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Artwork for MPN Pod: Stories from the Marrow

MPN Pod: Stories from the Marrow

BloodStream Media
Polycythemia Vera
Shared Decision Making
Rare Diseases
Pharmaessentia
Support Network
Patient Education
Doctor-Patient Relationship
PV Patient Community / Advocacy
Patient Empowerment Network
PV Pod Stories From the Marrow
Myeloproliferative Neoplasms
Facebook
Uncertainty
Caregivers
Community/support Groups
Believe Limited
Peace Together PV
MD Anderson Cancer Center
Tour Mont Blanc

MPN Pod: Stories from the Marrow is a podcast about Myeloproliferative Neoplasms (MPNs) and is intended for patients, caregivers, providers, and the greater community impacted by MPNs. Each episode, MPNPod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: MPN Pod: Stories from the Mar... more

PublishesMonthlyEpisodes24Founded3 years ago
Number of ListenersCategories
MedicineHealth & Fitness

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Artwork for MPN Pod: Stories from the Marrow

Latest Episodes

In this episode of The MPN Pod, hosts Kay and Josh sit down with Dr. Tony Hunter, an MPN specialist and associate professor at Emory University, for a comprehensive ET 101. Dr. Hunter breaks down what essential thrombocythemia is, how it's diagnosed ... more

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On this episode of the MPN Pod, hosts Kay and Josh welcome back fan-favorite guest Gary Linehan, a 56-year-old educator and avid hiker living with polycythemia vera, for an update on his journey since his Season 1 appearance. Gary shares how a change... more

YouTube

In this season three premiere of the MPN Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg interview Dr. Tyler Parsons, a postdoctoral researcher at Washington University who studies myeloproliferative neoplasms (MPNs) and is himself a p... more

YouTube

The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients, caregivers, clinicians, and advocates. Kay and Josh revisit key themes like ... more

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Key Facts

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Recent Guests

Gary Linehan
Bostonian, educator, hiker, and patient living with PV
Independent individual
Episode: Catching up with Gary Linehan: Living with PV and his Next Big Adventure
Dr. Tyler Parsons
PV patient and post-doctoral researcher studying MPN biology
Washington University School of Medicine in St. Louis
Episode: A Young Patient's Journey: Balancing Career and Polycythemia Vera
Saleh Shadeed
Hematologist and medical oncologist
MD Anderson Cancer Center
Episode: A 2025 Year in Review for Polycythemia Vera
Lucia Masaruba
Patient advocate
MD Anderson Cancer Center (presenting context)
Episode: A 2025 Year in Review for Polycythemia Vera
Tracy Rode
CEO of the Patient Empowerment Network
Patient Empowerment Network
Episode: Self-Empowerment & Polycythemia Vera
Al Freedman
Psychologist specializing in rare diseases and lived experience parent
Independent psychologist (Northbrook, IL)
Episode: Managing Your PV and Mental Health
Susan Brooks
65-year-old PV patient, former nursing educator, advocate
PV patient living with PV
Episode: Self Advocacy in Polycythemia Vera: A Patient's Perspective
Dr. Lucia Masarova
Associate Professor; co-leader of the Myeloproliferative Neoplasms sessions in the leukemia department
MD Anderson Cancer Center
Episode: Shared Decision Making in Polycythemia Vera
Cheri Clark
Healthcare professional with PV experience; long career in nursing and vaccination clinics
Independent healthcare professional (resides in NC; home in St. Louis)
Episode: Shared Decision Making in Polycythemia Vera

Hosts

Kay Vermille
Host with a consistent presence across PV-focused programming; associated with Believe Limited and PV Pod Stories from the Marrow.
Josh Bragg
Co-host contributing to show discussions and guest coordination across PV Pod episodes.

Reviews

5.0 out of 5 stars from 24 ratings
  • Great resource

    Love this pod and look forward to every new episode!

    Apple Podcasts
    5
    Boy named sue 2
    United States4 months ago
  • Lovely

    This show is a good reminder of how important it is to find your support when faced with a difficult diagnosis, and really helpful to hear about resources and how to advocate for yourself. Just a lovely look into what can be a quite scary and overwhelming journey for people with PV

    Apple Podcasts
    5
    ShuaBragg
    United States3 years ago
  • A great listen to learn from

    Educational nuggets with great voice talent!

    Apple Podcasts
    5
    JLRichie818
    United States3 years ago
  • So creative and informative!

    Terrific storytelling for an advocacy podcast. Love the hosts, love the guests!

    Apple Podcasts
    5
    AJB2787
    United States3 years ago
  • PV Pod ๐Ÿ‘๐Ÿป

    very informative, very friendly!

    Apple Podcasts
    5
    K8680
    United States3 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

The show combines personal PV journeys with clear medical context, making complex topics approachable.
Listeners appreciate accessible explanations of PV and practical self-advocacy tips.
Guests and storytelling feel collaborative and supportive, not overly clinical.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Catching up with Gary Linehan: Living with PV and his Next Big Adventure
Q: What advice would Gary give to someone just diagnosed with PV?
Gary emphasizes accepting emotions, seeking expert guidance, keeping a positive attitude, and recognizing that PV is manageable with a personalized plan.
Catching up with Gary Linehan: Living with PV and his Next Big Adventure
Q: How did Gary end up finding a treatment plan that works so well for him?
Gary describes assembling a trusted care team of doctors, nutritionists, and a cardiologist in Boston, which helped tailor a holistic lifestyle and effective PV management.
Self Advocacy in Polycythemia Vera: A Patient's Perspective
Q: So, who are we talking to today?
Susan Brooks, a 65-year-old PV patient with a background in nursing education, who shares her journey and self-advocacy approach.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
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Social Media Reach

Frequently Asked Questions About MPN Pod: Stories from the Marrow

What is MPN Pod: Stories from the Marrow about and what kind of topics does it cover?

This program focuses on polycythemia vera (PV) and related myeloproliferative neoplasms, blending patient experiences with clinical context, research updates, and practical guidance for navigating treatment, daily living, and advocacy. Episodes frequently cover disease management (medication options, monitoring, and lifestyle), patient-physician communication, shared decision-making, caregiver perspectives, and building support networks. A notable strength is its emphasis on patient empowerment, credible information sources, and real-world tips delivered through relatable storytelling and clinician insights. The show tends to feature both individual PV journeys and discussions with clinicians, researchers, and patient advocates, offering ac... more

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These podcasts share a similar audience with MPN Pod: Stories from the Marrow:

1. The Mel Robbins Podcast

How many episodes of MPN Pod: Stories from the Marrow are there?

MPN Pod: Stories from the Marrow launched 3 years ago and published 24 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on MPN Pod: Stories from the Marrow?

Recent guests on MPN Pod: Stories from the Marrow include:

1. Gary Linehan
2. Dr. Tyler Parsons
3. Saleh Shadeed
4. Lucia Masaruba
5. Tracy Rode
6. Al Freedman
7. Susan Brooks
8. Dr. Lucia Masarova

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