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pRETTy happy. | Hope and Rett syndrome

Sarah and Sam

Bringing families and friends together from the Rett syndrome community to discuss life, research, and just have fun. New episodes are released every other Monday morning!

PublishesWeeklyEpisodes64Founded4 years ago
Categories
Kids & FamilyParenting

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Artwork for pRETTy happy.

Latest Episodes

We know it's been a minute since we released an episode - but we're still here. more

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a year ago

We're excited to have you back for another great episode. On this episode, we talk with Usree Bhattacharya about her family's journey with Rett syndrome. But first, we share with you a little about how the pRETTy happy. shop can save you money on ada... more

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a year ago
YouTube

On this week's podcast, we share three things about Daybue aka Trofinetide that we learned from the community webinar hosted by Acadia Pharmaceuticals. We talked a little more about what improvements and changes were seen during the last 12-week tria... more

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a year ago
YouTube

On today's top three, we looked at the headlines to see what was new for Rett syndrome. We found great information on the history of Trofinetide as well as information about the end of the clinic trial. If you haven't heard about Trofinetide yet, it ... more

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a year ago
YouTube

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Reviews

4.8 out of 5 stars from 13 ratings
  • Much Love

    ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Love listening to people who UNDERSTAND ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ Thank you for this podcast.

    Apple Podcasts
    5
    ghyhghugrjj
    United States2 years ago
  • So amazing!

    Thank you so much for giving me the words and tools to help my rett girl and our family!! This podcast is invaluable. Keep it up you guys.

    Apple Podcasts
    5
    Samsetksa
    United States2 years ago
  • Mecp2

    Please talk more about Mecp2 itโ€™s a rare disease as well and absolutely goes along with Rett.

    Apple Podcasts
    3
    Caru_k
    United States2 years ago

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