
"The Voices of MED13L" is a podcast dedicated to raising awareness, sharing stories, and building community around MED13L syndrome—a rare genetic disorder that affects development and communication. Each episode highlights the voices of families, experts, and advocates working to understand and navigate life with MED13L. From personal journeys and medical insights to educational tools and research... more
| Publishes | Monthly | Episodes | 13 | Founded | 10 months ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | ScienceLife Sciences | |||

In this special research update episode of Voices of MED13L, Rowan Dias opens with reflections from the World Orphan Drug Congress and the MED13L Foundation’s first year participating in the Million Dollar Bike Ride before introducing a recorded comm... more
An Honest Look at MED13L, Our Community, and the Foundation Behind It
MED13L Awareness Month Special | May 2026
This Awareness Month, host Vanessa Dias gets honest — about the spectrum of MED13L, the families the foundation hasn't yet heard from, a... more
Growing Up with MED13L: Life at 14
In this episode of Voices of MED13L, we continue our Growing Up with MED13L series with an honest look at the teenage years. Host Vanessa Dias is joined by Chelsea and Vern Klassen, who share what life looks like t... more
In this episode of Voices of MED13L, we continue our series Growing Up with MED13L with a powerful, in-depth look at the teenage years. Host Vanessa Dias is joined by fellow MED13L parent Michelle Seaver, who shares what life looks like for her 16-ye... more
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How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #143 | |
Apple Podcasts | #215 | |
Apple Podcasts | #86 | |
Apple Podcasts | #185 |
Recent interactions between the hosts and their guests.
Listeners, social reach, demographics and more for this podcast.
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A compassionate, family-focused show that centers MED13L syndrome through conversations with parents, caregivers, and expert guests. Across episodes, listeners encounter real-world parenting journeys, education supports, and the daily realities of living with a rare genetic condition, from early diagnosis and communication challenges to puberty, independence, and long-term planning. The show frequently features updates on research initiatives, patient registries, and community resources, plus practical guidance for families navigating health systems, schools, and clinical studies. Noteworthy is the recurring emphasis on community building, advocacy, and data-driven research, often grounded in personal stories and actionable steps for famili... more
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The Voices of MED13L launched 10 months ago and published 13 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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Recent guests on The Voices of MED13L include:
1. Chelsea Clausen
2. Vern Clausen
3. Michelle Seaver
4. Abigail Sveden
5. Anna Fracalossi
6. Katie Johnston
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