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If We Knew Then - Down Syndrome Podcast

Stephen and Lori Saux
Down Syndrome
Inclusion
Parenting
Education
Advocacy
Inclusive Education
Education System
Autism
Crohn's Disease
Individualized Education Programs
Speech Therapy
Reading Development
Poetry
Rockin' Dad Retreat
Forget Me Not
World Down Syndrome Day
Motherhood
Individualized Education Program
Citizens Of the World
R-Word

We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.

PublishesTwice monthlyEpisodes198Founded6 years ago
Number of ListenersCategories
Kids & FamilyParentingEducation

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Artwork for If We Knew Then

Latest Episodes

We reconnect with Melissa Kynoch, whom many will remember from the BBC documentary Life and Birth. Millions of viewers around the world were inspired by Melissa’s positivity and grace when her son Bertie was born with Down syndrome. Now, fix years la... more

Beth Gibson, Founder & Executive Director of Buddy Up for Life/Buddy Up Tennis, founded Buddy Up for Life in 2008 when her then 3 ½-year-old son, Will, who has Down syndrome, wanted to play tennis with his older brother. Beth realized there was a voi... more

Here is another beautiful conversation we had with Dr. Vaish Sarathy and her son, poet Sid Ghosh who has published a book of poetry titled Yellow Flower Fills Me Whole. Sid has a duel diagnosis of Autism and Down syndrome and previously appeared on t... more

In this episode, we sit down with How I Met Your Mother co-creator Craig Thomas to talk about his new novel, That’s Not How It Happened. The novel is about a family whose lives are thrown into turmoil when a Hollywood producer turns their story into ... more

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Recent Guests

Sid Ghosh
A poet with a dual diagnosis of Down syndrome and autism
Episode: 195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh
Dr. Vaish Sarathy
Mother of Sid Ghosh and advocate for disability awareness
Episode: 195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh
Craig Thomas
Co-creator of How I Met Your Mother and author of That's Not How It Happened.
Episode: 194. That’s Not How It Happened: A Novel By Craig Thomas
Dr. Ilona Kleiner
Pediatrician who treats children with a holistic approach including Down Syndrome
Pediatric Associates
Episode: 192. Choosing A Pediatrician with Dr. Ilona Kleiner
Janine Tang
Speech therapist and author, creator of the book 'Play Dumb and Sabotage'
Episode: 191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang
Melissa Kynoch
Mother of two, featured in the BBC documentary series 'Life and Birth' discussing her experiences with Down syndrome.
Down Syndrome community
Episode: 186. Life and Birth on Amazon Prime with Melissa Kynoch
Christina Aries
Former principal of Liam's school, expert on the adolescent brain
Episode: 183. The Adolescent Brain with Christina Aries - Part 1
Hilda Bernier
Documentarian and parent advocating for children's education
Forget Me Not Film
Episode: 181. Olivier and Hilda Bernier and Their IEP Experience
Hilda Maria Bernier
Producer of 'Forget Me Not' documentary, former special education teacher
Forget Me Not documentary
Episode: 179. Forget Me Not: Inclusion in the Classroom Documentary - Hilda & Olivier Bernier

Hosts

Stephen Saux
Co-host contributing personal insights, experiences, and advocacy perspectives as a parent of a child with Down syndrome.
Lori Saux
Co-host sharing personal narratives, strategies, and experiences from a parental perspective regarding disability advocacy and education.

Reviews

5.0 out of 5 stars from 120 ratings
  • Excited to learn about these fellow parents in the Ds community

    I just heard about this podcast while listening to The Office Ladies (I’m about a year behind). My first episode was your wedding anniversary which struck a chord as my husband and I just celebrated our 20th this fall. We also have two kids (our oldest has Down syndrome) - so I’m looking forward to hearing more insights from you guys! Thank you!

    Apple Podcasts
    5
    V10264
    United States3 years ago
  • Empowering and Hopeful

    The interview with Jake Pratt was so wonderful. My first thought when I found out my baby would have Down syndrome was, “I will never get to take my child to college! He will never be independent, he will never drive!” And that is NOT TRUE! So grateful for Jake’s example.

    Apple Podcasts
    5
    Spraz
    United States5 years ago
  • This podcast makes me smile

    Stephen and Lori really put themselves out there in these wonderful, wide-ranging, and honest podcasts. As a dad of a young man with DS, it’s nice to tune in and listen to calm, thoughtful and deeply kind-hearted people covering personal subjects I don’t get around to (or avoid) thinking about. They make me think and smile, and that’s a gift. Thanks, Team Saux!

    ~ Brian, a dadvocate

    Apple Podcasts
    5
    DadvocateGuy
    United States5 years ago
  • Special Needs Mom

    This podcast has been such an encouragement to my heart during my first 9 months of adjusting to having a baby with Down Syndrome. Thank you for sharing your stories with us.

    Apple Podcasts
    5
    Ksweet24
    United States5 years ago
  • Encouraging

    This is such an encouraging and empowering podcast. Thank you for all you do for our kiddos!

    Apple Podcasts
    5
    A Childers
    United States5 years ago

Listeners Say

Key themes from listener reviews, highlighting what works and what could be improved about the show.

Feedback indicates a strong sense of community and support cultivated by the episodes, helping parents feel less isolated in their experiences.
Many mention the positive impact of the discussions on their outlook and understanding of Down syndrome and disability advocacy.
The podcast is seen as an invaluable resource that empowers parents navigating the challenges of raising children with disabilities.
Listeners appreciate the heartfelt, authentic storytelling and practical advice shared by the hosts and guests.

Chart Rankings

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Talking Points

Recent interactions between the hosts and their guests.

186. Life and Birth on Amazon Prime with Melissa Kynoch
Q: What was your feeling when you heard the diagnosis initially?
Initially devastated due to fears about compatibility with life, but felt relief when discovering Bertie's diagnosis was Down syndrome, focusing instead on his serious heart condition.
186. Life and Birth on Amazon Prime with Melissa Kynoch
Q: Can you tell us a little bit about your story for those who are listening who weren't able to get the entire show?
Melissa shares her story as an older mother excited about her pregnancy regardless of Bertie's Down syndrome diagnosis. She highlights her optimism and the love and support she has received, both from professionals and her community.
184. The Adolescent Brain with Christina Aries - Part 2
Q: How can parents harness the risk-taking behaviors of their middle schoolers?
By defining what risks they are comfortable with and allowing their children to explore within those boundaries.
184. The Adolescent Brain with Christina Aries - Part 2
Q: What does a middle schooler's drive for risk-taking look like?
It's related to their sensitivity to dopamine which pushes them to seek novel experiences to achieve happiness.
171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head
Q: What are ways in lifestyle that can help to address the occurrence of dementia?
Lifestyle factors such as exercise, social engagement, and a healthy diet, particularly the Mediterranean diet, can significantly reduce the risk of dementia.

Audience Metrics

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Frequently Asked Questions About If We Knew Then

What is If We Knew Then about and what kind of topics does it cover?

Focusing on the experiences of raising a child with Down syndrome, this series offers insightful discussions surrounding parenting challenges, healthcare advocacy, and educational rights. The hosts engage with experts and parents alike to explore topics such as individualized education programs (IEPs), pediatric care, disability pride, and personal testimonials from families navigating these challenges. By sharing authentic stories and expert advice, the aim is to empower listeners with knowledge and foster a supportive community that embraces the unique journeys of families with children who have special needs, particularly Down syndrome.

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Which podcasts are similar to If We Knew Then?

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1. The World and Everything In It
2. Office Ladies

How many episodes of If We Knew Then are there?

If We Knew Then launched 6 years ago and published 198 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on If We Knew Then?

Recent guests on If We Knew Then include:

1. Sid Ghosh
2. Dr. Vaish Sarathy
3. Craig Thomas
4. Dr. Ilona Kleiner
5. Janine Tang
6. Melissa Kynoch
7. Christina Aries
8. Hilda Bernier

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