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Artwork for A mom's journey with 22q11.2

A mom's journey with 22q11.2

Kristi Allen

I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

PublishesDailyEpisodes30Founded4 years ago
Categories
ParentingKids & Family

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Artwork for A mom's journey with 22q11.2

Latest Episodes

People with intellectual disabilities are often unaware of their personal hygiene. Teaching hygiene when they’re young may be helpful.

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4 years ago

Just some thoughts.

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4 years ago

All the events happening in the world right now are really confusing for anyone, but imagine how confusing it is for an individual with intellectual disabilities. Our conversations matter. These issues can bring fear and anxiety. It's our jobs as car... more

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4 years ago

It seems fitting to end this season now - when the world awaits the current coronavirus Cliffhanger. May God bless you in your journey, and know that I truly believe that God sends extra angels to protect families with special needs children.

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4 years ago

The thinking process can be interesting, and sometimes genuinely doesn't seem to make any sense. You can respond in different ways. That's YOUR choice, and, trust me when I say that can I say that empathetically. Either you can get frustrated, or ann... more

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4 years ago

Thinking for two can be EXHAUSTING! I personally believe that it means we're not only amazing, we're also freaking brilliant! Here's why!

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4 years ago

A person with 22q11.2 will (most likely) not have the same level of productivity that you have or that you'd like. You may not be okay with that, but they will, and sometimes it causes guilt.

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4 years ago

Brooke is 23 years old, has her nursing degree and has a 6 month old baby. The interview got cut short, (my phone rang) but I was pretty much done. I hope something is beneficial to someone.

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4 years ago

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