Rare Disease Discussions
Peter Ciszewski, CheckRareNews and clinical perspective including CME programs focused on rare diseases. CheckRare focuses on rare and neglected diseases.
| Publishes | Daily | Episodes | 187 | Founded | 5 years ago |
|---|---|---|---|---|---|
| Number of Listeners | Categories | MedicineHealth & Fitness | |||
Listen to this Podcast
Latest Episodes
Dinesh Patel, PhD, CEO of Protagonist Therapeutics, discusses the New Drug Application (NDA) submission to the US Food and Drug Administration (FDA) for rusfertide to treat adults with polycythemia vera (PV).
PV is characterized by excess red blood ... more
Shunji Tomatsu, MD, PhD, Professor and Head, Nemours Children’s Health, Delaware, USA; Alessandra d’Azzo, PhD, Emerita Faculty, Genetics, St. Jude Children’s Research Hospital, Tennessee, USA; Merve Emecen Sanli, MD, Associate Professor, Department o... more
Duarte C. Barral, PhD, Associate Professor, NOVA Medical School, NOVA University of Lisbon, Portugal; Nuno Raimundo, PhD, Associate Professor, Department of Cellular and Molecular Physiology; Penn State College of Medicine, Pennsylvania, USA; Betul C... more
Oral Alpan, MD, Immunologist, Amerimmune, Virginia, USA; Svenja Keller, PhD student, University of Zurich, Switzerland; Shoshana Revel-Vilk, MD, PhD, Director, Gaucher Unit & Pediatric Hematology/Oncology Unit, Shaare Zedek Medical Center, Jerusalem,... more
Mia Horowitz, PhD, Tel Aviv University; Aitor Aguirre, PhD, Michigan State University, Michigan, USA; and Ying Sun, PhD, University of Cincinnati, discuss the use of organoid models in lysosomal disorder research and drug development.
This continuin... more
Stephan Stern, PhD, DABT, Director of Research and Development, Nanotechnology Characterization Lab (NCL), Frederick National Laboratory for Cancer Research, Maryland, USA; and Ruben Boado, PhD, Professor of Medicine, University of California at Los ... more
Behzad Najafian, MD, Professor, Department of Laboratory Medicine & Pathology, Department of Medicine at the University of Washington, Washington, USA discusses the use of artificial intelligence in identifying and managing lysosomal disorders.
This... more
Julie A. Parsons, MD
Haberfield Endowed Chair in Pediatric Neuromuscular Disorders
Professor of Clinical Pediatrics and Neurology
University of Colorado School of Medicine, Children's Hospital Colorado
Aurora, CO, USA
How have programs adapted to t... more
Key Facts
Recent Guests
Reviews
- Great info on rare diseases
Excellent information
Apple Podcasts5PeterMacUser
United States5 years ago - Great information
Good information on rare diseases
Apple Podcasts5Luke McSpedonUnited States5 years ago
Listeners Say
Key themes from listener reviews, highlighting what works and what could be improved about the show.
Chart Rankings
How this podcast ranks in the Apple Podcasts, Spotify and YouTube charts.
Apple Podcasts | #42 |  Austria/Health & Fitness/Medicine |
Apple Podcasts | #163 | Austria/Health & Fitness |
Top Medicine Podcasts
Talking Points
Recent interactions between the hosts and their guests.
Audience Metrics
Listeners, social reach, demographics and more for this podcast.
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Frequently Asked Questions About Rare Disease Discussions
What is Rare Disease Discussions about and what kind of topics does it cover?
This show centers on rare diseases with a strong emphasis on clinical perspectives, emerging therapies, and practical patient management. Across episodes, guests explore gene therapies for lysosomal storage disorders, early diagnosis and monitoring of LSDs, diagnostic challenges and treatment options for CIDP, and the evolving therapeutic landscape in conditions like ITP, iTTP, hemophilia, myasthenia gravis, mastocytosis, PFIC, and FOP. The hosts often highlight unmet clinical needs, the impact of diagnostics on patient outcomes, and the real-world implications of new therapies, from safety and tolerability to quality of life and access. A notable strength is the blend of specialist clinicians, researchers, and patient-centered perspectives... more
Where can I find podcast stats for Rare Disease Discussions?
Rephonic provides a wide range of podcast stats for Rare Disease Discussions. We scanned the web and collated all of the information that we could find in our comprehensive podcast database. See how many people listen to Rare Disease Discussions and access YouTube viewership numbers, download stats, audience demographics, chart rankings, ratings, reviews and more.
How many listeners does Rare Disease Discussions get?
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What are the audience demographics for Rare Disease Discussions?
Rephonic provides comprehensive predictive audience data for Rare Disease Discussions, including gender skew, age, country, political leaning, income, professions, education level, and interests. You can access these listener demographics by upgrading your account.
How many subscribers and views does Rare Disease Discussions have?
To see how many followers or subscribers Rare Disease Discussions has on Spotify and other platforms such as Castbox and Podcast Addict, simply upgrade your account. You'll also find viewership figures for their YouTube channel if they have one.
How many episodes of Rare Disease Discussions are there?
Rare Disease Discussions launched 5 years ago and published 187 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
How do I contact Rare Disease Discussions?
Our systems regularly scour the web to find email addresses and social media links for this podcast. We scanned the web and collated all of the contact information that we could find in our podcast database. But in the unlikely event that you can't find what you're looking for, our concierge service lets you request our research team to source better contacts for you.
Where can I see ratings and reviews for Rare Disease Discussions?
Rephonic pulls ratings and reviews for Rare Disease Discussions from multiple sources, including Spotify, Apple Podcasts, Castbox, and Podcast Addict.
View all the reviews in one place instead of visiting each platform individually and use this information to decide if a show is worth pitching or not.
How do I access podcast episode transcripts for Rare Disease Discussions?
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What guests have appeared on Rare Disease Discussions?
Recent guests on Rare Disease Discussions include:
1. Christine Eleeson
2. Raphael Schiffmann
3. Maya Kineen
4. Nicola Longo
5. William Burns, MD
6. David Warnock
To view more recent guests and their details, simply upgrade your Rephonic account. You'll also get access to a typical guest profile to help you decide if the show is worth pitching.