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Every Voice Speaks

The SPEAK Foundation

Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering... more

Episodes2Foundeda month agoCategories
MedicineNon-ProfitHealth & FitnessBusiness

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Adult multidisciplinary clinics for muscular dystrophy are essential because the disease affects many body systems and causes complex cardiac, respiratory, orthopedic, and psychosocial issues that require coordinated care. These clinics bring togethe... more

The conversation centers around the experiences of individuals living with Muscular Dystrophy, focusing on personal diagnosis stories, the challenges faced during childhood, and the importance of advocacy within the community. The hosts discuss their... more

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Reviews

5.0 out of 5 stars from 6 ratings
  • Episode 1

    Kat and Pat sound like old friends who are having a friendly conversation around the dining room table. Both of them are pillars of the adult muscular dystrophy community. I look forward to future episodes where they mention digging in to patient issues as well as policy and care as people living with MD age. Great job Kat and Pat!!!

    Apple Podcasts
    5
    FightingMD
    United Statesa month ago

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Every Voice Speaks launched a month ago and published 2 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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