PSC Mami
Monika AldarondoPSC Mami: Stories at the intersection of PSC and parenthood. You are diagnosed with a rare, incurable disease. You are young. You had a vision for your future. You wanted kids. But can you? As a parent you want the best for your kids, but then they are diagnosed with PSC, what does their future hold? People who have been there talk about how a diagnosis of Primary Sclerosing Cholangitis, a rare au... more
| Publishes | Monthly | Episodes | 19 | Founded | 6 years ago |
|---|---|---|---|---|---|
| Categories | MedicineHealth & Fitness | ||||
Listen to the Podcast
Latest Episodes
Joanne found community and mission after her son was diagnosed with pediatric PSC over 15 years ago more
Stuart makes life changes after PSC diagnosis to spend more time with his family Stuart made a conscious decision to make time for his children and spouse when his Primary Sclerosing Cholangitis diagnosis focused him on what was important in his life... more
Laura realigned her life after her diagnosis of Primary Sclerosing Cholangitis. She refocused on family, friends, fun and her dream of becoming an author. Her writing served many purposes at different times, including as long letters to her three dau... more
Jennifer’s experience with organ transplantation comes full circle from agreeing to donate a loved ones organs to being the recipient of part of her husband’s liver through a living donor transplant. She shares her struggles with end-stage autoimmune... more
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Reviews
- Love
Thank you so much for this podcast. I was shared this from a member of one of the psc groups on Facebook. I am also a mama of two boys living with PSC. Thank you for putting this out there for so many that might not have known. I will be sharing as well and getting in touch with you. Stay healthy
Apple Podcasts5Tigger45012
United States2 years ago - PSC with kids
Hi, I found your podcast through psc partners. I, too, am a mom of two children and would like to connect. Thank you for starting this podcast, it gives me hope
Apple Podcasts5DWilliams18United States5 years ago
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PSC Mami launched 6 years ago and published 19 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.
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