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Artwork for Patient Empowerment Program: A Rare Disease Podcast

Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation

Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to na... more

PublishesWeeklyEpisodes50Founded2 years ago
Number of ListenersCategories
Health & FitnessMedicineScienceLife Sciences

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Artwork for Patient Empowerment Program: A Rare Disease Podcast

Latest Episodes

Research physicians and their associated institutions are monumental to the mission of the n-Lorem Foundation and are truly transformational to the lives of the nano-rare patients they treat. Olivia Kim-McManus, M.D., was one of four physician paneli... more

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7 days ago
YouTube

Genetics can be intricate, no doubt. With millions of mutations present in every human, one might wonder why not everyone is impacted by pathogenic diseases. The Patient Empowerment Program aims to assist you in grasping the fundamental concepts of v... more

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21 days ago
YouTube

Each time one of the cells in your body divides to form a new cell, 3 BILLION genetic letters must be accurately duplicated. That’s a big number and mistakes DO happen in everyone. That’s right, if you’re reading this, you have a genetic mutation. more

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a month ago
YouTube

What's one way to spread hope? By sharing your experiences and connecting with others who truly understand the everyday challenges nano-rare patients face. Shanna Tolbert was one of five nano-rare patient caregivers who participated in the panel, The... more

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2 months ago

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Reviews

5.0 out of 5 stars from 41 ratings
  • So informative and important!

    What the n-Lorem foundation is doing for rare disease is a game changer. Hearing from Stan Crooke and the experts and families he interviews is so informative.

    Apple Podcasts
    5
    Flygirl3663
    United States2 years ago
  • Nano what?

    Prior to n-Lorem, patients who didn’t fit into the current healthcare model, were isolated and alone. With this podcast, these patient are front and center. A podcast for and about them! And a master class in basic drug chemistry that anyone would benefit from.

    Apple Podcasts
    5
    Friendly?
    United States2 years ago
  • Excellent resource for patients. Very clear!

    Thanks to Dr. Stanley Crooke and nLorem Foundation for an excellence resource for people living with diseases, their families and for all who want to learn more about BioPharma. more

    Apple Podcasts
    5
    lalitafer
    United States2 years ago
  • Fantastic

    Very exciting news

    Apple Podcasts
    5
    papanormie
    United States2 years ago
  • Outstanding

    Liked learning more about the rare diseases.

    Apple Podcasts
    5
    ealinek
    United States2 years ago

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