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MPN Pod: Stories from the Marrow

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MPN Pod: Stories from the Marrow is a podcast about Myeloproliferative Neoplasms (MPNs) and is intended for patients, caregivers, providers, and the greater community impacted by MPNs. Each episode, MPNPod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: MPN Pod: Stories from the Mar... more

PublishesInfrequentlyEpisodes21Founded3 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for MPN Pod: Stories from the Marrow

Latest Episodes

The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients, caregivers, clinicians, and advocates. Kay and Josh revisit key themes like ... more

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On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocacy, the importance of credible information, and how... more

YouTube

On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by people living with polycythemia vera (PV) and other r... more

YouTube

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her experiences with advocating for her own health, and ... more

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Reviews

5.0 out of 5 stars from 22 ratings
  • Lovely

    This show is a good reminder of how important it is to find your support when faced with a difficult diagnosis, and really helpful to hear about resources and how to advocate for yourself. Just a lovely look into what can be a quite scary and overwhelming journey for people with PV

    Apple Podcasts
    5
    ShuaBragg
    United States3 years ago
  • A great listen to learn from

    Educational nuggets with great voice talent!

    Apple Podcasts
    5
    JLRichie818
    United States3 years ago
  • So creative and informative!

    Terrific storytelling for an advocacy podcast. Love the hosts, love the guests!

    Apple Podcasts
    5
    AJB2787
    United States3 years ago
  • PV Pod 👍🏻

    very informative, very friendly!

    Apple Podcasts
    5
    K8680
    United States3 years ago
  • Informative and refreshing!

    Great show! The hosts are really really good. It feels more like some friends (smart ones!) talking about PV rather than medical people. Love this show!

    Apple Podcasts
    5
    Hopscotch03
    United States3 years ago

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MPN Pod: Stories from the Marrow launched 3 years ago and published 21 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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