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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin
Sarcoidosis
Foundation For Sarcoidosis Research
Cardiac Sarcoidosis
Clinical Trials
Mental Health
Prednisone
Neurosarcoidosis
FDA
F-Sulfidamide
Neuro Sarcoidosis
New Zealand
Pulmonary Sarcoidosis
Patient Advocacy
Namilumab
Drug Development
Immunology
Health Care
Covid-19
Diversity In Clinical Trials
Kinevant Sciences

Fighting sarcoidosis as well as other rare diseases.

PublishesTwice monthlyEpisodes170Founded6 years ago
Number of ListenersCategories
MedicineHealth & FitnessFitness

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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Latest Episodes

It's clear that military veterans are more likely to suffer from Sarcoidosis than the general population.  Dan Frank served as a Navy pilot.  Years later, doctors told him he had sarcoidosis.  While we don't know the cause -- the medical world and in... more

April is Sarcoidosis Awareness month, and that's something to sing about.  And walk about.  And talk about.  And so much more.  In this podcast, I'll be speaking with Tricha Shivas, Chief of Staff and Strategy at the Foundation for Sarcoidosis Resear... more

Dan Keota lives outside Philadelphia.  He needs a double lung transplant.  It's serious.  But Dan is one of those people who find comedy just about anywhere -- even in the darkest throws of his own condition.  Listen as Dan tells the story of how he ... more

Once you receive a diagnosis of Sarcoidosis, you have an answer.  But that raises more questions.  What medications should I take?  Will they work?  Is it the right medication?  What complications could I face?  Do I have the right doctor, or is the ... more

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Recent Guests

Kate Anastasia
FSR team member
Foundation for Sarcoidosis Research
Episode: Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis!
Trisha Sheevas
FSR team member
Foundation for Sarcoidosis Research
Episode: Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis!
Daniel Keoto
Sarcoidosis patient with pulmonary involvement and founder of Die Laughing
Die Laughing, Inc.
Episode: Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing
Mary McGowan
CEO of the Foundation for Sarcoidosis Research
Foundation for Sarcoidosis Research
Episode: Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Janet Mockovciak
A supporter of the sarcoidosis community and a patient living with sarcoidosis.
Episode: Episode 156 | Janet Mockovciak has tried everything to get her sarcoidosis under control
Dr. Mark Mallozzi
Researcher at National Jewish Health
National Jewish Health
Episode: Episode 155 | Dr. Mark Mallozzi is researching a potential cause of Sarcoidosis
Basim Karim
An HIV survivor and sarcoidosis patient sharing his health challenges and advocacy for better treatment options.
Episode: Episode 152 Basim Karim is fighting sarcoidosis while being HIV positive
Dr. Thomas Leung
Associate Professor of Dermatology and researcher in sarcoidosis and immunology
Perlman School of Medicine, University of Pennsylvania
Episode: Episode 151 | Dr. Thomas Leung is using skin research to unravel the mysteries of sarcoidosis
Chris Cermak
A patient living with hypercalcemia caused by sarcoidosis
Episode: Episode 150 | Chris Cermak has hypercalcemia caused by sarcoidosis

Host

John Carlin
Host discussing personal experiences with sarcoidosis and advocating for awareness and research on rare diseases.

Reviews

4.9 out of 5 stars from 73 ratings
  • Not alone

    Hearing others stories has helped me not feel alone. Thank you!

    Apple Podcasts
    5
    kimeorr
    United States7 months ago
  • Informative and real

    I live in Australia and have learnt so much about sarcoidosis listening to this podcast. I’m afraid I don’t like the music intro, Zombie, it’s unsettling.

    Apple Podcasts
    5
    greenalice
    Australiaa year ago
  • Great podcast!

    Despite likely having sarcoid for over 25 years (uveitis likely from sarcoid ), it’s only been official since my lung biopsy this past summer. These episodes have been so helpful. Keep up the great work!!

    Apple Podcasts
    5
    Kat00012
    United States2 years ago
  • Very nice idea this podcast

    That's very good idea for people who want to know more about sarcoidosis. Nice host thanks John

    Apple Podcasts
    5
    GesiuGalaz
    Poland3 years ago
  • Great information!!!

    I been living with pulmonary sarcoidosis for 19 years now. I am so glad there is a new treatment for this disease. I enjoyed the information I received from the Sarc Fighter podcast. Keep up the good work, us sarc warriors can use all the help we can get.

    Apple Podcasts
    5
    Frankiec72
    United States4 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

There are suggestions for improving the thematic elements, but overall positive engagement with the content.
Reviews indicate a preference for the engaging mix of patient experiences and expert contributions.
Listeners appreciate the personal stories that help them feel less isolated in their experiences with sarcoidosis.
The podcast is regarded as a rich source of information and support for those managing chronic illness.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing
Q: What sparked the move into comedy and Die Laughing?
Depression and weight loss challenges pushed him to seek distraction and healing through humor, leading to a fundraiser and a new nonprofit to support transplant patients.
Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing
Q: So how did that turn out with the transplant?
There were multiple delays and checks, but the team kept him in the loop; ultimately, he was prepared for a life-changing surgery and stayed hopeful despite setbacks.
Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis
Q: What inspired you to participate in The Goat and turn it into a fundraiser for sarcoidosis?
The uniqueness of The Goat event provided a wonderful vessel for raising awareness and funds for sarcoidosis.
Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Q: Is there something out there that looks like a legitimizing factor?
Mary emphasized the importance of patient-centered care and the significant impact this can have on advocacy and collaboration.
Episode 157 | The Foundation for Sarcoidosis Research rises to the top
Q: What do you think led to our selection?
Mary highlighted the patient engagement and community involvement that informed the work and led to the award.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

Listeners are presented with insightful discussions centered around the challenges and experiences of living with sarcoidosis and other rare diseases. The content frequently features personal stories from patients, which provides a relatable perspective on managing these uncommon health conditions. There is also a focus on research and advocacy initiatives aimed at increasing awareness and improving healthcare access for those affected by sarcoidosis. Unique to this series, the podcast blends expert insights with firsthand accounts, creating a supportive community atmosphere for listeners facing similar challenges.

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. The Dr. Hyman Show
2. The Mel Robbins Podcast
3. Armchair Expert with Dax Shepard
4. The Moth
5. Dateline NBC

How many episodes of this podcast are there?

this podcast launched 6 years ago and published 170 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Kate Anastasia
2. Trisha Sheevas
3. Daniel Keoto
4. Mary McGowan
5. Janet Mockovciak
6. Dr. Mark Mallozzi
7. Basim Karim
8. Dr. Thomas Leung

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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