
Honest conversations with the rare community, led by our hosts, David Rintell and Mandy Rohrig of BridgeBio.
| Publishes | Monthly | Episodes | 48 | Founded | 4 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | EducationLife SciencesScience | |||

Severe seizures, nonstop crying, and an exaggerated startle reflex marked the beginning of Elliott’s journey with molybdenum cofactor deficiency type A (MOCD type A), an ultra-rare inherited metabolic disorder that can cause devastating neurological ... more
Seizures, incorrect diagnoses, and years of unanswered questions shaped Arielle’s journey with autosomal dominant hypocalcemia type 1 (ADH1). ADH1 is a rare genetic condition in which the body is unable to accurately sense blood calcium levels, leadi... more
In this episode of On Rare: Innovators, hosts David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, speak with Kat Bryant Knudson, Founder and CEO of the Speak Foundation and a leade... more
In our 2025 year-in-review episode, On Rare reflects on a year filled with meaningful conversations and powerful storytelling. Joined by David Rintell, Head of Patient Advocacy at BridgeBio, and Mandy Rohrig, Senior Director of Patient Advocacy at Br... more
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How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #244 | |
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Apple Podcasts | #221 | |
Apple Podcasts | #244 | |
Apple Podcasts | #249 |
Recent interactions between the hosts and their guests.
Listeners, social reach, demographics and more for this podcast.
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The show presents honest conversations with members of the rare disease community, blending patient and caregiver storytelling with clinical context from researchers and industry leaders. Across episodes, listeners hear personal journeys through diagnosis, treatment access, and daily life challenges, alongside explanations of emerging therapies and the science behind rare conditions. Episodes frequently highlight advocacy, multi-stakeholder collaboration, and practical care strategies, with standout moments centered on home treatment logistics, patient data initiatives, and the power of patient-led organizations in accelerating research and access. The format often weaves on-location storytelling, expert commentary, and foundation-driven pe... more
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On Rare launched 4 years ago and published 48 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on On Rare include:
1. Günter Schwarz
2. Kat Bryant Knudson
3. Katie Bjork
4. Nasha Fitter
5. Yago Alonso
6. Fani González
7. Greg Roof
8. Carmen Alonso
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