Raising Rare
Raising RareImagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the onl... more
| Publishes | Monthly | Episodes | 98 | Founded | 6 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | ScienceLife SciencesKids & FamilyParenting | |||
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Latest Episodes
“This journey has changed our lives, has reshaped my identity. Plans change, dreams shift. I've had to learn to become more than just a mom.”
Mariah only started this journey earlier this year. She has climbed the initial learning curve very quickl... more
Five years ago, we first spoke with Nikki McIntosh. In this episode, Nikki returns to share her journey as a mother of a child with spinal muscular atrophy (SMA) and the profound impact of clinical trials on her son’s life. Miles is growing up and ... more
The stories of rare kids powerfully shape the stories of the parents who are raising them.
In this episode, Claudia Parker discusses how her daughter, who has FOXP1 syndrome, has brought so many benefits into her family’s lives.
But this was no... more
“Raghav’s expression for discomfort is laughter, counterintuitively. We call it his cranky laughter.” Sanath RameshImagine not being able to tell the people around that you are in pain. Or more accurately, imagine that you have no way of telling whe... more
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Apple Podcasts | #183 |  Austria/Kids & Family/Parenting |
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| Listeners per Episode | Gender Skew | Location | |||
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Raising Rare launched 6 years ago and published 98 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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