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Artwork for Livsfortællinger om sygdommen ALS – om sorg og kærlighed i en svær tid

Livsfortællinger om sygdommen ALS – om sorg og kærlighed i en svær tid

Muskelsvindfonden

I Muskelsvindfondens podcastserie om livet med ALS, møder du tre mennesker, som har ALS tæt inde på livet. Du møder Steen, som selv har ALS, Matilde som har en mor med ALS, og Lone der mistede sin mand efter et sygdomsforløb med ALS. ALS er en alvorlig diagnose, hvor forværring ofte sker fra dag til dag. Når et menneske får konstateret ALS, skaber det derfor uundgåelige forandringer for hele famil... more

PublishesDailyEpisodes3Founded5 years ago
Language
Danish
Categories
Personal JournalsSociety & Culture

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Artwork for Livsfortællinger om sygdommen ALS – om sorg og kærlighed i en svær tid

Latest Episodes

Mathilde er i 30erne, da hendes mor for den alvorlige diagnose ALS. Døden rykker tæt på, fordi mennesker med ALS gennemsnitlig lever 3 år med sygdommen. Mathilde valgte en åben tilgang til sygdommen og sorgen, selvom det kunne være svært at sætte ord... more

Steen har sygdommen ALS, og han opfordrer til åbenhed. Han fortæller om at give sorgen plads, og hvad det har betydet for ham og familien. For Steen betyder det meget for livskvaliteten, at han i hverdagen har fokus på alt det han kan, og ikke alt de... more

I podcasten med Lone, er der fokus på, hvordan en voldsom uvished og bekymring fylder, når dit livs kærlighed får stillet en hurtigt fremadskridende sygdom som ALS.  Hvor længe kan han leve med ALS? Hvordan hun som ægtefælle måtte acceptere en invasi... more

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