
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can ... more
| Publishes | Monthly | Episodes | 122 | Founded | 6 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Personal JournalsSelf-ImprovementEducationSociety & Culture | |||

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Here, I’m joined by six members of Many Shades of ALS, a community team within I AM ALS, for a roundtable that breaks the stereotype of who gets ALS.
We talk honestly about “ghosting” after diagnosis and why people disappear even ... more
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Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS. Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to build a life in your twenties while your body chan... more
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For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up. As an athlete, he knew his body, but getting answers proved ... more
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This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her diagnos... more
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Lorri is such a great conversationalist, she engages with her guests on a whole other level. If you want to learn about the cool things going on in the ALS community, IDTTY is the best resource and Lorri is your best guide.
Very informative!
Respect.
Thank you for the insightful interview today.
Your story is amazing and gives inspiration to others. I recently got diagnosed with PLS.
Lorri’s podcasts are inspiring because SHE’S inspiring! If you want to learn how to make the most of your life, you don’t want to miss these podcasts! Her ability to relate to people and to share their stories will bring joy to your day and motivate you to look at events in life differently. I’m updating this review to encourage listeners to take time to listen to her 20th anniversary episode. Her sons, Paul and Christian, interview Lorri and share glimpses into traveling alongside their mom dur... more
Lorri is the sweetest, the amount of time and dedication she has put in to sharing peoples stories and advocating for als is incredible!
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Apple Podcasts | #116 |
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The show centers on living with ALS and turning adversity into purpose by sharing intimate stories of others navigating the disease, caregiving, and community building. Conversations span activism, music, caregiving, veteran experiences, parenting with ALS, and resilience, often blending personal faith, hope, and practical advocacy. The host frequently elevates caller-to-action moments—raising awareness, supporting research, and spotlighting nonprofit efforts—while highlighting uplifting, human-centered angles that help listeners feel seen and inspired. A notable thread is leveraging storytelling and community to sustain momentum in the face of a terminal diagnosis, with guests ranging from patients and caregivers to veterans, artists, and ... more
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I'm Dying to Tell You launched 6 years ago and published 122 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on I'm Dying to Tell You include:
1. Erin Taylor
2. Lily Taylor
3. Sam Cunningham
4. Angelina Fanous
5. Gwen Petersen
6. Karin Pacold
7. Eric Paslay
8. Salym Liufau
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