Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to na... more
| Publishes | Twice monthly | Episodes | 94 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | ScienceEducationLife Sciences | |||
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Latest Episodes
A nano-rare diagnosis changes more than one life—it transforms an entire family.
In this episode of Realities of the Nano-rare, n-Lorem CEO Stan Crooke sits down with Oliver Glass, Ph.D., MHSc, for an honest and heartfelt conversation about raising ... more
A nano rare diagnosis does not just affect one person. It reshapes an entire family.
Realities of the Nano-rare takes you inside that experience. Hear directly from n-Lorem COO and nano rare mom Sarah Glass as she joins host Stan Crooke to share the... more
Welcome to part two of our series that pulls back the curtain on the scientific and medical breakthroughs that make n-Lorem possible. We call them miracles and without them, n-Lorem would not exist today.
Every day, our patients benefit from what ca... more
On This episode We Discuss:
2:30 – Andrew realized that finance plays a very large role in drug development and is an obstacle in for rare disease patients getting the treatments they need
4:30 – The triple whammy of drug development
6:22 – Econom... more
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Reviews
- So informative and important!
What the n-Lorem foundation is doing for rare disease is a game changer. Hearing from Stan Crooke and the experts and families he interviews is so informative.
Apple Podcasts5Flygirl3663
United States4 years ago - Nano what?
Prior to n-Lorem, patients who didn’t fit into the current healthcare model, were isolated and alone. With this podcast, these patient are front and center. A podcast for and about them! And a master class in basic drug chemistry that anyone would benefit from.
Apple Podcasts5Friendly?United States4 years ago - Excellent resource for patients. Very clear!
Thanks to Dr. Stanley Crooke and nLorem Foundation for an excellence resource for people living with diseases, their families and for all who want to learn more about BioPharma.
Best wishes!
Apple Podcasts5lalitaferUnited States4 years ago - Fantastic
Very exciting news
Apple Podcasts5papanormieUnited States4 years ago - Outstanding
Liked learning more about the rare diseases.
Apple Podcasts5ealinekUnited States4 years ago
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Apple Podcasts | #199 | United States/Science/Life Sciences |
Apple Podcasts | #219 |  Germany/Science/Life Sciences |
Apple Podcasts | #126 |  Japan/Science/Life Sciences |
Apple Podcasts | #127 |  Hong Kong/Science/Life Sciences |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
A podcast focused on nano-rare diseases and antisense oligonucleotide therapies, featuring conversations with scientists, biotech leaders, clinicians, and families navigating ultra-rare genetic conditions. Episodes center on personalized experimental treatments, patient advocacy, and the practicalities of conducting research, running trials, and delivering life-changing therapies for very small patient populations. Noteworthy angles include high-profile collaborations with industry players, ethics and safety in experimental medicine, and the logistical realities families face when pursuing access to cutting-edge medicines. The show often blends technical explanations with human stories, offering listeners insight into how rapid biotech inno... more
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this podcast launched 4 years ago and published 94 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Natacha Gassenbach
2. Susan Hoyt
3. Grace Hoyt
4. Luke Rosen
5. Frank Vrtochnick
6. Raena Vrtochnick
7. Kinsley Marta
8. Hadley Marta
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