PWS United
PWSA | USAWelcome to PWS United, a podcast for the Prader-Willi Syndrome community, brought to you by PWSA | USA. This podcast gives the latest news in research, advocacy, and family support by bringing together staff, volunteers, PWS treatment specialists, biotech and pharmaceutical representatives, caregivers, family members, and individuals with PWS. Our goal is to connect education, awareness, and resou... more
| Publishes | Weekly | Episodes | 63 | Founded | a year ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Non-ProfitBusinessEducation | |||
Listen to this Podcast
Latest Episodes
Link to session material: Emotional Regulation Strategies
This episode is from a session from our International United in Hope PWS Conference and was recorded on June 28, 2025.
”Teaching Emotional Regulation in Individuals with Prader-Willi Syndrom... more
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Gala
Journey of Hope Gala Recap: Celebrating 50 Years of PWSA | USA - Prader-Willi Syndrome Association | USA
Tribute Video:... more
We are beginning a new podcast series, Sibling Advocacy, where we will be speaking with siblings about how they show up for their loved one with PWS, whether at the kitchen table, at school, in friend groups or government, or any place where their si... more
The latest in PWSA | USA events and PWS news in research, family support, and advocacy.
24 Hour Crisis Line: 941-312-0400
Gala Live Auction
PWSA | USA's 50th Anniversary: Journey of Hope Gala AUCTION
50th-Gala-How-to-Bid-on-the-Silent-Auction.pdf... more
Key Facts
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Reviews
- Listen, learn and laugh
This podcast provides so much information that always seems to come at the exact moment I need to hear it! The easy banter between Carrie, Anne and their guests feels like I’m listening to friends and often makes me laugh out loud!
Apple Podcasts5havdbrkab
United States2 months ago - Very Needed
This podcast is truly wonderful for our community and for others to learn about PWS too. I love the banter and realness of the hosts. It makes me feel less isolated, in fact it makes me feel so seen and understood, like I’m part of a big community that is there for me and my family 24/7 if we need them. I’m so glad I know PWS USA exists and all of the services. Love listening every week. Therapy.
Apple Podcasts5CraftonMommyUnited States10 months ago - LOVE this podcast!!
Thank you PWSA | USA for creating such an amazing podcast! I have a little one with PWS and really enjoy the content you feature!
Apple Podcasts5PWS MamaUnited States10 months ago - Wonderful resource!
I spend so much time in the car. This is a great way to redeem the time and keep up with what is happening in our community. Thanks for creating this!
Apple Podcasts5AC WarrenUnited Statesa year ago - Helpful, Resourceful, Interesting
Anne and Carrie host a great podcast for the PWS Community - and those interested in getting to know about PWS - full of great info, resources, and interesting guests that delve into timely topics. So grateful!
Apple Podcasts5jinjersnapUnited Statesa year ago
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #89 | United States/Business/Non-Profit |
Apple Podcasts | #176 |  Canada/Business/Non-Profit |
Apple Podcasts | #78 |  Switzerland/Business/Non-Profit |
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
|---|---|---|---|---|---|
| Interests | Professions | Age Range | |||
| Household Income | Social Media Reach | ||||
Frequently Asked Questions About PWS United
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How many episodes of PWS United are there?
PWS United launched a year ago and published 63 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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