Rephonic
Artwork for Rare Enough
Head For the Cure
Brain Cancer
Glioblastoma
Brain Tumors
Neuro-Oncology
Cancer Treatment
Quality Of Life
Patient Support
Health Disparities
Brain Tumor
Clinical Trials
Head For the Cure Foundation
Women's Health
Join Your Path To Hope
Team Little Owl
Community Support
Community Fundraising
Immunotherapy
Event Planning
Neurocytoma

The Rare Enough Podcast, hosted by DJ Stewart, a GBM survivor, dives deep into the world of brain cancer awareness, support, and research, inspired by the mission of the Head for the Cure Foundation. Each episode features compelling conversations with patients, caregivers, researchers, and advocates, sharing their unique experiences and insights. We explore a variety of topics, from the latest adv... more

PublishesTwice monthlyEpisodes37Founded2 years ago
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Artwork for Rare Enough

Latest Episodes

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Renowned sportscaster Danny Parkins joins host DJ Stewart to share how his career behind the microphone has become a force for change far beyond sports. Danny reflects on his early days in broadcasting, the origins of his first radiot... more

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In this episode of the Rare Enough Podcast, host DJ Stewart sits down with Dr. Phillip “Jay” Storm, Chief of Neurosurgery at The Children’s Hospital of Philadelphia and a leader in pediatric brain tumor research. Together, they explor... more

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Our newest episode of the Rare Enough Podcast features Kansas City’s beloved meteorologist, cancer survivor, and passionate advocate for the brain cancer community, Gary Lezak. In this inspiring conversation, Gary opens up about his p... more

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In this episode, DJ talks with Unsha Bakker, a dedicated nurse navigator, about her vital role in guiding patients and caregivers through brain tumor diagnoses. She shares her journey into nursing, the barriers underserved communities... more

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Recent Guests

Dr. Phillip Jay Storm
A top pediatric neurosurgeon and leader in research and innovation
Children's Hospital of Philadelphia (CHOP)
Episode: Shining a Light on Pediatric Brain Tumors with Dr. Phillip "Jay" Storm
Gary Lezak
Pioneer in weather prediction and cancer survivor
Weather 2020
Episode: Forecasting Hope: Gary Lezak’s Cancer Journey
Dr. Akhavan
Radiation oncologist specializing in immunotherapy and CAR T-cell therapy
University of Kansas Medical Center
Episode: Engineering Hope: Dr. Akhavan on Car T- Cells & Immunotherapy
Erin Gaffney
Fellow brain tumor survivor and Head for the Cure ambassador
Head for the Cure
Episode: Hope in the Fight: Erin Gaffney’s Oligodendroglioma Journey
Zach Toole
Omaha firefighter, paramedic, and caregiver
Head for the Cure
Episode: Still Fighting the Fire: Zach Toole’s Caregiver Journey
Ally Ponticello
Occupational therapist and caregiver
Episode: Occupational Therapy & Caregiving: Practical Support from Ally Ponticello
Luke Anderson
Founder of the Lori Project, inspired by his mother who battled glioblastoma.
Lori Project
Episode: Navigating Grief with Luke Anderson
Evie Fisher
Sister of Allie, a childhood cancer victim.
Episode: How the Fisher Family Channeled Their Grief into "Team Little Owl" to Advocate for Childhood Cancer Awareness
Kelly Fisher
Mother of Evie and Allie, advocate for childhood cancer awareness.
Episode: How the Fisher Family Channeled Their Grief into "Team Little Owl" to Advocate for Childhood Cancer Awareness

Host

DJ Stewart
Host of the podcast and a GBM survivor, sharing his journey and engaging with guests on topics related to brain cancer awareness, treatment, and community support.

Reviews

4.9 out of 5 stars from 42 ratings
  • Inspiring & Thought-Provoking

    This podcast will change your perspective on living! Every single episode is filled with thought provoking conversations, compassion, humor, and deep life lessons. Don’t miss an episode! DJ, thank you for sharing your heart. You show such compassion and love for your guests! You are a warrior!

    Apple Podcasts
    5
    Bnedes
    United Statesa year ago
  • Powerful & inspiring

    This podcast truly is going to change the world. It inspires, educates, and empowers others and their families to fight GBM and brain cancers. I am so proud of what they have done and continue to do!

    Apple Podcasts
    5
    Kyliemelillo
    United States2 years ago
  • Powerful

    This podcast has the power to continue to change lives across the country. The genuine heart behind the show and the passion for giving a true platform to HFTC and the brain tumor community is what will help elevate this community to a new level. Truly meeting people where they’re at and letting their voice be heard so they know they aren’t alone. Love to see it. Great job team!

    Apple Podcasts
    5
    KatieRodman
    United States2 years ago
  • F***Cancer

    You guys are amazing and I am so honored to be a part of your journey! So proud of you both!

    Apple Podcasts
    5
    Lyngrl
    United States2 years ago
  • #DJ&ErinSTRONG #FU€KCANCER

    So excited to hear and follow this podcast!

    Apple Podcasts
    5
    stayseawolf
    United States2 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Audiences are moved by the personal journeys featured, often expressing gratitude for the openness and support fostered through discussions.
The show is praised for its educational content, empowering individuals in the brain cancer community with valuable insights and advocacy.
Listeners appreciate the heartwarming and inspiring stories shared, highlighting the compassion and authenticity in each episode.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Shining a Light on Pediatric Brain Tumors with Dr. Phillip "Jay" Storm
Q: How can families contribute to Pediatric Brain Tumor Data Banks?
Families can provide tissue samples and consent to contribute to data banks, even after treatment begins, helping in research and future advancements.
Shining a Light on Pediatric Brain Tumors with Dr. Phillip "Jay" Storm
Q: What are some of the common types of brain tumors found in children?
Low-grade gliomas and tumors in the posterior fossa are common, often presenting with symptoms like headaches and vomiting.
Shining a Light on Pediatric Brain Tumors with Dr. Phillip "Jay" Storm
Q: Why is it so important to treat pediatric brain tumors differently than adult tumors?
Pediatric tumors develop due to different mechanisms related to the child's developmental growth, requiring a holistic approach to treatment that addresses the child's overall health and development.
Navigating Grief with Luke Anderson
Q: What is the Lori Project?
The Lori Project offers free resources and paid consultations with alternative healers for individuals dealing with complex diagnoses like glioblastoma.
Navigating Grief with Luke Anderson
Q: Can you tell us about your mother before the diagnosis?
She was an incredible artistic creative who raised me and my sister as a single mom and instilled in us the importance of creativity and problem-solving.

Audience Metrics

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Frequently Asked Questions About Rare Enough

What is Rare Enough about and what kind of topics does it cover?

This podcast focuses on raising awareness and providing support for individuals affected by brain cancer, featuring in-depth conversations with survivors, caregivers, medical professionals, and advocates. It highlights personal stories of resilience against the backdrop of a community committed to fighting brain cancer through education, advocacy, and the sharing of experiences. Episodes cover a range of topics, from innovative treatment advances in oncology to the emotional journeys of those impacted by brain tumors, fostering a sense of hope and connection among listeners.

Where can I find podcast stats for Rare Enough?

Rephonic provides a wide range of podcast stats for Rare Enough. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Rare Enough and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Rare Enough get?

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What are the audience demographics for Rare Enough?

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How many subscribers and views does Rare Enough have?

To see how many followers or subscribers Rare Enough has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Rare Enough?

These podcasts share a similar audience with Rare Enough:

1. The Mel Robbins Podcast
2. Crime Junkie
3. New Heights with Jason & Travis Kelce

How many episodes of Rare Enough are there?

Rare Enough launched 2 years ago and published 37 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Rare Enough?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Rare Enough?

Rephonic pulls ratings and reviews for Rare Enough from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

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How do I access podcast episode transcripts for Rare Enough?

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What guests have appeared on Rare Enough?

Recent guests on Rare Enough include:

1. Dr. Phillip Jay Storm
2. Gary Lezak
3. Dr. Akhavan
4. Erin Gaffney
5. Zach Toole
6. Ally Ponticello
7. Luke Anderson
8. Evie Fisher

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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