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Metabolically Speaking

Ajinomoto Cambrooke, Inc.
PKU
Inherited Metabolic Conditions
Metabolic Conditions
Phenylketonuria (PKU)
Metabolic Disorders
Flock Health
Phenylketonuria
GMP (glycomacropeptide)
Healthcare Education/transition To Adulthood
Mental Health
Newborn Screening
PKU Community/support Networks
Exercise
Nutrition
Cambrooke Therapeutics
University Of Wisconsin–madison
Cook For Love
Creatine and PKU
IVA
Norah

Metabolically Speaking with Maridith Baker. Rare conditions, Real stories.Living with a metabolic condition is about embracing more. More things you can do, more you can enjoy, and more adventures along the way.

Metabolically Speaking unpacks the perceived challenges facing individuals and families living with inherited metabolic conditions. Host Maridith Baker, who knows firsthand what it means t... more

PublishesMonthlyEpisodes11Foundeda year ago
Number of ListenersCategories
Health & FitnessNutrition

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Artwork for Metabolically Speaking

Latest Episodes

Finding Your Rare Disease Community: The Power of Being Seen

With Kevin Alexander

Kevin Alexander shares how living with a rare metabolic condition can often become deeply focused on the practical side of management from strict diets to clinics and ... more

Cooking for Love: Finding Hope After a PKU Diagnosis

With Brenda Winiarski 

Brenda Winiarski shares her journey from speech pathologist to chef, shaped by the moment her daughter was diagnosed with PKU through newborn screening. What began as fear a... more

Metabolically Speaking

Rare conditions, Real stories.

From Discovery to Daily Life: How GMP Transformed Nutrition for PKU

With Dr. Denise Ney and David Paolella

David and Denise share the story behind GMP and how its discovery transformed

the lands... more

Metabolically Speaking

Rare conditions, Real stories.

Finding Her Voice in Early Adolescence With PKU

With Norah and Staci

At 11 years old, Norah is learning to navigate early adolescence while living with

PKU - balancing school, friendships, jaz... more

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Recent Guests

Brenda Winiarski
Founder of Cook for Love, speech pathologist turned chef
Cook for Love
Episode: 9. Cooking for Love: Finding Hope After a PKU Diagnosis with Brenda Winiarski
Dr. Denise Ney
Professor of nutritional sciences at the University of Wisconsin–Madison, researcher on GMP for PKU
University of Wisconsin–Madison
Episode: 8. From Discovery to Daily Life: How GMP Transformed Nutrition for PKU With Dr. Denise Ney and David Paolella
David Paolella
Co-founder of Cambrooke Therapeutics, later involved in GMP-related product development
Cambrooke Therapeutics
Episode: 8. From Discovery to Daily Life: How GMP Transformed Nutrition for PKU With Dr. Denise Ney and David Paolella
Justin Hensley
Father navigating life with his son Micah who has IVA
Advocate in the IVA/metabolic community
Episode: 6. Thriving with Isovaleric Acidemia: Micah’s Journey with Justin Hensley
Sarah Chamberlin
Founder and executive director of Flock Health (formerly PKU News); advocate for the metabolic community
Flock Health
Episode: 5. Personal Advocacy, Collective Progress: A New Era in Metabolic Care with Sarah Chamberlin
Stephanie Hacker
Metabolic Dietitian and Newborn Screen Program Manager at the University of Miami Miller School of Medicine
University of Miami Miller School of Medicine
Episode: 4. Redefining Limits – Breaking Fitness Barriers in Metabolic Conditions with Stephanie Hacker
Brittany Murray
Nurse Practitioner in Genetics and Metabolism
Boston Children's Hospital, Metabolism Program
Episode: 3. From Patient to Practitioner – A PKU Story of Purpose, Passion, and Practice with Brittany Murray
Dr. Kendra Bjoraker
Pediatric neuropsychologist with specialized expertise in rare genetic and metabolic diseases
University of Minnesota; Children's Hospital Colorado; consultant in clinical care, research, and program development
Episode: 2. Navigating Mental Health with a Metabolic Condition – with Dr Kendra Bjoraker
Lynn Paolella
Founder of Cambrooke; community advocate
Cambrooke
Episode: 1. Advocacy, Community & Innovation – A Mom’s Journey with Lynn Paolella

Host

Maridith Baker
Host of Metabolically Speaking

Reviews

5.0 out of 5 stars from 4 ratings
  • Great information

    It’s a must listen to! So much great information!

    Apple Podcasts
    5
    Metabolically speaking
    United States6 months ago
  • A brilliant podcast on metabolic conditions

    Thank you Cambrooke for such an informative podcast on inherited metabolic diseases. Can’t wait to listen to more episodes!

    Apple Podcasts
    5
    HS RD
    United Kingdoma year ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Great information
It's a must listen to! So much great information!
A brilliant podcast on metabolic conditions. Can't wait to listen to more episodes!

Chart Rankings

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Talking Points

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5. Personal Advocacy, Collective Progress: A New Era in Metabolic Care with Sarah Chamberlin
Q: What are some best ways for families to support someone living with a metabolic condition?
Listening to the individual's preferences, advocating when appropriate, proactively planning (e.g., arranging meals ahead of time), and choosing the level of advocacy that suits the person, whether loud or quiet.
5. Personal Advocacy, Collective Progress: A New Era in Metabolic Care with Sarah Chamberlin
Q: What activities, tools, or programs does Flok offer to help individuals gain confidence and take an active role in their own care?
Flok offers apps for diet tracking and data collection, camp programs, local groups, educational resources, and a governance model where community members own and control their shared data, enabling advocacy and participation in research.
5. Personal Advocacy, Collective Progress: A New Era in Metabolic Care with Sarah Chamberlin
Q: How did your family's experience shape your goals and ultimately lead you to the creation of Flock Health?
Izzy's PKU diagnosis and the desire to avoid carrying a heavy diet book led to the How Much Fee app, which evolved into a broader platform (Flock Health) focused on community, data, and collaboration to improve care and drive research.
9. Cooking for Love: Finding Hope After a PKU Diagnosis with Brenda Winiarski
Q: For parents who are currently in the overwhelming early stage of a newborn diagnosis, what is your biggest piece of advice for shifting away from the initial fear and finding hope in Cooking for Love?
Join a supportive PKU community to see that life can still include celebration and tradition, start with a small, doable cooking project like a cake, and invite involvement from partners and children to build confidence; the kitchen becomes a source of empowerment and connection, not isolation.
9. Cooking for Love: Finding Hope After a PKU Diagnosis with Brenda Winiarski
Q: So the first question is, considering your transition to culinary school, what was your first recipe breakthrough that made it feel joyful and normal for both you and your daughter?
The first breakthrough was veggie nuggets, a frozen staple that could be prepared with low-protein ingredients and still felt like a real meal; it proved that cooking for PKU could be both practical and joyful, setting the stage for deeper culinary exploration and a celebratory graduation meal adapted for her.

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Frequently Asked Questions About Metabolically Speaking

What is Metabolically Speaking about and what kind of topics does it cover?

A podcast exploring inherited metabolic conditions through expert interviews and personal narratives, with a strong emphasis on practical strategies for families and individuals living with PKU and related disorders. Recent episodes center on practical nutrition innovations (like GMP), the lived experiences of families navigating daily life with PKU, and broader topics such as mental health, advocacy, community building, and access to care. Noteworthy angles include the integration of patient voices with industry and academia, practical tips for daily management, and a focus on building supportive communities that empower listeners to live fully despite constraints.

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These podcasts share a similar audience with Metabolically Speaking:

1. The Mel Robbins Podcast

How many episodes of Metabolically Speaking are there?

Metabolically Speaking launched a year ago and published 11 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on Metabolically Speaking?

Recent guests on Metabolically Speaking include:

1. Brenda Winiarski
2. Dr. Denise Ney
3. David Paolella
4. Justin Hensley
5. Sarah Chamberlin
6. Stephanie Hacker
7. Brittany Murray
8. Dr. Kendra Bjoraker

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