HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
Publishes | Monthly | Episodes | 61 | Founded | 5 years ago |
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Number of Listeners | Categories | Non-ProfitBusiness |
In this episode, a patient shares her journey from undiagnosed Hereditary Angioedema (HAE) in childhood, through battles with severe attacks as an adult, to two years attack-free and counting due to a clinical trial with a new prophylactic treatment ... more
In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand.
Together, they discuss the key steps, challenges, and considerat... more
In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the safety and effectiveness of deucrictibant, an investig... more
In this month’s episode of the HAE Speaks podcast, Ionis Patient Education Managers, Danielle and Kia, talk to a certified mindfulness meditation teacher, Anne, about practices and tips for meditation that you can incorporate into your daily routine.... more
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i am 11 years old and i love this podcast it helped when i got my really bad attacks this has helped me so much with dealing with my hae
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #74 | |
Apple Podcasts | #237 |
Listeners, social reach, demographics and more for this podcast.
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HAE Speaks launched 5 years ago and published 61 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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