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Artwork for 聽罕見的聲音

聽罕見的聲音

罕見疾病基金會

罕見疾病基金會自2015年,與愛樂電台合作製播《螢火蟲故事島》廣播劇,並創作成一系列生動活潑的故事繪本及有聲書,走入校園、親近學童;同時在「財團法人觀樹教育基金會」的贊助支持下,重製爲Podcast 節目,期盼帶領小朋友們認識不同類型的罕見疾病,尊重差異,理解幫助他們不再孤單。 🌟官網:www.tfrd.org.tw/tfrd/home 🌟FB:reurl.cc/qVEbo0 🌟IG:www.instagram.com/tfrd_taiwan/ -- Hosting provided by SoundOn

PublishesDailyEpisodes27Founded2 years ago
Language
ZH-TW
Categories
EducationKids & Family

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Artwork for 聽罕見的聲音

Latest Episodes

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事是發生在一個名字叫「鯨魚」的小島上,熱鬧的海上嘉年華即將展開。今天,小傑和兩位好朋友進行了一場精采的冒險體驗,究竟發生什麼有趣的故事呢?請大家坐好,跟亮亮一起一探究竟吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

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Hosting provided by SoundOn

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事主角是古拉拉裁縫店的女兒-露娜。玩具王國每五年會辦理一次盛大的嘉年華會,現場會票選出王國最閃亮的人,但露娜身體會不定期的莫名腫脹、長環狀紅斑,就像皮膚長了顆小氣球,愛漂亮的露娜每當看到自己身上長了顆小氣球,就覺得自己像氣球人一樣,難過的一直哭,不敢見任何人,露娜的身體到底發生什麼事了呢?露娜最後能參加嘉年華會嗎?請大家坐好,聽亮亮說故事囉!」... more

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事主角是韋戈,韋戈是一位模範警察,盡心盡力守護著祥和市鎮的大小事,身為人民保母的韋戈,是如何擁有源源不絕的活力呢?究竟韋戈隱藏著什麼祕密呢?請大家坐好,用心聆聽,和亮亮一起找出韋戈的神祕超能量吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

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Hosting provided by SoundOn

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事主角是一位患有努南氏症的小朋友南南,南南和他的同學要一起完成一場啦啦隊比賽,究竟會發生什麼事呢,請大家坐好,跟亮亮一起一探究竟吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

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Hosting provided by SoundOn

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事主角是小裘,小裘從小便夢想著可以成為一名籃球員,但是為什麼小裘的腳開始漸漸無力,時常跌倒,甚至連走路都走不好,到底發生了甚麼事情?請大家坐好,跟亮亮一起一探究竟吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

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Hosting provided by SoundOn

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事主角是伊比斯星球的花花老師,花花老師常常帶學生到別的星球校外教學,可說是最受孩子們喜愛的老師呢!這一天,花花老師帶著孩子們來到「美麗達星球」,認識了巨大又美麗的多巴鳥,在聽到星球守護神─拉魯的故事後,竟然破解了花花老師的病痛之謎,到底發生了甚麼事情呢?請大家坐好,跟亮亮一起一探究竟吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

more

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事主角是安娜,安娜是一位喜愛大海的小海女,為了自己的夢想,勇於克服身體的不便,且勇敢面對未知的挑戰,想要知道安娜姐姐是如何追逐夢想的嗎?請大家坐好,跟亮亮一起一探究竟吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

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Hosting provided by SoundOn

亮亮:「哈囉!小朋友,我是不會發光的螢火蟲,同時也是保護罕見疾病小朋友的守護精靈亮亮,又到了說故事時間囉!Podcast前的小朋友,今天亮亮要跟大家說的故事發生在一間「神奇修理店」,據說在這裡,可以修理各式各樣的東西,讓許多人都慕名來到這裡,而這天,出現了一位客人,竟然提出了一個特別的請求…究竟發生了什麼事情呢?請大家趕快坐好,跟亮亮一起一探究竟吧!」

以上節目由「財團法人觀樹教育基金會」贊助製作。

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Hosting provided by SoundOn

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