Over 1,600 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This weekly podcast is for them. -A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of CURE SYNGAP1. CURE SYNGAP1 is a parent-led public charity in the US that strives to accelerate research into treatments for SYNGAP1 s... more
Publishes | Weekly | Episodes | 186 | Founded | 5 years ago |
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Number of Listeners | Categories | Non-ProfitHealth & FitnessBusinessMedicine |
Friday, October 3, 2025. Week 40.
#SyngapCenus 1,675 curesyngap1.org/blog/syngap1-census-2025-update-39-q3-2025-total-1675/
Rachel J. made an educator handout curesyngap1.org/blog/supporting-students-with-syngap1-related-disorders/ more
Wednesday, October 1st, 2025. Week 40.
SYNGAP1 Related Disorders secured an ICD-10 code exactly four years ago today, through the advocacy of SRF and the hard work of volunteers like Hans Schlecht. Our code is F78.A1
Blog: curesyngap1.org/... more
Friday, September 26, 2025. Week 39.
In this episode of Syngap10, we continue the conversation from Episode 183, sharing the latest milestones and moments with our SYNGAP1 community.
DSC has announced!
DSC (part of RDCRN, part of NCATS, part of NI... more
Friday, September 26, 2025. Week 39.
In #S10e182 I told you about CAMP4, don’t miss that, watch here: www.youtube.com/watch?v=PZ0Oj-Zz-B0 Sharing research comments from William Blair & Wedbush
William Blair Initiation of Coverage: “Among se... more
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SYNGAP10 podcast connects the patient and family community with the most current and most important action items, new concepts, news, and encouragement. The content not only gives transparency into what is happening within and around SynGAP Resesrch Fund, but it informs everyone who listens — SYNGAP1 families, researchers, biotech and Pharma, other partners and advocates in genetic disorders — informs and by extension aligns us all toward accelerating the availability of effective, safe treatmen... more
This podcast has been a lifeline on my journey as a Syngap mom. It's packed full with information, support, updates and community. Thank you Mike and SRF.
If you work with kids/adults with SYNGAP, you need to follow this podcast.
So much passion. Great resource.
If you have a loved one with syngap1 you need to listen to this every week.
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #95 | |
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Apple Podcasts | #111 | |
Apple Podcasts | #135 | |
Apple Podcasts | #182 | |
Apple Podcasts | #196 |
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CURE SYNGAP1 PODCAST aka SYNGAP10 launched 5 years ago and published 186 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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