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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin
Sarcoidosis
Mental Health
Cardiac Sarcoidosis
Neurosarcoidosis
Foundation For Sarcoidosis Research
F-Sulfidamide
Prednisone
Healthcare Advocacy
Ventricular Tachycardia
June 2024
The Foundation For Sarcoidosis Research
Atyr Pharmaceuticals
Patient Awareness
Avid Runners
Awareness Campaigns
Clinical Trials
Namilumab
Life Insurance
Community Outreach
Pulmonary Sarcoidosis

Fighting sarcoidosis as well as other rare diseases.

PublishesTwice monthlyEpisodes156Founded6 years ago
Number of ListenersCategories
FitnessHealth & FitnessMedicine

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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Latest Episodes

It's not always easy to participate in a clinical trial.  Even if you want to, how do you get the time off from work?  Starting in 2025, thanks to the Foundation for Sarcoidosis Research, there is a provision called the FMLA Clarification, which esse... more

Let's say you or a family member wants to participate in a clinical trial, but the boss doesn't want you to have the time off because of extra visits to the doctor's office. Under new rules spearheaded by the Foundation for Sarcoidosis Research, comp... more

In this episode of the FSR Sarc Fighter Podcast, it's time to think.  Borrowing some thoughts from a man who faced a possibly fatal brain condition, I look at how similar his case is to our own -- bearing in mind that he expresses his case so much be... more

Scarlette Washlock was diagnosed with sarcoidosis when she was just 12 years old.  Her mother, Kelly McBride, had to raise her daughter with all the anguish and uncertainties that come with Sarcoidosis, compounded by Scarlett's youth and her desire t... more

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Recent Guests

Dr. Ennis James
Pulmonary and critical care physician specializing in sarcoidosis, member of the Medical and Scientific Advisory Board for FSR
Medical University of South Carolina
Episode: Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Tricha Shivas
Chief of Staff and Strategy at FSR
Foundation for Sarcoidosis Research
Episode: Episode 148 | The FMLA Clarification Part 2 - A real life story of the perils of trying to stay in a clinical trial and how FSR achieved the FMLA Clarification
Emily Dickens
Chief of Staff, Head of Government Affairs and Corporate Secretary for SHRM
Society for Human Resource Management
Episode: Episode 147 | The FMLA Clarification -- Part 1 Allowing patients to use FMLA to participate in clinical trials
Marion Paetznik
Physical therapist with a personal connection to sarcoidosis.
Episode: Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
Taylor Harwood
Senior Research Coordinator for the Foundation for Sarcoidosis Research.
Foundation for Sarcoidosis Research
Episode: Episode 143 | Why Sarc patients MUST exercise and the New FSR Patient Registry explained
Dr. Courtney Montgomery
A researcher focused on the genetic and environmental factors influencing sarcoidosis.
Oklahoma Medical Research Foundation
Episode: Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
Royce Robertson
Advocate and Fundraiser for sarcoidosis patients
Episode: Episode141| A tough patch for me and Royce Roberston rides for all of us.
Dr. Sotonye Imadojemu
Dermatologist specializing in cutaneous sarcoidosis and research on the disease.
Dermatologist in Boston
Episode: Episode 139 | Dr. Sotonye Imadojemu talks about Sarcoidosis of the Skin.
Katie Pantea
A nurse with neurosarcoidosis and multiple organ involvement, sharing her personal journey and experiences with the disease.
Episode: Episode 138 | Katie Pantea had a hard time even remembering her neuro sarcoidosis

Host

John Carlin
Host who shares personal experiences with sarcoidosis while engaging with experts and advocates to raise awareness and provide support for those affected by rare diseases.

Reviews

4.9 out of 5 stars from 70 ratings
  • Not alone

    Hearing others stories has helped me not feel alone. Thank you!

    Apple Podcasts
    5
    kimeorr
    United Statesa month ago
  • Informative and real

    I live in Australia and have learnt so much about sarcoidosis listening to this podcast. I’m afraid I don’t like the music intro, Zombie, it’s unsettling.

    Apple Podcasts
    5
    greenalice
    Australia6 months ago
  • Great podcast!

    Despite likely having sarcoid for over 25 years (uveitis likely from sarcoid ), it’s only been official since my lung biopsy this past summer. These episodes have been so helpful. Keep up the great work!!

    Apple Podcasts
    5
    Kat00012
    United States2 years ago
  • Very nice idea this podcast

    That's very good idea for people who want to know more about sarcoidosis. Nice host thanks John

    Apple Podcasts
    5
    GesiuGalaz
    Poland2 years ago
  • Great information!!!

    I been living with pulmonary sarcoidosis for 19 years now. I am so glad there is a new treatment for this disease. I enjoyed the information I received from the Sarc Fighter podcast. Keep up the good work, us sarc warriors can use all the help we can get.

    Apple Podcasts
    5
    Frankiec72
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Informative and real, helping those with sarcoidosis learn crucial information.
Great insights from both patients and experts, making complex topics accessible.
Strong support from the community and a commitment to raising awareness of sarcoidosis.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
Q: Are you making any progress?
Yes, we've advanced in identifying what genes are doing within individual cells and determining targets for treatment.
Episode 142 | Dr. Courtney Montgomery is looking for the cause of Sarcoidosis.
Q: What is your research focused on?
We're trying to find out why the immune system is dysregulated and looking at genetic and environmental factors that contribute to sarcoidosis.
Episode 140 | Getting your questions answered at the 2025 FSR Global Virtual Sarcoidosis Summit
Q: Who do you think is the perfect audience for the summit?
Patients and caregivers are the primary audience, but anyone affected by sarcoidosis can benefit.
Episode 139 | Dr. Sotonye Imadojemu talks about Sarcoidosis of the Skin.
Q: Is there a name for this treatment, this medication?
The medication is called Brepocetamib.
Episode 137 | Dr. Brandon Moss of the Cleveland Clinic talks neuro sarcoidosis
Q: What can be done if someone suspects they have neurological issues related to Sarcoidosis?
It's crucial for patients to advocate for themselves and pursue evaluations for neurological concerns promptly, as timing is important for effective treatment.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Location
Interests
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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Focusing on the experiences of individuals living with sarcoidosis and related rare diseases, this podcast provides a platform for personal stories, expert insights, and practical advice. Listeners can expect discussions on a variety of topics such as the importance of exercise for health management, the latest research findings, and the emotional challenges faced by those navigating these conditions. Unique features include interviews with healthcare professionals and patients, increasing awareness about the disease and fostering a supportive community.

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. Chasing Life
2. The Moth
3. 48 Hours
4. The Daily
5. Dateline NBC

How many episodes of this podcast are there?

this podcast launched 6 years ago and published 156 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Dr. Ennis James
2. Tricha Shivas
3. Emily Dickens
4. Marion Paetznik
5. Taylor Harwood
6. Dr. Courtney Montgomery
7. Royce Robertson
8. Dr. Sotonye Imadojemu

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