PNRI Science: Rare Disease, Real Progress
PNRIWe’re back with Season 2 of our podcast PNRI Science–this time recorded live at PNRI’s 2025 Rare Disease Day symposium. It was a day full of energy, insight, and shared purpose, as scientists, clinicians, advocates, and industry leaders came together to accelerate rare disease research and treatment. Hosted by Jack Faris, CEO of the Pacific Northwest Research Institute, and his daughter, actor and... more
| Publishes | Weekly | Episodes | 12 | Founded | a year ago |
|---|---|---|---|---|---|
| Categories | Natural SciencesNon-ProfitBusinessScience | ||||
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Latest Episodes
“In the rare disease space, zebras really do exist. They need care just like everybody else.” — Fran Akoh, Ultragenyx Pharmaceutical
In the final episode of our Rare Disease Day 2025 podcast series, we hear from two industry leaders who are helping... more
“To really understand these diseases, you need to work together—clinicians, researchers, families. That’s how we make progress.” — Jessica Ayers
What drives scientists and clinicians to dedicate their careers to rare disease research?
In this ep... more
"What is stopping Owen from having a treatment is funding—not science." —Lindsay Topping Scheutz
How do personal stories fuel scientific progress in the world of rare diseases?
In this episode of PNRI Science: Rare Disease, Real Progress, we he... more
"Rare disease research is shaping the way almost all biomedical research will be carried forward in the future." — Dr. Jack Faris
What does it take to make real progress in the fight against rare diseases?
In this episode of PNRI: Rare Disease, ... more
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Apple Podcasts | #136 |  Mexico/Science/Natural Sciences |
Apple Podcasts | #218 |  Taiwan/Science/Natural Sciences |
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Frequently Asked Questions About This Podcast
What is This Podcast about and what kind of topics does it cover?
Exploring the complexities of rare diseases and the collaborative efforts needed in research and treatment, this podcast features intimate conversations with a diverse array of stakeholders, including scientists, clinicians, and advocates. Episodes recorded live at events showcase personal stories and insights that highlight the unifying theme of collaboration in advancing science, especially regarding understanding and addressing rare diseases. Themes often include the importance of patient involvement, the emotional weight of advocacy, and the innovative solutions developed through partnerships across healthcare, academia, and industry.
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How many episodes of this podcast are there?
this podcast launched a year ago and published 12 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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What guests have appeared on this podcast?
Recent guests on this podcast include:
1. Dr. Aimée Dudley
2. Dr. Cláudia Carvalho
3. Dr. Michael Metzger
4. Dr. Lisa Stubbs
5. Dr. Rick McLaughlin
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