The Voices of MED13L
The MED13L Foundation"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research... more
| Publishes | Monthly | Episodes | 7 | Founded | 5 months ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | ScienceLife Sciences | |||
Listen to this Podcast
Latest Episodes
Growing Up With MED13L: Life at Age 12
In this episode of The Voices of MED13L, we launch our new Growing Up With MED13L series with a powerful and honest conversation titled “Life at 12.” Host Vanessa is joined by fellow MED13L parent Katie Johnsto... more
Welcome to The Voices of MED13L, the official podcast of the MED13L Foundation.
In this special trailer, host Vanessa Dias introduces Growing Up with MED13L — a new ongoing series that explores what life looks like for individuals with MED13L at eve... more
Mini Episode: 13 Minutes with MED13L
Host: Katie Boychuck, Chair of the MED13L Foundation
In this first-ever 13 Minutes with MED13L mini-episode, Foundation Chair Katie Boychuck walks families step-by-step through Citizen Health—a secure, easy-to-u... more
Episode 2: Introducing Phil Buta & Why Surveys Matter
In this episode, we welcome Phil Buta, the newest leadership voice at The MED13L Foundation. With nearly 20 years in nonprofit work, Phil shares what inspired him to join our community and how he... more
Recent Guests
Hosts
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #155 |  Canada/Science/Life Sciences |
Apple Podcasts | #223 |  United Kingdom/Science/Life Sciences |
Apple Podcasts | #87 |  France/Science/Life Sciences |
Talking Points
Recent interactions between the hosts and their guests.
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
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Frequently Asked Questions About The Voices of MED13L
What is The Voices of MED13L about and what kind of topics does it cover?
This podcast focuses on MED13L syndrome, a rare genetic disorder that impacts development and communication. It provides a platform for stories from families, insights from experts, and valuable information for navigating life with this condition. Episodes emphasize the importance of community, advocacy, and collective learning, offering listeners a sense of hope and connection. The content ranges from individual experiences to discussions on medical information and educational tools, making it a supportive resource for anyone affected by MED13L syndrome or interested in understanding this condition more.
Where can I find podcast stats for The Voices of MED13L?
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How many listeners does The Voices of MED13L get?
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What are the audience demographics for The Voices of MED13L?
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How many subscribers and views does The Voices of MED13L have?
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Which podcasts are similar to The Voices of MED13L?
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How many episodes of The Voices of MED13L are there?
The Voices of MED13L launched 5 months ago and published 7 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact The Voices of MED13L?
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Where can I see ratings and reviews for The Voices of MED13L?
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What guests have appeared on The Voices of MED13L?
Recent guests on The Voices of MED13L include:
1. Katie Johnston
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