Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to na... more
| Publishes | Twice monthly | Episodes | 88 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | ScienceLife SciencesEducation | |||
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Latest Episodes
Your questions, answered. n-Lorem CEO, Stan Crooke, answers questions directly from the nano-rare community in this special Q&A episode. How often is Drug safety monitored? When is an existing ASO made available to others? Not capping accepted applic... more
In this special Best Of episode, we revisit some of the powerful moments from the 2025 Nano-Rare Patient Colloquium—an extraordinary gathering that brought together more than 875 patients, family members, scientists, physicians, advocates, and indust... more
A conversation with Natacha Gassenbach, 2025 Hero of n-Lorem and Biogen leader. She shares Biogen’s decision to become a founding donor of n-Lorem, the impact of the Nano-Rare Patient Colloquium. Natacha also explores “the movement for nano-rare” and... more
Meet Grace Hoyt — a bright, witty high schooler with a passion for singing, art, and romantasy audiobooks. Grace also happens to live with a rare disease (FLVCR1) that has left her legally blind, unable to feel pain, and unsteady on her feet.
On her... more
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Reviews
- So informative and important!
What the n-Lorem foundation is doing for rare disease is a game changer. Hearing from Stan Crooke and the experts and families he interviews is so informative.
Apple Podcasts5Flygirl3663
United States3 years ago - Nano what?
Prior to n-Lorem, patients who didn’t fit into the current healthcare model, were isolated and alone. With this podcast, these patient are front and center. A podcast for and about them! And a master class in basic drug chemistry that anyone would benefit from.
Apple Podcasts5Friendly?United States4 years ago - Excellent resource for patients. Very clear!
Thanks to Dr. Stanley Crooke and nLorem Foundation for an excellence resource for people living with diseases, their families and for all who want to learn more about BioPharma.
Best wishes!
Apple Podcasts5lalitaferUnited States4 years ago - Fantastic
Very exciting news
Apple Podcasts5papanormieUnited States4 years ago - Outstanding
Liked learning more about the rare diseases.
Apple Podcasts5ealinekUnited States4 years ago
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Apple Podcasts | #18 |  United Kingdom/Science/Life Sciences |
Apple Podcasts | #151 |  Canada/Science/Life Sciences |
Apple Podcasts | #229 | United Kingdom/Science |
Apple Podcasts | #209 |  France/Science/Life Sciences |
Apple Podcasts | #50 |  Taiwan/Science/Life Sciences |
Apple Podcasts | #79 |  Finland/Science/Life Sciences |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
This podcast is dedicated to the community of individuals affected by nano-rare diseases, focusing on innovative treatments and insights from leading experts in the field. Each episode features interviews with physicians, scientists, and patient advocates, providing listeners with a deeper understanding of the unique challenges faced by patients with conditions that affect fewer than 30 individuals globally. The discussions often center around the groundbreaking work being done with antisense oligonucleotide technology, highlighting how this approach can lead to personalized, experimental treatments for these rare genetic disorders.
What sets this podcast apart is its commitment to engaging storytelling, where personal accounts of patients... more
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this podcast launched 4 years ago and published 88 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Bobby Glenn
2. Megan Hestrom
3. Tom Lowe
4. Daphne Graskewicz-Prado
5. Ryan Strankowski
6. Kelley Dalby
7. Brady Huggett
8. David Butler
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