Every Voice Speaks
The SPEAK FoundationEvery Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering... more
| Publishes | Monthly | Episodes | 5 | Founded | 5 months ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Non-ProfitHealth & FitnessMedicineBusiness | |||
Listen to this Podcast
Latest Episodes
Parent Project Muscular Dystrophy got its start in 1994, when Pat Furlong and a group of parents and grandparents decided they couldn’t wait any longer for progress in Duchenne research. After her sons, Christopher and Patrick, were diagnosed in 1984... more
Today, we’re asking a question that’s becoming harder to ignore: Who is the current drug development system actually built for—and who is it leaving behind?
Science is advancing at an unprecedented pace, access to that science is not keeping up—and ... more
This episode highlights the real financial burden of adults living with a rare chronic illness. Hosts Kat and Pat center lived experience, and connect personal stories to larger systemic issues. Episode 3 features Abby Lehner, a young woman living in... more
Adult multidisciplinary clinics for muscular dystrophy are essential because the disease affects many body systems and causes complex cardiac, respiratory, orthopedic, and psychosocial issues that require coordinated care. These clinics bring togethe... more
Reviews
- Hits all the issues
Wow. Finally we are hearing about the real issues and they are not afraid to bring it up.
Apple Podcasts5Md warriors
United States24 days ago - Being Disabled is Expensive
The podcast was incredibly insightful and thoughtfully presented, offering a clear and concise perspective on the experiences of the disabled community. Kathryn, Pat, and Abby did an excellent job shedding light on many of the critical issues that impact individuals living with disabilities.
Thank you for creating such a meaningful platform—I truly appreciate the work you’re doing and look forward to listening to future episodes.
Apple Podcasts5Cappy1208United States2 months ago - BossUp2LGMD
I'm really starting to enjoy these podcast. Thank you to The SPEAK Foundation for giving us the space to talk and discuss about people living with muscular dystrophy. I have gained a lot of knowledge listening to all of you which in hopes leaning towards the future of my clinic UVA joins in with the movement and can help redevelop what care looks like for us. Keep up the good work!
Apple Podcasts5Lgmd_Boss89United States3 months ago - Episode 1
Kat and Pat sound like old friends who are having a friendly conversation around the dining room table. Both of them are pillars of the adult muscular dystrophy community. I look forward to future episodes where they mention digging in to patient issues as well as policy and care as people living with MD age. Great job Kat and Pat!!!
Apple Podcasts5FightingMDUnited States5 months ago
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #145 |  New Zealand/Business/Non-Profit |
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
| Listeners per Episode | Gender Skew | Location | |||
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| Interests | Professions | Age Range | |||
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How many episodes of Every Voice Speaks are there?
Every Voice Speaks launched 5 months ago and published 5 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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