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On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards
Aphasia
Stroke
Brain Injury
Better Conversations With Aphasia
Support Systems
Neuroplasticity
Communication Challenges
Community Support
Mental Health
Communication
Music
Dementia
Caregivers
Rehabilitation
Inclusion
Disability Awareness
Australian Aphasia Association
Music Therapy
Epilepsy
Darlington

Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia

1. Initial Incident:

In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for me... more

PublishesMonthlyEpisodes28Founded2 years ago
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Health & FitnessPersonal JournalsSociety & CultureMental Health

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Latest Episodes

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AI and Aphasia: Overcoming Communication Barriers

In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communica... more

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Transformative Power of Music Therapy with Elizabeth Nightingale

In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The dis... more

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International Aphasia Awareness Campaign with Claire Bennington

In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an exper... more

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Overcoming Aphasia: Robert Baldock’s Journey and Advocacy

This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting i... more

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Recent Guests

Elizabeth Nightingale
Qualified neurologic music therapist specializing in stroke and brain injury
Chilton Music Therapy
Episode: On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
Claire Bennington
Chairperson of the Australian Aphasia Association and a UK-trained speech and language therapist
Australian Aphasia Association
Episode: International Aphasia Awareness Campaign with Claire Bennington
Iain Stansfield
A stroke survivor and participant in 'Better Conversations with Aphasia' therapy group
Episode: Navigating Conversations with Aphasia: Insights from Iain Stansfield
Dr. Suzanne Beeke
Researcher and leader of the therapy group aimed at improving conversations for individuals with Aphasia.
UCL (University College London)
Episode: Navigating Conversations with Aphasia: Insights from Iain Stansfield
Dan Sutton
Survivor of a cycling accident with severe head injuries resulting in aphasia
Episode: Dan's Journey: Triumph Over Aphasia
Sarah Petherbridge
Disability awareness trainer, public speaker, and consultant for deaf charities
Episode: Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge
Talia Lazarus
Presenter, broadcaster, and host of Mental Health Podcast, 'I Got Back Up'.
Episode: Resilience and Recovery: Talia Lazarus' Inspiring Journey
Tamsin Keyes
Publications and Research Manager at Headway, the Brain Injury Association
Headway, the Brain Injury Association
Episode: Brain Injury and Returning to Work - Tamsin Keyes of Headway
Graham Hall
Professional percussionist who experienced aphasia after a stroke
Opera North
Episode: Bring on the nouns - Graham Hall's take on Aphasia

Hosts

Jonathan Hirons
Co-host who shares his personal journey of recovery following his stroke and the impact of aphasia on communication.
Rob Edwards
Co-host who contributes to discussions about recovery and the significance of community support in managing aphasia.

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Talking Points

Recent interactions between the hosts and their guests.

International Aphasia Awareness Campaign with Claire Bennington
Q: How does fundraising work for you?
We have different methods for raising income, including memberships, grant applications, and events like long lunches.
International Aphasia Awareness Campaign with Claire Bennington
Q: What about your involvement with the Aphasia Association in Australia? What's your role?
I'm currently the chairperson, having joined the board back in 2018, and I've been involved in various committees and roles since then.
On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
Q: How do you show, tell people how does it actually exist? Obviously, you've got a website. Are you doing other things other than the website?
We've been doing a lot on social media and reaching out to existing relationships with hospitals to raise awareness.
On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
Q: Tell me a little bit about Chilton Music Therapy, because it's an interesting organization.
Chilton Music Therapy is a non-profit social enterprise providing music therapy services across various demographics, with a focus on patients from premature babies to palliative care.
Emma Rich: Battling Aphasia and Advocating for Neuro Rehab
Q: Perhaps you can start by letting everybody know what happened to you and your Aphasia.
Emma describes her severe brain hemorrhage, being classified as brain dead, undergoing an emergency craniotomy, and her journey to recovery.

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Frequently Asked Questions About On the tip of my tongue

What is On the tip of my tongue about and what kind of topics does it cover?

Discussions focus on personal journeys with aphasia, a condition impacting communication due to brain damage, often following strokes. The episodes highlight individual stories, coping strategies, and the importance of therapy and community support in recovery. Key themes include the emotional and physical challenges faced by those with aphasia, advocacy for awareness, and the role of family and friends in the healing process. Unique to this series is its blend of firsthand accounts with broader discussions about aphasia's societal implications, making it not only an informative resource but also a community-building space for those affected by this misunderstood condition.

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On the tip of my tongue launched 2 years ago and published 28 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on On the tip of my tongue?

Recent guests on On the tip of my tongue include:

1. Elizabeth Nightingale
2. Claire Bennington
3. Iain Stansfield
4. Dr. Suzanne Beeke
5. Dan Sutton
6. Sarah Petherbridge
7. Talia Lazarus
8. Tamsin Keyes

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