Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to na... more
| Publishes | Twice monthly | Episodes | 83 | Founded | 3 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Life SciencesEducationScience | |||
Listen to this Podcast
Latest Episodes
The ‘Hero of n-Lorem’ Award is a recognition given to an individual volunteer or organization that has made substantial contributions to n-Lorem and our nano-rare patients. This honor recognizes our ‘unsung heroes’, those who have gone the extra mile... more
Rescue 7 is dedicated to serving the most vulnerable patient communities with care, compassion, and critical support. Inspired by the traditions of Fire Departments, Police Departments, and Military service worldwide, their programs go beyond emergen... more
Sarah and Ryan Marta, proud parents of three girls from Central Texas, began noticing that their middle daughter, Kinsley, was slow to reach mobility milestones in her early years. During a visit to a friend’s house, concerns about her vision were ra... more
Emerging observations from our work at n-Lorem suggest that not all developmental delays are permanent. In the absence of structural damage—such as microcephaly, congenital deformities of the skull or bones, or organ malformations—there appears to be... more
Key Facts
Similar Podcasts
People also subscribe to these shows.
Recent Guests
Host
Reviews
- So informative and important!
What the n-Lorem foundation is doing for rare disease is a game changer. Hearing from Stan Crooke and the experts and families he interviews is so informative.
Apple Podcasts5Flygirl3663
United States3 years ago - Nano what?
Prior to n-Lorem, patients who didn’t fit into the current healthcare model, were isolated and alone. With this podcast, these patient are front and center. A podcast for and about them! And a master class in basic drug chemistry that anyone would benefit from.
Apple Podcasts5Friendly?United States3 years ago - Excellent resource for patients. Very clear!
Thanks to Dr. Stanley Crooke and nLorem Foundation for an excellence resource for people living with diseases, their families and for all who want to learn more about BioPharma.
Best wishes!
Apple Podcasts5lalitaferUnited States3 years ago - Fantastic
Very exciting news
Apple Podcasts5papanormieUnited States3 years ago - Outstanding
Liked learning more about the rare diseases.
Apple Podcasts5ealinekUnited States3 years ago
Listeners Say
Key themes from listener reviews, highlighting what works and what could be improved about the show.
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #240 |  France/Science/Life Sciences |
Apple Podcasts | #58 |  Taiwan/Science/Life Sciences |
Apple Podcasts | #113 |  Japan/Science/Life Sciences |
Talking Points
Recent interactions between the hosts and their guests.
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | |
|---|---|
| Gender Skew | |
| Location | |
| Interests | |
| Professions | |
| Age Range | |
| Household Income | |
| Social Media Reach |
Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
The content features insightful discussions focused on the challenges and advancements related to nano-rare diseases, which are afflictions caused by unique genetic mutations affecting very few individuals. Through interviews with leading physicians, scientists, and patient advocates, the series aims to educate listeners about the innovative antisense oligonucleotide (ASO) technology developed by n-Lorem Foundation. Highlights include personal stories from families navigating the complexities of rare diseases, the processes behind experimental treatments, and updates on the evolving landscape of relevant biotechnological advancements. This series not only provides a blend of scientific knowledge with human experiences but also emphasizes th... more
Where can I find podcast stats for this podcast?
Rephonic provides a wide range of podcast stats for this podcast. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to this podcast and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does this podcast get?
Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for this podcast, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.
What are the audience demographics for this podcast?
Rephonic provides comprehensive predictive audience data for this podcast, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.
How many subscribers and views does this podcast have?
To see how many followers or subscribers this podcast has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
Which podcasts are similar to this podcast?
These podcasts share a similar audience with this podcast:
1. Once Upon A Gene
2. The Daily
3. This American Life
4. Radiolab
5. The Happiness Lab with Dr. Laurie Santos
How many episodes of this podcast are there?
this podcast launched 3 years ago and published 83 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact this podcast?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for this podcast?
Rephonic pulls ratings and reviews for this podcast from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.
How do I access podcast episode transcripts for this podcast?
Rephonic provides full transcripts for episodes of this podcast. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.
What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Bobby Glenn
2. Megan Hestrom
3. Tom Lowe
4. Daphne Graskewicz-Prado
5. Ryan Strankowski
6. Kelley Dalby
7. Brady Huggett
8. David Butler
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.