Welcome to RARING, the voice of the rare disease community and a no-BS forum for patients and their families, rare disease patient organizations, and medical professionals. If you live with a rare disease or love someone who does, RARING is the podcast for you, by you, and with you every day. Tune in to hear leading experts discussing next-generation diagnostics and treatments. Learn from passiona... more
| Publishes | Twice monthly | Episodes | 39 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Categories | BusinessHealth & FitnessNon-ProfitMental Health | ||||
Listen to this Podcast
Latest Episodes
Today on NORDpod, Andrew MacDowell stands in for Matthew Zachary, and he welcomes Dr. Kathleen Donohue, Director of the Division of Rare Diseases and Medical Genetics, at the FDA’s Office of New Drugs. Over 350 million people worldwide have a rare di... more
You're in for a treat on today's episode of NORDpod as I welcome chronic illness advocate Sarah Pennington to the show. Since the age of 11, Sarah has been managing a condition known as Trichotillomania, a disorder that involves recurrent, irresistib... more
Rob Long is the Executive Director at Uplifting Athletes, a nonprofit organization that inspires the rare disease community with hope through the power of sport. In 1020, as a Pre-Season All-American playing for the Syracuse Orange Football team, he ... more
Bobby Foster is a content creator, a rapper/producer, a spoken word poet, and a certified life coach who was diagnosed with cystic fibrosis at birth. He graduated with a degree in creative writing from the University of Central Florida. Bobby is curr... more
Reviews
- Wonderful podcast.
I wish I would have found this podcast sooner. Having a rare disease myself, It has been so encouraging to hear others stories who are living with a rare disease. I would highly recommend this podcast.
Apple Podcasts5lKaup
United States3 years ago The host seemed unfocused so I stopped listening about halfway through. Not sure why so much focus on TikTok?
Also, we don't use the 's in disease names anymore. It's Gaucher disease, not Gaucher's disease.
Suggestion: it would be great to have a genetic counselor as the host. This would add credibility and a bit more medical clarity.
Podchaser14 years agosaj_67- So inspiring and informative
Matthew Zachary is HILARIOUS — how does he tackle such heavy topics so gracefully and adding a spark of joy and fun? It’s magic!
I feel warm and fuzzy after listening to each podcast — the voices and perspectives shared are SO INSPIRING.
I never miss an episode. This is one of my top 3 podcasts. THANK YOU NORD!!
Apple Podcasts5DebbieDoesDCUnited States5 years ago - Excellent
NORD is THE most helpful organization out there for resources for people with rare diseases. I’m thrilled about this podcast.
Apple Podcasts5narcolepsygirlUnited States5 years ago - Nancy
Great episode today!! Really enjoyed listening to it!! Looking forward to the next one!!
Apple Podcasts5Ndcn126United States5 years ago
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #209 |  Ireland/Health & Fitness/Mental Health |
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
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How many episodes of RARING are there?
RARING launched 5 years ago and published 39 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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