Beyond the Diagnosis: Duchenne Perspectives
Jett FoundationBeyond the Diagnosis: Duchenne Perspectives is a podcast series brought to the Duchenne community by Jett Foundation. The program's goal is to provide listeners with informative, supportive, and engaging content that goes beyond the medical diagnosis. It is designed to foster a sense of connection and community, tackling both the important, challenging topics and the lighthearted moments that make... more
| Publishes | Daily | Episodes | 8 | Founded | 3 months ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Non-ProfitBusiness | |||
Listen to this Podcast
Latest Episodes
What happens when we stop defining people by their diagnosis and start listening to who they really are? In this episode of Beyond the Diagnosis, we are Redefining What’s Possible. Our guests Ravi Lipman, Ash Brittenham, and Nathan Rothe join us to s... more
Accessible vehicles are more than a line item on a budget, they’re a lifeline to independence, connection, and community. But for families navigating Duchenne, the journey from recognizing the need to finally pulling into an accessible parking spot c... more
On this episode of Beyond the Diagnosis, we’re talking all things love, partnership, and the real-life magic that happens when two people choose each other.
We’re joined by two wonderful couples who bring heart, humor, and honesty to the conversatio... more
Tune in for a conversation with sibling and advocate Destiny Holland, and Child Life Specialist, Andrea Lerude, MS, CCLS, QMHP-CS as we tackle topics like supporting siblings, resources, navigating emotional challenges, and more.
Join us for an insightful conversation about preparing for college: from navigating academic challenges to social life and daily living, we cover it all.
Guest Speakers:
* Annie Tulkin, MS, Founder and Director, Accessible College, LLC
* James D... more
Tune in to hear from women with personal experiences in dystrophinopathy, as well as a certified genetic counselor.
Co-Host:
Trina Stelly, Resource Specialist - Females in Duchenne at Jett Foundation, Patient Advocate, Farmer
Guests:
*
Camle... more
Join us for a conversation about the transition from childhood to adulthood and how it impacts care, decision-making, family dynamics, and more.
Guest speakers:
* Adith Thummalapalli, Project Engineer, Vice President of PPMD Adult Advisory Commit... more
Tune as we discuss the ins and outs of clinical trials in Duchenne with guest speakers Dr. Edward Smith, Medical Director at Rare Disease Research-NC, Principal Investigator, & Pediatric Neurologist, and Crystal Goss, mother of an individual living w... more
Key Facts
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #15 |  Ukraine/Business/Non-Profit |
Top Non-Profit Podcasts
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
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| Interests | Professions | Age Range | |||
| Household Income | Social Media Reach | ||||
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this podcast launched 3 months ago and published 8 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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