Being Rare Podcast
Sarita EdwardsHosted by Sarita Edwards, Being Rare highlights the unique perspectives of individuals living with rare diseases. Through intimate—and sometimes difficult—conversations, we explore the challenges and triumphs of navigating everyday life with a rare diagnosis. Popular for our one-minute episodes, this talk radio-style platform addresses critical issues such as health equity, access to care, and men... more
| Publishes | Infrequently | Episodes | 110 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | Non-ProfitBusiness | |||
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Latest Episodes
In this episode, Sarita sits down with Royce Robertson—a husband, father, patient, and advocate. Royce shares his personal journey of being misdiagnosed and nearly undergoing a critical procedure before discovering he had cardiac sarcoidosis, a condi... more
In this episode, Sarita is joined by Jenifer Waldrop, Executive Director of the Rare Disease Diversity Coalition (RDDC), to discuss the Inequities in the Rare Disease Community Report completed in partnership with the National Organization for Rare D... more
In this episode of the Being Rare Podcast, Sarita sits down with James Griffin and Genesis Jones, patient advocates and authors. We're talking about navigating life with sickle cell, healthcare bias, stigma, and more!
The books mentioned in this epi... more
In this episode of the Being Rare Podcast, Sarita sits down with NASM certified trainer and professional bodybuilder, Coach Jeff Benton to talk about the value of prioritizing self care into your daily routine.
Interested in personal training or ... more
Reviews
Sarita shares her heart in this podcast inspired by her son and their journey as a rare disease family. Her voice is velvety and loving and I appreciate her finding the silver linings in the circumstances she has faced. She interviews other rare disease parents and shares valuable resources. A rising star! ✨✨
Podchaser54 years agoEffie Parks
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Audience Metrics
Listeners, social reach, demographics and more for this podcast.
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Which podcasts are similar to Being Rare Podcast?
These podcasts share a similar audience with Being Rare Podcast:
1. Scamanda
How many episodes of Being Rare Podcast are there?
Being Rare Podcast launched 5 years ago and published 110 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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