Rising Up Rare
Allie LaddGiving Hope, Creating Action
The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1. Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raisin... more
| Publishes | Monthly | Episodes | 7 | Founded | a year ago |
|---|---|---|---|---|---|
| Categories | BusinessNon-Profit | ||||
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Latest Episodes
In this deeply moving episode of Rising Up Rare, host Ali Lad sits down with fellow NPS1 mom and warrior, Brooke Biddle, to explore the emotional and medical journey of raising her daughter Finley through a rare disease diagnosis, bone marrow transpl... more
What would you do if your newborn was diagnosed with a fatal rare disease at just 7 days old?
In this powerful episode of Rising Up Rare, host Allie Ladd, Executive Director of the Kennedy Ladd Foundation, speaks with Emma Mizer, mom to 18-month-old ... more
Jude McCaleb is a joyful 9-year-old from Tennessee who loves sports, farming, and collecting sports cards. Diagnosed with MPS1 attenuated at almost eight years old, Jude has overcome countless obstacles with faith, strength, and determination. His st... more
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Apple Podcasts | #51 |  Saudi Arabia/Business/Non-Profit |
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1. Crime Junkie
2. The Toast
3. Something Was Wrong
4. Radio Rental
How many episodes of Rising Up Rare are there?
Rising Up Rare launched a year ago and published 7 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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