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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin
Sarcoidosis
Foundation For Sarcoidosis Research
Cardiac Sarcoidosis
Clinical Trials
Mental Health
Prednisone
Neurosarcoidosis
FDA
F-Sulfidamide
Neuro Sarcoidosis
New Zealand
Pulmonary Sarcoidosis
Namilumab
Patient Advocacy
Drug Development
Immunology
Covid-19
Kinevant Sciences
Atyr Pharmaceuticals
June 2024

Fighting sarcoidosis as well as other rare diseases.

PublishesTwice monthlyEpisodes176Founded7 years ago
Number of ListenersCategories
MedicineFitnessHealth & Fitness

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Artwork for Sarc Fighter: Living with Sarcoidosis and other rare diseases

Latest Episodes

Susan Smith has cardiac Sarcoidosis.  One day she was in spin class, and all of a sudden her life went into a spin.  Sarcoidosis has raised its ugly head, and now she is taking things day by day as she works with her medical team to find a solution t... more

Tony Haskel is fighting cardiac sarcoidosis.  He has been battling the disease since 2022, and it's been a long road back.  In fact, he will tell you he's nowhere close to where he once was or where he wants to be.  Tony is a return visitor to the po... more

Tate Basildon has been through it all.  And he is still going through it.  Pulmonary and cardiac sarcoidosis have invaded his life.  He takes prednisone and suffers.  Yet he says he wakes up every day lucky to be alive.  Tate is a fellow podcaster wh... more

Heidi Sedra is a healthcare professional, but that didn't make her path to diagnosis and treatment any easier.  In this episode of the FSR Sarc Fighter Podcast, Heidi shares how sarcoidosis put her in the hospital -- and that's just part of the story... more

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Recent Guests

Susan Smith
Sarc patient with cardiac sarcoidosis and small fiber neuropathy workup
Patient, Sarcoidosis community member
Episode: Episode 168 | Susan Smith is fighting cardiac sarcoidosis and possible more.
Tony Haskel
Guest with cardiac sarcoidosis; frequent contributor to the show
Independent patient advocate / endurance athlete
Episode: Episode 167 | Tony Haskel is fighting cardiac sarcoidosis
Tate Basildon
Fellow Sarc Fighter, podcast creator of A Body Rebels
A Body Rebels
Episode: Episode 166 | Tate Basildon was told he only had five years to live
Heidi Sedra
Nurse practitioner with sarcoidosis; patient advocate
Independent nurse practitioner in Washington state
Episode: Episode 165 | Heidi Sedra is turning the corner in her battle with Sarcoidosis
Mary McGowan
CEO of the Foundation for Sarcoidosis Research
Foundation for Sarcoidosis Research
Episode: Episode 163 | New hope for people with kidney and/or skin Sarcoidosos
Dan Frank
Navy veteran, former aircraft carrier pilot, diagnosed with sarcoidosis
US Navy, civilian life in Maryland
Episode: Episode 162 | Veteran Dan Frank talks about service in the Navy and Sarcoidosis
Kate Anastasia
FSR team member
Foundation for Sarcoidosis Research
Episode: Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis!
Trisha Sheevas
FSR team member
Foundation for Sarcoidosis Research
Episode: Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis!
Daniel Keoto
Sarcoidosis patient with pulmonary involvement and founder of Die Laughing
Die Laughing, Inc.
Episode: Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing

Host

John Carlin
Host of the Sarc Fighter Podcast, frequently associated with Foundation for Sarcoidosis Research activities and related outreach

Reviews

4.9 out of 5 stars from 73 ratings
  • Not alone

    Hearing others stories has helped me not feel alone. Thank you!

    Apple Podcasts
    5
    kimeorr
    United Statesa year ago
  • Informative and real

    I live in Australia and have learnt so much about sarcoidosis listening to this podcast. I’m afraid I don’t like the music intro, Zombie, it’s unsettling.

    Apple Podcasts
    5
    greenalice
    Australiaa year ago
  • Great podcast!

    Despite likely having sarcoid for over 25 years (uveitis likely from sarcoid ), it’s only been official since my lung biopsy this past summer. These episodes have been so helpful. Keep up the great work!!

    Apple Podcasts
    5
    Kat00012
    United States3 years ago
  • Very nice idea this podcast

    That's very good idea for people who want to know more about sarcoidosis. Nice host thanks John

    Apple Podcasts
    5
    GesiuGalaz
    Poland3 years ago
  • Great information!!!

    I been living with pulmonary sarcoidosis for 19 years now. I am so glad there is a new treatment for this disease. I enjoyed the information I received from the Sarc Fighter podcast. Keep up the good work, us sarc warriors can use all the help we can get.

    Apple Podcasts
    5
    Frankiec72
    United States4 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Guests are typically credible and passionate about sarcoidosis advocacy.
Listeners appreciate the blend of patient stories and medical insights.
The show is praised for practical tips and real-world resources, though some listeners dislike the intro music.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Episode 167 | Tony Haskel is fighting cardiac sarcoidosis
Q: What happened when you went in for the MRI and the plan changed to an ICD?
The MRI confirmed sarcoidosis; doctors explained that while an ICD would address dangerous heart rhythm issues, there is no cure for the disease and ongoing treatment and monitoring would be required.
Episode 167 | Tony Haskel is fighting cardiac sarcoidosis
Q: But you have cardiac sarcoidosis. Can you give us sort of the baseline of that first?
Tony explains his medical history, starting with a heart murmur, bicuspid valve, and heart block diagnosed around 2007, which gradually led to fatigue and eventually the decision to implant a pacemaker; doctors later identified sarcoidosis affecting the heart, necessitating an ICD and adjustments to treatment.
Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing
Q: What sparked the move into comedy and Die Laughing?
Depression and weight loss challenges pushed him to seek distraction and healing through humor, leading to a fundraiser and a new nonprofit to support transplant patients.
Episode 160 | Dan Keota is determined to beat Sarcoidosis or Die Laughing
Q: So how did that turn out with the transplant?
There were multiple delays and checks, but the team kept him in the loop; ultimately, he was prepared for a life-changing surgery and stayed hopeful despite setbacks.
Episode 158 | For Sarah Bishop it's an uphill battle with Sarcoidosis
Q: What inspired you to participate in The Goat and turn it into a fundraiser for sarcoidosis?
The uniqueness of The Goat event provided a wonderful vessel for raising awareness and funds for sarcoidosis.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

The program consistently blends personal patient journeys with medical context, highlighting how sarcoidosis and related rare diseases affect daily life, treatment decisions, and long-term planning. Guests range from patients and caregivers to clinicians and researchers, often discussing diagnosis hurdles, treatment side effects, and advocacy initiatives. A standout pattern is the strong emphasis on community support, fundraising, awareness campaigns, and practical tips for navigating healthcare systems, travel for care, and leveraging patient registries or research updates to inform care. The breadth of topics—ranging from cardiac and pulmonary sarcoidosis to environmental triggers and veteran exposures—gives the show a unique mix of clini... more

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1. Betrayal Weekly
2. A Body Rebels: A Chronic Illness Podcast
3. Crime Junkie
4. Dateline NBC
5. The Moth

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this podcast launched 7 years ago and published 176 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Susan Smith
2. Tony Haskel
3. Tate Basildon
4. Heidi Sedra
5. Mary McGowan
6. Dan Frank
7. Kate Anastasia
8. Trisha Sheevas

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