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SCI Care: What Really Matters

International Spinal Cord Society (ISCoS)
Spinal Cord Injury
Degenerative Cervical Myelopathy
Iscos
Peer Support
Cauda Equina Syndrome
Physiotherapy
Clinical Practice Guidelines
Remidy Trial
United Kingdom
Australia
Climate Change
Frankel Classification
Spinal Cord Independence Measure
Data Standardization
Cognitive Impairment
Time Is Spine
Spinal Cord Injuries Australia
Engage Program
Core Outcome Set
Neurosurgery

A podcast series brought to you by the International Spinal Cord Society (ISCoS). With each episode, we will speak with experts from all over the world to discuss various aspects of spinal cord injury including etiology, prevention and care, providing valuable insights regarding the most up to date information for those providing care for the spinal cord injured. Collaboration is the key and at th... more

PublishesMonthlyEpisodes99Founded6 years ago
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Artwork for SCI Care: What Really Matters

Latest Episodes

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Dr. Alexander (Sasha) Rabchevsky joins Dr. Michael Fehlings to discuss autonomic and cardiovascular control after spinal cord injury, promising neuromodulation results, and the future of SCI research 

Learning goals:

• Cover the i... more

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Caroline Treanor chats with Dr. Michael Fehlings about degenerative cervical myelopathy (DCM) structured rehabilitation approaches as well as the highly anticipated upcoming ReMiDY trial. 

Learning objectives:

• What is degenerati... more

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Dr. Michael Fehlings is joined by Dr. Chester Ho – one of the new Associate Editors at Spinal Cord.  The conversation covers Dr. Ho’s perspectives on the current state of spinal cord injury research and opportunities for implementin... more

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Dr. Michael Fehlings is joined by Dr. Mohit Arora to discuss his recent publication in Spinal Cord “Evidence-based recommendations for health professionals to improve care of people with spinal cord injury and cognitive impairment: ... more

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Recent Guests

Sasha Rabchevsky
Professor of Physiology at the University of Kentucky; inaugural faculty member of the spinal cord and brain injury research institute; person with lived experience of spinal cord injury
University of Kentucky
Episode: A discussion with Dr. Sasha Rabchevsky on current advances in spinal cord injury research
Caroline Treanor
Researcher in Physiotherapy, Beaumont Hospital Dublin; School of Physiotherapy, Royal College of Surgeons in Ireland
Beaumont Hospital Dublin; Royal College of Surgeons in Ireland
Episode: Evaluating the role of structured rehabilitation in mild degenerative cervical myelopathy- the ReMiDY trial
Chester Ho
Associate Editor in Spinal Cord, University of Alberta
University of Alberta
Episode: Perspectives of a New Associate Editor of Spinal Cord - Professor Chester Ho on “Time is Spine” and other hot topics in Spinal Cord Injury
Mohit Arora
PhD, physiotherapist, Deputy Head and Senior Research Fellow at the John Walsh Center for Rehabilitation Research
University of Sydney
Episode: Evidence-based recommendations for health professionals to improve care of people with spinal cord injury and cognitive impairment: An update to the psychosocial clinical practice guide
Gill Hilton
Occupational therapist with long-standing involvement in spinal cord injury peer support
Unspecified (historical context in Australia)
Episode: SCI Peer Support: The what, the how, and the why?
Teri Thorson
Manager of Peer Coaching and Outreach with Spinal Cord Injury BC
Spinal Cord Injury BC
Episode: SCI Peer Support: The what, the how, and the why?
Erik Bernstein
Peer mentor in rehabilitation unit, RG Active Rehabilitation (Sweden)
RG Active Rehabilitation
Episode: SCI Peer Support: The what, the how, and the why?
Fin Biering-Sørensen
Emeritus Professor of Neurorehabilitation
University of Copenhagen
Episode: Opportunities for Data Standardization to Enhance Spinal Cord Injury Research
Markaly Alexander
Physical medicine and rehabilitation professor, Marcus Neuroscience Institute/Cornell Institute for Rehabilitation Medicine (as described in intro)
Marcus Neuroscience Institute / Cornell Institute for Rehabilitation Medicine
Episode: SCI and the Climate Crisis: From Impact to Action

Host

Michael Fehlings
Host of multiple SCI-related episodes; Editor-in-Chief of Spinal Cord; professor at University of Toronto

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Talking Points

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Finding meaning and purpose after spinal cord injury: Reflecting on 5 years of the Engage Program
Q: Emily, do people of the same age group tend to form groups together or are groups mixed by age?
Groups are open to any age; while groups sometimes form with younger women or older men, the underlying shared experience of spinal cord injury allows cross-age connection, and participants still connect meaningfully across age ranges.
SCI and the Climate Crisis: From Impact to Action
Q: What are two immediate actions SCI clinicians can take to address climate-related risks for patients?
Start conversations with patients about disaster planning and heat exposure, and advocate for tangible adaptations like cooling strategies, evacuation planning, and power backup solutions.
Experiencing cauda equina syndrome and its aftercare in the UK
Q: And Nish, perhaps you could summarize the key points of this article.
The article aimed to fill a gap in patient voice for cauda equina syndrome, using semi-structured interviews to identify the main outcomes that matter to patients, including four major themes related to physical health, fragmented care, adjustment, and anticipatory anxiety, and to demonstrate that this is a chronic condition needing ongoing management beyond acute treatment.
Evaluating the role of structured rehabilitation in mild degenerative cervical myelopathy- the ReMiDY trial
Q: What does 'structured rehabilitation' entail for these patients, and how might it differ from typical rehabilitation for neck pain or other conditions?
Structured rehabilitation for mild DCM must account for spinal cord injury signs, ensure exercises do not worsen injury, and be tailored to the motor and sensory preservation present, with careful attention to who delivers the therapy and how long it lasts.
Evaluating the role of structured rehabilitation in mild degenerative cervical myelopathy- the ReMiDY trial
Q: Can you talk through the design considerations for the ReMiDY trial and why structured rehabilitation is being prioritized for mild DCM?
The trial design uses a framework-based approach to develop a complex rehabilitation intervention, ensuring a clear scientific rationale, structured components, and appropriate dosing to address the specific needs of mild DCM and avoid exacerbating spinal cord injury.

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Frequently Asked Questions About SCI Care: What Really Matters

What is SCI Care: What Really Matters about and what kind of topics does it cover?

This series centers on spinal cord injury care, research, and policy, featuring expert clinicians, researchers, and clinicians-researchers from leading institutions around the world. Episodes cover translational SCI advances (neural stimulation, autonomic health, and early intervention), non-surgical rehabilitation approaches, rapid-decompression and care pathways, psychosocial aspects of living with SCI, guideline development, and data standardization to accelerate research. A consistent thread is improving patient outcomes through timely care, evidence-based practice, and actionable insights for clinicians, administrators, and researchers. Notable strengths include cross-country perspectives, practical care pathways, emphasis on patient v... more

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What guests have appeared on SCI Care: What Really Matters?

Recent guests on SCI Care: What Really Matters include:

1. Sasha Rabchevsky
2. Caroline Treanor
3. Chester Ho
4. Mohit Arora
5. Gill Hilton
6. Teri Thorson
7. Erik Bernstein
8. Fin Biering-Sørensen

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