Rephonic
Artwork for Sarcoma Stories
Sarcoma
Sarcoma Foundation Of America
Synovial Sarcoma
Patient Advocacy
Mental Health
Caregiving
Clinical Trials
Cancer Advocacy
Healthcare System
Running
Ewing Sarcoma
Alveolar Rhabdomyosarcoma
Camino De Santiago
Race To Cure Sarcoma
Engagement
Chondrosarcoma
Self-Advocacy
Cancer Treatment
Grief
Patient Support

We're excited to announce, "Sarcoma Stories" a new podcast from SFA.

Sarcoma Stories is the only podcast highlighting the journey and experiences of people living and surviving sarcoma. Each episode will feature a guest sharing their sarcoma journey, resources they found valuable and more.

Search Sarcoma Stories on your favorite podcast platform and be sure to follow to get updates on our latest e... more

PublishesTwice monthlyEpisodes29Founded2 years ago
Number of ListenersCategories
BusinessPersonal JournalsNon-ProfitSociety & Culture

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Artwork for Sarcoma Stories

Latest Episodes

On this episode, in honor of Sarcoma Awareness Month, Brendan Locke shares the sarcoma journey of his wife, Melissa Locke. Brendan and Melissa have been vital in the advocacy work to get July nationally recognized as Sarcoma Awareness Month and you’l... more

YouTube

On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to young adult survivor and shares... more

YouTube

This week, we speak with Sarah Downey, an angiosarcoma patient, advocate, and writer. Sarah takes us through her diagnosis journey, which included misdiagnosis and dismissal of symptoms, all while navigating her senior year of college. Since her diag... more

YouTube

On this episode, we speak with Gianna Cericola, a survivor of Desmoplastic Small Round Cell Tumor (DSRCT for short). After two long years, she rang the bell signifying the end of active treatment just two weeks before we recorded this episode. We fee... more

YouTube

Key Facts

Accepts Guests
Contact Information
Podcast Host
Number of Listeners
Find out how many people listen to this podcast per episode and each month.

Similar Podcasts

People also subscribe to these shows.

Sarcoma Insight Podcast
Sarcoma Insight PodcastSarcoma Insight Podcast
This American Life
This American LifeThis American Life

Recent Guests

Sarah Downey
Writer, traveler, young adult cancer advocate
Echoes of Us RI
Episode: Sarah Downey
Gianna Cericola
DSRCT survivor, graphic designer, content creator
Individual survivor featured on the episode
Episode: Gianna Cericola
Tasha Nathan
Sarcoma Stories host and guest, sharing her personal journey
Sarcoma Foundation of America
Episode: Tasha Nathan
Pan Pantziarka
Director of Europe Strategy and Engagement at SFA, caregiver advocate
Sarcoma Foundation of America
Episode: Pan Pantziarka
Kate DeForge
Person with cardiac sarcoma, UPS subtype
Sarcoma Foundation of America
Episode: Kate & Kristen
Simone Cheatham
Member of the Race to Cure Sarcoma Chicago Committee
Race to Cure Sarcoma Chicago
Episode: Simone Cheatham
Julie Harp
Care partner to her son Don during his sarcoma journey
Episode: Julie Harp
Crystal Malaka
Survivor of malignant peripheral nerve sheath tumor (MPNST)
Episode: Crystal Mollica
Carol Haslam
A synovial sarcoma survivor and member of the Board of Sarcoma Cancer Ireland.
Sarcoma Cancer Ireland
Episode: Carol Haslam

Chart Rankings

How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.

Talking Points

Recent interactions between the hosts and their guests.

Sarah Downey
Q: In what ways did year two feel different?
She describes year two as more isolating and painful, with treatment side effects increasing and personal challenges persisting beyond cancer, yet she found meaning through writing, community, and staying focused on quality of life.
Sarah Downey
Q: How would you describe the act of self-advocacy?
She explains that self-advocacy is about recognizing one's own body and needs, pushing for timely care, and communicating with care teams without feeling ashamed for advocating for oneself.
Sarah Downey
Q: So Sarah, before we dive into your sarcoma story, tell us a little bit about yourself.
She introduces herself as a writer, traveler, and young adult cancer advocate from Rhode Island, detailing her education and her diagnosis during her senior year, which shaped her advocacy and writing work.
Pan Pantziarka
Q: What makes osteosarcoma treatments uniquely challenging, and how might future strategies differ from current approaches?
Osteosarcoma lacks easily actionable molecular subtypes, so treatments remain a one-size-fits-all approach. A shift toward targeting metastasis, especially to the lungs, or adopting subtype-agnostic strategies like therapies that interrupt metastatic seeding could offer broader benefits across sarcoma types.
Pan Pantziarka
Q: Based on your experience, when should someone consider TP53 testing in the context of Li-Fraumeni syndrome?
Testing criteria have evolved; it should be considered automatically if there is a family history of Li-Fraumeni or if a child presents with certain cancers at specific ages, such as adrenocortical carcinoma, with consensus growing toward broader testing as technology becomes cheaper and more accessible.

Audience Metrics

Listeners, social reach, demographics and more for this podcast.

Listeners per Episode
Gender Skew
Location
Interests
Professions
Age Range
Household Income
Social Media Reach

Frequently Asked Questions About Sarcoma Stories

What is Sarcoma Stories about and what kind of topics does it cover?

This show centers on personal journeys through sarcoma, with guests ranging from patients and survivors to caregivers and advocates, plus foundational voices from sarcoma organizations. Episodes emphasize navigating misdiagnoses and specialized care, survivorship and quality of life, family dynamics, and the broader policy and access issues that shape treatment. A consistent throughline is turning lived experiences into practical guidance—whether discussing fertility considerations during chemotherapy, the emotional toll of long survivorship, or how patient advocacy and community support can influence care, research, and resources. The format often blends intimate storytelling with calls to action for awareness, funding, and collaboration a... more

Where can I find podcast stats for Sarcoma Stories?

Rephonic provides a wide range of podcast stats for Sarcoma Stories. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Sarcoma Stories and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.

How many listeners does Sarcoma Stories get?

Rephonic provides a full set of podcast information for three million podcasts, including the number of listeners. View further listenership figures for Sarcoma Stories, including podcast download numbers and subscriber numbers, so you can make better decisions about which podcasts to sponsor or be a guest on. You will need to upgrade your account to access this premium data.

What are the audience demographics for Sarcoma Stories?

Rephonic provides comprehensive predictive audience data for Sarcoma Stories, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.

How many subscribers and views does Sarcoma Stories have?

To see how many followers or subscribers Sarcoma Stories has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.

Which podcasts are similar to Sarcoma Stories?

These podcasts share a similar audience with Sarcoma Stories:

1. Sarcoma Insight Podcast
2. This American Life

How many episodes of Sarcoma Stories are there?

Sarcoma Stories launched 2 years ago and published 29 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

How do I contact Sarcoma Stories?

Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.

Where can I see ratings and reviews for Sarcoma Stories?

Rephonic pulls ratings and reviews for Sarcoma Stories from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.

View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.

How do I access podcast episode transcripts for Sarcoma Stories?

Rephonic provides full transcripts for episodes of Sarcoma Stories. Search within each transcript for your keywords, whether they be topics, brands or people, and figure out if it's worth pitching as a guest or sponsor. You can even set-up alerts to get notified when your keywords are mentioned.

What guests have appeared on Sarcoma Stories?

Recent guests on Sarcoma Stories include:

1. Sarah Downey
2. Gianna Cericola
3. Tasha Nathan
4. Pan Pantziarka
5. Kate DeForge
6. Simone Cheatham
7. Julie Harp
8. Crystal Malaka

To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.

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