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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin
Sarcoidosis
Mental Health
Cardiac Sarcoidosis
Neurosarcoidosis
Foundation For Sarcoidosis Research
F-Sulfidamide
Prednisone
Healthcare Advocacy
Ventricular Tachycardia
The Foundation For Sarcoidosis Research
June 2024
Atyr Pharmaceuticals
Avid Runners
Patient Awareness
Awareness Campaigns
Clinical Trials
Namilumab
Life Insurance
Community Outreach
Pulmonary Sarcoidosis

Fighting sarcoidosis as well as other rare diseases.

PublishesTwice monthlyEpisodes167Founded6 years ago
Number of ListenersCategories
MedicineHealth & FitnessFitness

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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Latest Episodes

Once you receive a diagnosis of Sarcoidosis, you have an answer.  But that raises more questions.  What medications should I take?  Will they work?  Is it the right medication?  What complications could I face?  Do I have the right doctor, or is the ... more

Sarah Bishop has a little extra compared to the rest of us.  Even though she endures daily struggles with Sarcoidosis she pushes herself to the limit.  In this case the limit is an endurance event called The Goat, which takes place in her native New ... more

The Foundation for Sarcoidosis Research (FSR) is gaining national traction in the fight against sarcoidosis—championing research funding, patient rights, and access to treatment. In this episode, we dive into how FSR is helping patients receive the c... more

Janet Mockovciak has been through the wringer.  Her sarcoidosis has gone from bad to worse.  She has tried all the medications that most patients have used, but they only seem to last for a brief period of time.  Then they stop.  In the meantime, the... more

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Recent Guests

Mary McGowan
CEO of the Foundation for Sarcoidosis Research
Foundation for Sarcoidosis Research
Episode: Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Janet Mockovciak
A supporter of the sarcoidosis community and a patient living with sarcoidosis.
Episode: Episode 156 | Janet Mockovciak has tried everything to get her sarcoidosis under control
Dr. Mark Mallozzi
Researcher at National Jewish Health
National Jewish Health
Episode: Episode 155 | Dr. Mark Mallozzi is researching a potential cause of Sarcoidosis
Basim Karim
An HIV survivor and sarcoidosis patient sharing his health challenges and advocacy for better treatment options.
Episode: Episode 152 Basim Karim is fighting sarcoidosis while being HIV positive
Dr. Thomas Leung
Associate Professor of Dermatology and researcher in sarcoidosis and immunology
Perlman School of Medicine, University of Pennsylvania
Episode: Episode 151 | Dr. Thomas Leung is using skin research to unravel the mysteries of sarcoidosis
Chris Cermak
A patient living with hypercalcemia caused by sarcoidosis
Episode: Episode 150 | Chris Cermak has hypercalcemia caused by sarcoidosis
Dr. Ennis James
Pulmonary and critical care physician specializing in sarcoidosis, member of the Medical and Scientific Advisory Board for FSR
Medical University of South Carolina
Episode: Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Tricha Shivas
Chief of Staff and Strategy at FSR
Foundation for Sarcoidosis Research
Episode: Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Emily Dickens
Chief of Staff, Head of Government Affairs and Corporate Secretary for SHRM
Society for Human Resource Management
Episode: Episode 147 | The FMLA Clarification -- Part 1 Allowing patients to use FMLA to participate in clinical trials

Host

John Carlin
Host discussing personal experiences with sarcoidosis and advocating for awareness and research on rare diseases.

Reviews

4.9 out of 5 stars from 72 ratings
  • Not alone

    Hearing others stories has helped me not feel alone. Thank you!

    Apple Podcasts
    5
    kimeorr
    United States6 months ago
  • Informative and real

    I live in Australia and have learnt so much about sarcoidosis listening to this podcast. I’m afraid I don’t like the music intro, Zombie, it’s unsettling.

    Apple Podcasts
    5
    greenalice
    Australiaa year ago
  • Great podcast!

    Despite likely having sarcoid for over 25 years (uveitis likely from sarcoid ), it’s only been official since my lung biopsy this past summer. These episodes have been so helpful. Keep up the great work!!

    Apple Podcasts
    5
    Kat00012
    United States2 years ago
  • Very nice idea this podcast

    That's very good idea for people who want to know more about sarcoidosis. Nice host thanks John

    Apple Podcasts
    5
    GesiuGalaz
    Poland2 years ago
  • Great information!!!

    I been living with pulmonary sarcoidosis for 19 years now. I am so glad there is a new treatment for this disease. I enjoyed the information I received from the Sarc Fighter podcast. Keep up the good work, us sarc warriors can use all the help we can get.

    Apple Podcasts
    5
    Frankiec72
    United States4 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

There are suggestions for improving the thematic elements, but overall positive engagement with the content.
Reviews indicate a preference for the engaging mix of patient experiences and expert contributions.
Listeners appreciate the personal stories that help them feel less isolated in their experiences with sarcoidosis.
The podcast is regarded as a rich source of information and support for those managing chronic illness.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis
Q: What inspired you to participate in The Goat and turn it into a fundraiser for sarcoidosis?
The uniqueness of The Goat event provided a wonderful vessel for raising awareness and funds for sarcoidosis.
Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Q: Is there something out there that looks like a legitimizing factor?
Mary emphasized the importance of patient-centered care and the significant impact this can have on advocacy and collaboration.
Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Q: What do you think led to our selection?
Mary highlighted the patient engagement and community involvement that informed the work and led to the award.
Episode 156 | Janet Mockovciak has tried everything to get her sarcoidosis under control
Q: Can you kind of bring us up to date on where you remember that you were in May of 2021?
In May 2021, Janet was diagnosed with pulmonary and lymph node sarcoidosis, and later discovered cardiac sarcoidosis and small fiber neuropathy.
Episode 155 | Dr. Mark Mallozzi is researching a potential cause of Sarcoidosis
Q: How do you think this whole thing works with breathing in a particle and then triggering something within the body's immune system?
Mallozzi discusses changes in immune response to pollution, linking particulate matter to more severe outcomes in sarcoidosis patients.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Listeners are presented with insightful discussions centered around the challenges and experiences of living with sarcoidosis and other rare diseases. The content frequently features personal stories from patients, which provides a relatable perspective on managing these uncommon health conditions. There is also a focus on research and advocacy initiatives aimed at increasing awareness and improving healthcare access for those affected by sarcoidosis. Unique to this series, the podcast blends expert insights with firsthand accounts, creating a supportive community atmosphere for listeners facing similar challenges.

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. The Rest Is History
2. The Prof G Pod with Scott Galloway

How many episodes of this podcast are there?

this podcast launched 6 years ago and published 167 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Mary McGowan
2. Janet Mockovciak
3. Dr. Mark Mallozzi
4. Basim Karim
5. Dr. Thomas Leung
6. Chris Cermak
7. Dr. Ennis James
8. Tricha Shivas

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