
3. Christina Curp
4. Athena Jerobolini
5. Dr. Colleen Cotton
6. Denise Fixon
7. Jillian Ondreyka
8. Dr. Barry Resnik

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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