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SMA News & Perspectives

SMA News Today
Spinal Muscular Atrophy
SMA (spinal Muscular Atrophy)
SMA News Today
Disability Advocacy
Palm Springs
SMA Conference
Healthcare
SMA
Jenna Vega
Tanya Vega
Bionews
Athens, Greece
European Network On Independent Living
Independent Living Greece (iliving)
Parenting With SMA
SMA Community
Life Coaching
Entrepreneurship
Mental Health
Anaheim, United States

Daily, digital coverage of the latest SMA news and perspectives.

PublishesInfrequentlyEpisodes512Founded9 years ago
Category
Health & Fitness

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Artwork for SMA News & Perspectives

Latest Episodes

In episode 158, host Kevin Schaefer talks with Alberto Lopez from Los Angeles County, California. Alberto is a consultant and a father of three daughters, one of whom has SMA. He discusses adapting to his daughter's diagnosis years ago, connecting wi... more

In episode 157, host Kevin Schaefer talks with Delphine Andrews from Durham, North Carolina. Delphine is a life coach and disability advocate living with SMA. She talks with Kevin about her journey toward accepting herself, advocating for others, and... more

In episode 156, host Kevin Schaefer talks with Maylan Chavez and Sory Rivera, two friends with SMA who host the “Access Granted” podcast together. Maylan is from Hialeah, Florida, and Sory is from Tyler, Texas. They talk about the evolution of their ... more

In episode 155, host Kevin Schaefer talks with Jasmine Jackson from Vancouver, Washington. Jasmine is a development and marketing manager, digital creator, and also a mother living with SMA type II. She talks about growing up with SMA, her journey to... more

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Recent Guests

Alberto Lopez
Single father raising three daughters, youngest diagnosed with SMA (SMA2)
Los Angeles County, California
Episode: #158: Alberto Lopez -A single father talks about raising his daughter with SMA
Delphine Andrews
Life coach and disability advocate living with SMA
Self-employed/Disability advocacy
Episode: #157: Delphine Andrews - Life coach and disability advocate with SMA
Sory Rivera
Advocate, speaker, Co-host of Access Granted Podcast
SMA community, Access Granted podcast
Episode: #156: Maylan Chavez and Sory Rivera: Friends and podcast hosts with SMA
Maylan Chavez
Advocate, speaker, Co-host of Access Granted Podcast
SMA community, Access Granted podcast
Episode: #156: Maylan Chavez and Sory Rivera: Friends and podcast hosts with SMA
Jasmine Jackson
Development and marketing manager; digital creator
Vancouver, Washington (self-described)
Episode: #155: Jasmine Jackson, digital creator and mother with SMA
Damon Vincent
Adaptive fitness specialist and personal trainer
Train Unique, Adaptive Fitness Coalition
Episode: #154: Coach Damon Vincent, adaptive fitness specialist
Kamil Goungor
Disability activist, SMA Type 2 advocate, travel blogger
European Network on Independent Living; Independent Living Organization of Greece (iLiving); The Traveller blog
Episode: #152: Kamil Goungor, Disability activist
Anton Paras
Director of Performance Marketing and Growth at Bionews
Bionews
Episode: #151: Anton Paras, marketing executive in digital health
Jenna Vega
SMA Type 2 advocate and wife of Tanya Vega
Palm Springs, CA
Episode: #150: Jenna and Tanya Vega share their love story

Host

Kevin Schaefer
Host of SMA News Today Podcast with expertise in SMA coverage and community stories.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

#154: Coach Damon Vincent, adaptive fitness specialist
Q: How did you balance building your organization with the day-to-day realities of coaching and managing a growing program?
It required embracing trial and error, creating scalable training through certifications like the Adaptive Fitness Coalition, and always putting the athlete's needs and safety first while expanding access to more gyms.
#154: Coach Damon Vincent, adaptive fitness specialist
Q: What was your first experience of doing any kind of personal training?
It happened in 2014 with an athlete who had cerebral palsy; that client became my first formal training relationship, and I've been training people from many backgrounds since then.
#151: Anton Paras, marketing executive in digital health
Q: What shifted for you after that experience in terms of your perspective on accessibility and representing the SMA community in marketing?
Anton emphasizes increased motivation to drive awareness, the importance of representation in corporate America, and a commitment to openness and authentic engagement to reach people who may not know about SMA.
#151: Anton Paras, marketing executive in digital health
Q: What were your biggest takeaways from the day we spent at Disneyland with the SMA community and the broader conference?
Anton highlights the tight-knit, welcoming nature of the SMA community, the impact of meeting Kevin in person after a long remote relationship, and the insights gained about park accessibility and how to communicate these needs to help improve future experiences.
#151: Anton Paras, marketing executive in digital health
Q: Anton, to get started, can you just tell listeners a little bit about yourself and your background?
Anton describes his journey to Bionews as driven by a passion for mission-driven health work, his prior experience at Healthline, and his focus on growing communities within rare diseases through performance marketing and cross-functional collaboration.

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Frequently Asked Questions About SMA News & Perspectives

What is SMA News & Perspectives about and what kind of topics does it cover?

This show centers on spinal muscular atrophy (SMA) news, lived experience, advocacy, and community-building within the SMA ecosystem. Episodes feature personal journeys of families and individuals touched by SMA, alongside professionals in healthcare, adaptive fitness, disability rights, and entrepreneurship. Highlights include navigating treatments and trials, conference experiences, caregiving dynamics, independent living, and creating accessible, inclusive spaces for disabled people and allies. Distinctive threads include peer-led storytelling, practical living strategies, and an emphasis on mental health, community support, and activism to widen opportunities for SMA communities and their networks.

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How many listeners does SMA News & Perspectives get?

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What are the audience demographics for SMA News & Perspectives?

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To see how many followers or subscribers SMA News & Perspectives has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to SMA News & Perspectives?

These podcasts share a similar audience with SMA News & Perspectives:

1. The Daily
2. The Gray Area with Sean Illing

How many episodes of SMA News & Perspectives are there?

SMA News & Perspectives launched 9 years ago and published 512 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact SMA News & Perspectives?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for SMA News & Perspectives?

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What guests have appeared on SMA News & Perspectives?

Recent guests on SMA News & Perspectives include:

1. Alberto Lopez
2. Delphine Andrews
3. Sory Rivera
4. Maylan Chavez
5. Jasmine Jackson
6. Damon Vincent
7. Kamil Goungor
8. Anton Paras

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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