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I'm Dying to Tell You

Lorri Carey
ALS
Community Support
Caregiving
Parenting
Mental Health
Gratitude
Lou Gehrig Day
Faith
Cincinnati
ALS Family Of Faith
Love
Nonprofits
ALS Community
Family Dynamics
Emotional Support
Spiritual Support
Grief
Family
Thanksgiving
Luki & the Lights

Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can ... more

PublishesMonthlyEpisodes122Founded6 years ago
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Personal JournalsSelf-ImprovementEducationSociety & Culture

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Artwork for I'm Dying to Tell You

Latest Episodes

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Here, I’m joined by six members of Many Shades of ALS, a community team within I AM ALS, for a roundtable that breaks the stereotype of who gets ALS. 

We talk honestly about “ghosting” after diagnosis and why people disappear even ... more

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Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS.  Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to build a life in your twenties while your body chan... more

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For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up.  As an athlete, he knew his body, but getting answers proved ... more

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This episode is tender.   In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt.  But Leah didn’t shrink after her diagnos... more

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Recent Guests

Erin Taylor
Young woman with ALS, active on social media as UnsteadyAndReady
Self/ALS advocacy
Episode: Erin Taylor and Her Mom Lily on Living Fully with ALS
Lily Taylor
Erin's mother and primary caregiver
Private individual
Episode: Erin Taylor and Her Mom Lily on Living Fully with ALS
Sam Cunningham
A young man diagnosed with ALS at 35, former surfer and athlete
Episode: Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35
Angelina Fanous
Member of Her ALS Story, diagnosed with ALS 12 years ago
Her ALS Story
Episode: The Sisterhood She Built: A Tribute to Leah Stavenhagen
Gwen Petersen
ALS patient and leadership team member for Her ALS Story
Her ALS Story
Episode: The Sisterhood She Built: A Tribute to Leah Stavenhagen
Karin Pacold
ALS patient, member of Her ALS Story
Her ALS Story
Episode: The Sisterhood She Built: A Tribute to Leah Stavenhagen
Eric Paslay
A platinum-selling Grammy-nominated artist and singer-songwriter
Self-employed
Episode: Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Salym Liufau
Young mother of four living with ALS
Episode: Salym Liufau: Finding New Ways to Live with ALS for Her Four Children
Melanie Lang
A widow and mother who shares her experience of losing her husband to ALS and the joy of having a child.
Episode: Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -2/2

Reviews

5.0 out of 5 stars from 191 ratings
  • Engaging and Informative

    Lorri is such a great conversationalist, she engages with her guests on a whole other level. If you want to learn about the cool things going on in the ALS community, IDTTY is the best resource and Lorri is your best guide.

    Apple Podcasts
    5
    JBrattain
    United States10 months ago
  • Thank you✨

    Very informative!

    Respect.

    Apple Podcasts
    5
    Light of my Life!
    United Statesa year ago
  • Amazing

    Thank you for the insightful interview today.

    Your story is amazing and gives inspiration to others. I recently got diagnosed with PLS.

    Apple Podcasts
    5
    Rav50!
    United Kingdom2 years ago
  • Amazing!

    Lorri’s podcasts are inspiring because SHE’S inspiring! If you want to learn how to make the most of your life, you don’t want to miss these podcasts! Her ability to relate to people and to share their stories will bring joy to your day and motivate you to look at events in life differently. I’m updating this review to encourage listeners to take time to listen to her 20th anniversary episode. Her sons, Paul and Christian, interview Lorri and share glimpses into traveling alongside their mom dur... more

    Apple Podcasts
    5
    Sweetal1234
    United States2 years ago
  • Such inspiring and beautiful stories

    Lorri is the sweetest, the amount of time and dedication she has put in to sharing peoples stories and advocating for als is incredible!

    Apple Podcasts
    5
    Mirahudson
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Audience appreciates the host's empathy and deep engagement with guests.
Guests are described as courageous and inspiring, providing diverse perspectives on living with ALS.
Listeners value hopeful, uplifting storytelling around ALS.
The show is seen as a vital resource for those seeking practical information and community support in ALS space.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35
Q: What has the social and professional impact been like, and how have you navigated relationships and work?
Friendships and coworker dynamics changed; some ghosted, others surprised and stepped up. My employer supported remote work and even sponsored an ALS walk, showing that meaningful work and community support can endure and adapt to new realities.
Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35
Q: Can you walk us through the timeline from first symptoms to diagnosis and what stood out to you during that process?
I noticed leg sluggishness and cramps first, then cramps and twitching spread to other limbs over years. Many doctors offered different explanations, but a thorough, data-rich evaluation finally confirmed motor neuron disease, which was both terrifying and validating after years of uncertainty.
Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Q: Do you have a universal message that you want people to know through your art?
Eric emphasizes that since none of us choose where we're born, we should choose to love everyone regardless of their circumstances.
Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Q: What motivates you to do that?
Eric believes in being open about his type 1 diabetes to educate and encourage others with similar conditions, fostering understanding and empathy.
Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Q: How did you even get the music bug?
Eric mentions he was born with a passion for music and discovered he could play by ear, leading him to write songs early on.

Audience Metrics

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Frequently Asked Questions About I'm Dying to Tell You

What is I'm Dying to Tell You about and what kind of topics does it cover?

The show centers on living with ALS and turning adversity into purpose by sharing intimate stories of others navigating the disease, caregiving, and community building. Conversations span activism, music, caregiving, veteran experiences, parenting with ALS, and resilience, often blending personal faith, hope, and practical advocacy. The host frequently elevates caller-to-action moments—raising awareness, supporting research, and spotlighting nonprofit efforts—while highlighting uplifting, human-centered angles that help listeners feel seen and inspired. A notable thread is leveraging storytelling and community to sustain momentum in the face of a terminal diagnosis, with guests ranging from patients and caregivers to veterans, artists, and ... more

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These podcasts share a similar audience with I'm Dying to Tell You:

1. MeSsy with Christina Applegate & Jamie Lynn Sigler
2. All There Is with Anderson Cooper
3. The Mel Robbins Podcast
4. The Ramsey Show
5. HEAL with Kelly

How many episodes of I'm Dying to Tell You are there?

I'm Dying to Tell You launched 6 years ago and published 122 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on I'm Dying to Tell You?

Recent guests on I'm Dying to Tell You include:

1. Erin Taylor
2. Lily Taylor
3. Sam Cunningham
4. Angelina Fanous
5. Gwen Petersen
6. Karin Pacold
7. Eric Paslay
8. Salym Liufau

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