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The Positive Gene Podcast

Sara Kavanaugh
Lynch Syndrome
Genetic Testing
Hereditary Cancer
Genetic Counseling
Colorectal Cancer
Immunotherapy
Brca1
LGBTQ+ Community
Insurance
Cancer Vaccines
Family Communication
Living Proof (memoir)
Cleveland
Diversity, Equity, and Inclusion (DEI) In Healthcare
Public Health
Cancer Vaccine Coalition
BRCA1 Mutation
Trauma-Informed Care
Alive and Kick'n
Rural Healthcare Access

Welcome to The Positive Gene Podcast, where we empower those navigating hereditary cancer risks with hope and optimism. Hosted by Sara Kavanaugh, a hereditary cancer previvor living with Lynch Syndrome (MSH6) and CHEK2 genetic mutations, this show offers a unique perspective on proactive well-being. Drawing on her own experiences and work as an advocate for FORCE, Sara bridges the gap between scie... more

PublishesWeeklyEpisodes41Founded3 years ago
Number of ListenersCategories
Health & FitnessSelf-ImprovementEducationMedicine

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Artwork for The Positive Gene Podcast

Latest Episodes

Your Voice Matters: How Patient Advocates Shape Healthcare Policy

As patient advocates, we have the opportunity to help shape healthcare policy by sharing our lived experiences with the people making decisions that affect our lives.

In this episode ... more

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Episode Summary

In this episode of The Positive Gene Podcast, Sara Kavanaugh sits down with therapist, BRCA1 previvor, and podcast host Sara Champie for a deeply honest conversation about the emotional realities of hereditary cancer risk. Together, ... more

YouTube

As we close out Colorectal Cancer Awareness Month, this episode marks the final installment in our series on Lynch syndrome and hereditary cancer risk. If you haven’t yet, I encourage you to go back and listen to the earlier episodes—each one offers ... more

Lynch Syndrome Series

This episode is part of a five-part series on living with Lynch syndrome, focused on raising awareness and sharing perspectives from patients, advocates, and organizations working to improve outcomes in hereditary cancer.

Episo... more

YouTube

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Recent Guests

Bob Freeman
Tennessee Representative, 56th House District
Tennessee House of Representatives
Episode: Your Voice Matters: How Patient Advocates Shape Healthcare Policy with TN Representative Bob Freeman
Sara Champie
Therapist and pre-viver focused on hereditary cancer risk, trauma-informed care
Independent therapist; therapist practitioner in California
Episode: Walking the Genetic Line: Emotional Truths of Hereditary Cancer Risk with Sara Champie
Diane Hardesty
National speaker, patient advocate, longtime voice in hereditary cancer awareness
Lynch syndrome advocacy community (incl. FORCE)
Episode: The Story That Changed Everything: Diane Hardesty on Lynch Syndrome, Family History, and Prevention
Joan Rush
Co-Founder of the Jacqueline Rush Foundation
Jacqueline Rush Foundation
Episode: For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome
Jennifer Mercer
Founder of Lynch Syndrome Awareness and Education
Lynch Syndrome Awareness and Education
Episode: Why Family History Matters: Jennifer Mercer on Lynch Syndrome, Awareness, and Family Communication
JJ Singleton
Living with Lynch Syndrome and colorectal cancer, advocate
Lynch Syndrome advocate; Fight Colorectal Cancer; Colon Cancer Coalition
Episode: Unbreakable Spirit: Living with Lynch Syndrome, Cancer, and Finding Purpose with JJ Singleton
David Dubin
Lynch syndrome survivor, long-time advocate, co-founder of Alive and Kick'n
Alive and Kick'n
Episode: Alive and Kick’n: David Dubin on Lynch Syndrome, Advocacy, and Moving Forward
Aliza Friedlander
BRCA1-positive previvor and Cancer Vaccine Coalition advocate
Cancer Vaccine Coalition
Episode: Cancer Vaccines, BRCA1, and the Power of Storytelling: A Conversation with Aliza Friedlander
Lisa Schlager
Vice President of Public Policy at FORCE
FORCE (Facing Our Risk of Cancer Empowered)
Episode: Your Genes Shouldn’t Be Patented: The Urgent Fight Over PERA with FORCE Public Policy Leader, Lisa Schlager

Host

Sara Kavanaugh
Host of The Positive Gene Podcast, FORCE advocate, previvor with personal experience in hereditary cancer

Reviews

5.0 out of 5 stars from 16 ratings
  • Wonderful and empowering resource

    As a BRCA1 carrier who is now a BC survivor and OC previvor, I can relate to so much of this. As a South Asian (Indian) I see a lot of stigma in the community, which leads to underreporting. I was very lucky to be the first in the US whose mutation was considered likely pathogenic and gave me the option of a PARP inhibitor. I would love for you to interview people who study mutations in South Asian communities.

    Apple Podcasts
    5
    Technolaten
    United States4 months ago
  • Great podcast

    The cancer vaccines episode was great. Great job Sara!

    Apple Podcasts
    5
    Timbob165
    United States6 months ago
  • Very well presented and informative

    Grateful for this informative podcast. I will be sharing with family members too :)

    Apple Podcasts
    5
    Sharingthelove
    Australiaa year ago
  • Much needed podcast!

    I recently found out about this podcast after being diagnosed with Lynch syndrome and I started listening from the first episode and so far I love it. It’s very good. I am not religious so that part doesn’t speak to me, but the rest of it is just excellent.

    Apple Podcasts
    5
    Rpm2dogs2cats
    United Statesa year ago
  • Eileen Speranza

    Love this podcast! So much great info !

    Apple Podcasts
    5
    yoga angel
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The mix of storytelling and expert insight helps translate complex genetics into everyday decisions.
Listeners appreciate hopeful, empowering conversations that normalize living with genetic risk and provide practical steps for advocacy and care.
Guests bring lived experience and professional expertise, making episodes informative and motivating.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Your Voice Matters: How Patient Advocates Shape Healthcare Policy with TN Representative Bob Freeman
Q: What should listeners do to engage with policymakers effectively?
Be honest, respectful, and specific about the end goals; engage with advocacy groups to amplify your voice and understand the legislative landscape; show up when asked to share your story in a committee setting.
Your Voice Matters: How Patient Advocates Shape Healthcare Policy with TN Representative Bob Freeman
Q: How does the legislative process handle advocacy input from groups or individuals?
Advocacy input can shape amendments, bill language, and the timing of how a proposal moves through committees, with organizations often providing subject-matter expertise to make bills more effective.
Your Voice Matters: How Patient Advocates Shape Healthcare Policy with TN Representative Bob Freeman
Q: What makes it memorable when advocates meet with legislators?
The impact comes from honest, personal stories that illustrate how policies affect real families, not just data and talking points.
For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome
Q: How did Jacqueline's diagnosis and Lynch Syndrome shape your advocacy work?
Her story underscored the lack of awareness and education about Lynch Syndrome among both the public and some healthcare providers, which spurred the creation of the Jacqueline Rush Foundation to educate doctors, support families, and push for broader public knowledge and earlier detection.
For Jacqueline: Joan Rush on Love, Loss, and Changing the Future of Lynch Syndrome
Q: Can you tell us about Jacqueline as a person and what made her special?
Jacqueline was kind, determined, loyal, and a fantastic listener who inspired others with her positive approach to life, even during treatment. She valued living fully, had a passion for music and cooking, and believed in making a positive impact on those around her.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About The Positive Gene Podcast

What is The Positive Gene Podcast about and what kind of topics does it cover?

This show centers on living with hereditary cancer risk, blending personal experience with expert insight to demystify genetic testing, risk management, and prevention. Across episodes, listeners hear candid conversations about emotional resilience, trauma-informed care, family communication, and advocacy—from BRCA1/2 and Lynch syndrome to broader conversations about vaccines, public policy, and health education. A standout thread is the host's previvor perspective, which helps translate complex science into practical, hopeful guidance, while frequently featuring clinicians, researchers, and patient advocates who illuminate actionable steps, community resources, and ways to navigate care with confidence. The format tends to mix storytelling... more

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Which podcasts are similar to The Positive Gene Podcast?

These podcasts share a similar audience with The Positive Gene Podcast:

1. Hidden Brain
2. The Daily
3. The Jefferson Fisher Podcast

How many episodes of The Positive Gene Podcast are there?

The Positive Gene Podcast launched 3 years ago and published 41 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on The Positive Gene Podcast?

Recent guests on The Positive Gene Podcast include:

1. Bob Freeman
2. Sara Champie
3. Diane Hardesty
4. Joan Rush
5. Jennifer Mercer
6. JJ Singleton
7. David Dubin
8. Aliza Friedlander

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