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If We Knew Then - Down Syndrome Podcast

Stephen and Lori Saux
Down Syndrome
Inclusion
Parenting
Education
Advocacy
Inclusive Education
Education System
Autism
Crohn's Disease
Individualized Education Programs
Reading Development
Speech Therapy
Poetry
Rockin' Dad Retreat
Forget Me Not
World Down Syndrome Day
Motherhood
Individualized Education Program
Citizens Of the World
R-Word

We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.

PublishesWeeklyEpisodes193Founded5 years ago
Number of ListenersCategories
ParentingKids & FamilyEducation

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Artwork for If We Knew Then

Latest Episodes

In this episode we revisit a conversation with our longtime pediatrician, Dr. Ilona Kleiner, who has been with our family since the day Sophia was born and has guided us through Liam’s journey with wisdom, honesty and compassion. Dr. Kleiner shares h... more

Today we  sit down with speech-language pathologist and author Janine Tang to talk about her new book "Play Dumb and Sabotage: Mindfully Under-Anticipating the Child’s Needs and Creating Opportunities to Practice Language". Drawing from more than two... more

In this episode, we discuss the challenges of a new school year and how we advocate to create a foundation of support for Liam, with the intentions of creating a narrative of inclusion.

Episode Transcript: ifweknewthen701833686.wordpress.com... more

In this episode Stephen and Lori sit down on a quiet summer morning to reflect on the season of transitions, both for their family and for their son Liam, who just graduated middle school. From the stillness of summer mornings to the in-between space... more

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Recent Guests

Dr. Ilona Kleiner
Pediatrician who treats children with a holistic approach including Down Syndrome
Pediatric Associates
Episode: 192. Choosing A Pediatrician with Dr. Ilona Kleiner
Janine Tang
Speech therapist and author, creator of the book 'Play Dumb and Sabotage'
Episode: 191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang
Melissa Kynoch
Mother of two, featured in the BBC documentary series 'Life and Birth' discussing her experiences with Down syndrome.
Down Syndrome community
Episode: 186. Life and Birth on Amazon Prime with Melissa Kynoch
Christina Aries
Former principal of Liam's school, expert on the adolescent brain
Episode: 183. The Adolescent Brain with Christina Aries - Part 1
Hilda Bernier
Documentarian and parent advocating for children's education
Forget Me Not Film
Episode: 181. Olivier and Hilda Bernier and Their IEP Experience
Hilda Maria Bernier
Producer of 'Forget Me Not' documentary, former special education teacher
Forget Me Not documentary
Episode: 179. Forget Me Not: Inclusion in the Classroom Documentary - Hilda & Olivier Bernier
Olivier Bernier
Director of 'Forget Me Not' documentary and father of Emilio
Forget Me Not documentary
Episode: 179. Forget Me Not: Inclusion in the Classroom Documentary - Hilda & Olivier Bernier
Steven Gustafson
Founding member of the band 10,000 Maniacs.
Episode: 176. Revisiting 10,000 Maniacs Founding Member Steven Gustafson
Sid Sarathy
A non-speaking poet who communicates using a letter board.
Episode: 175. Communicating Our Stories with Sid and Vaish Sarathy

Hosts

Lori Saux
Co-host and a parent advocating for Down syndrome awareness and acceptance. Shares personal insights and experiences on the podcast.
Stephen Saux
Co-host and dedicated advocate for children with Down syndrome. Focuses on educational rights and personal growth in parenting.

Reviews

5.0 out of 5 stars from 120 ratings
  • Excited to learn about these fellow parents in the Ds community

    I just heard about this podcast while listening to The Office Ladies (I’m about a year behind). My first episode was your wedding anniversary which struck a chord as my husband and I just celebrated our 20th this fall. We also have two kids (our oldest has Down syndrome) - so I’m looking forward to hearing more insights from you guys! Thank you!

    Apple Podcasts
    5
    V10264
    United States3 years ago
  • Empowering and Hopeful

    The interview with Jake Pratt was so wonderful. My first thought when I found out my baby would have Down syndrome was, “I will never get to take my child to college! He will never be independent, he will never drive!” And that is NOT TRUE! So grateful for Jake’s example.

    Apple Podcasts
    5
    Spraz
    United States4 years ago
  • This podcast makes me smile

    Stephen and Lori really put themselves out there in these wonderful, wide-ranging, and honest podcasts. As a dad of a young man with DS, it’s nice to tune in and listen to calm, thoughtful and deeply kind-hearted people covering personal subjects I don’t get around to (or avoid) thinking about. They make me think and smile, and that’s a gift. Thanks, Team Saux!

    ~ Brian, a dadvocate

    Apple Podcasts
    5
    DadvocateGuy
    United States4 years ago
  • Special Needs Mom

    This podcast has been such an encouragement to my heart during my first 9 months of adjusting to having a baby with Down Syndrome. Thank you for sharing your stories with us.

    Apple Podcasts
    5
    Ksweet24
    United States5 years ago
  • Encouraging

    This is such an encouraging and empowering podcast. Thank you for all you do for our kiddos!

    Apple Podcasts
    5
    A Childers
    United States5 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Listeners appreciate the combination of personal stories and expert guests, which provides both emotional and educational value.
The hosts are praised for their authenticity and relatability, often seen as a source of comfort and support.
Many reviews emphasize the importance of the topics discussed, noting that the podcast fills a gap in the resources available for parents of children with disabilities.
Listeners are finding the content both empowering and hope-inducing, highlighting how the podcast helps them cope with the challenges associated with parenting children with Down syndrome.

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

186. Life and Birth on Amazon Prime with Melissa Kynoch
Q: What was your feeling when you heard the diagnosis initially?
Initially devastated due to fears about compatibility with life, but felt relief when discovering Bertie's diagnosis was Down syndrome, focusing instead on his serious heart condition.
186. Life and Birth on Amazon Prime with Melissa Kynoch
Q: Can you tell us a little bit about your story for those who are listening who weren't able to get the entire show?
Melissa shares her story as an older mother excited about her pregnancy regardless of Bertie's Down syndrome diagnosis. She highlights her optimism and the love and support she has received, both from professionals and her community.
184. The Adolescent Brain with Christina Aries - Part 2
Q: How can parents harness the risk-taking behaviors of their middle schoolers?
By defining what risks they are comfortable with and allowing their children to explore within those boundaries.
184. The Adolescent Brain with Christina Aries - Part 2
Q: What does a middle schooler's drive for risk-taking look like?
It's related to their sensitivity to dopamine which pushes them to seek novel experiences to achieve happiness.
171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head
Q: What are ways in lifestyle that can help to address the occurrence of dementia?
Lifestyle factors such as exercise, social engagement, and a healthy diet, particularly the Mediterranean diet, can significantly reduce the risk of dementia.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

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Frequently Asked Questions About If We Knew Then

What is If We Knew Then about and what kind of topics does it cover?

Content is centered around the experiences of parenting children, particularly focusing on challenges and joys related to raising a child with Down syndrome. The hosts often share personal anecdotes, highlight advocacy for inclusive education, and discuss emotional topics surrounding identity and self-worth in the disability community. Through guest conversations, they explore broader themes such as motherhood, education strategies, and the importance of community support. This series stands out by creating a supportive environment for parents navigating similar challenges, offering not just informative content but also emotional encouragement.

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Which podcasts are similar to If We Knew Then?

These podcasts share a similar audience with If We Knew Then:

1. The Mel Robbins Podcast
2. The Lucky Few
3. Office Ladies
4. SmartLess
5. Dateline NBC

How many episodes of If We Knew Then are there?

If We Knew Then launched 5 years ago and published 193 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on If We Knew Then?

Recent guests on If We Knew Then include:

1. Dr. Ilona Kleiner
2. Janine Tang
3. Melissa Kynoch
4. Christina Aries
5. Hilda Bernier
6. Hilda Maria Bernier
7. Olivier Bernier
8. Steven Gustafson

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