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HAE Speaks

US HAEA

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

PublishesMonthlyEpisodes61Founded5 years ago
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Latest Episodes

In this episode, a patient shares her journey from undiagnosed Hereditary Angioedema (HAE) in childhood, through battles with severe attacks as an adult, to two years attack-free and counting due to a clinical trial with a new prophylactic treatment ... more

In this episode, HAE Health Services Manager Troyce Venturella sits down with Marie, an individual living with HAE who has navigated the complexities of Medicare enrollment firsthand.

Together, they discuss the key steps, challenges, and considerat... more

In this episode of the HAE Speaks Podcast, Dr. Raffi Tachdjian (UCLA) and Pharvaris discuss the HAE CHAPTER-3 Study — a new HAE attack prevention trial currently enrolling. The study explores the safety and effectiveness of deucrictibant, an investig... more

In this month’s episode of the HAE Speaks podcast, Ionis Patient Education Managers, Danielle and Kia, talk to a certified mindfulness meditation teacher, Anne, about practices and tips for meditation that you can incorporate into your daily routine.... more

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Similar Podcasts

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#BeyondHAE Youth Produced Podcast
#BeyondHAE Youth Produced PodcastUS Hereditary Angioedema Association

Reviews

4.4 out of 5 stars from 7 ratings
  • hae patient

    i am 11 years old and i love this podcast it helped when i got my really bad attacks this has helped me so much with dealing with my hae

    Apple Podcasts
    5
    car4755
    United States4 years ago

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Which podcasts are similar to HAE Speaks?

These podcasts share a similar audience with HAE Speaks:

1. #BeyondHAE Youth Produced Podcast

How many episodes of HAE Speaks are there?

HAE Speaks launched 5 years ago and published 61 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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