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Artwork for Our Fight to Breathe: A Cystic Fibrosis Podcast

Our Fight to Breathe: A Cystic Fibrosis Podcast

Caleigh Haber-Takayama
Cystic Fibrosis
Advocacy
Organ Donation
Community Support
Healthcare System
Health Care Challenges
Mental Health
Patient Advocacy
Cystic Fibrosis Foundation
Transplant Games
LGBTQIA+ Community
Healthcare Insurance
Caregivers
Trikafta
Health Care Access
Grief
Cystic Fibrosis Care Centers
Chronic Illness
Athletic Training
Healthcare Advocacy

This is the Fight2Breathe podcast, hosted by Caleigh Haber, a cystic fibrosis survivor and two-time double lung transplant recipient. The podcast aspires to be the go-to platform for the CF community, featuring powerful personal stories, expert insights, and the latest advancements in CF care. Each episode engages individuals living with CF, their families, caregivers, and medical professionals, f... more

PublishesDailyEpisodes13Founded6 months ago
Categories
EducationMedicineHealth & Fitness

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Artwork for Our Fight to Breathe: A Cystic Fibrosis Podcast

Latest Episodes

In this powerful episode of Our Fight to Breathe, host Caleigh Haber sits down with her close friend Nick Di Brizzi Jr., a double lung and kidney transplant recipient who has turned his journey with cystic fibrosis into a mission of hope and service.... more

In this powerful episode of Our Fight to Breathe, host Caleigh Haber welcomes KC White, Chair of the Board of Trustees at the Cystic Fibrosis Foundation and a leading voice in the CF community. KC, who holds a Master's degree in Applied Positive Psyc... more

In this episode, host Caleigh Haber interviews her personal CF physician, Dr. Patricia Eshaghian, Director of the Adult Cystic Fibrosis Program at UCLA Health.

Dr. Eshaghian shares her journey into CF care and explains why specialized, accredited CF... more

Join host Caleigh Haber as she welcomes Ben Mudge, a fitness coach, cystic fibrosis advocate, and author of the upcoming book Fitness Without Limits. Born with CF and diagnosed at three days old, Ben has transformed his approach to health from a mili... more

Key Facts

Accepts Guests
Accepts Sponsors
Contact Information
Podcast Host

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It's a Lung Story: Aging and Cystic Fibrosis
It's a Lung Story: Aging and Cystic FibrosisDr. Ahmet Uluer and Lauren Harvey

Recent Guests

Nick Di Brizzi Jr.
Actor and athlete with cystic fibrosis, founder of the Breathe Like a Boss Foundation.
Breathe Like a Boss Foundation
Episode: Navigating Daily Life with CF
KC White
Leading advocate in the CF community with over two decades of experience
Cystic Fibrosis Foundation
Episode: Cystic Fibrosis’s Impact on Mental Health
Ben Mudge
Fitness coach, cystic fibrosis advocate, and author of the upcoming book 'Fitness Without Limits'
Episode: Fitness and Nutrition in Managing CF
Caleb Remington
A cystic fibrosis patient and advocate
At Us The Remingtons
Episode: The Trikafta Experience
Tiffany Remington
Wife and caregiver of Caleb Remington, advocate for cystic fibrosis awareness
At Us The Remingtons
Episode: The Trikafta Experience
Emily Kromar-Golinkoff
A nationally recognized speaker and thought leader, founder of Emily's Entourage
Emily's Entourage
Episode: Advocacy in Action
Aaron Stocks
Senior Manager of Case Management and Operations at the Cystic Fibrosis Foundation's Compass Program
Cystic Fibrosis Foundation
Episode: Navigating the Complexities of the Healthcare System
Diane Shader Smith
Tireless advocate for cystic fibrosis awareness and mother of Mallory, who lived with cystic fibrosis and authored several books.
Episode: Coping with Grief and Keeping the Legacy Alive
Brandon Wright
A 37-year-old living with cystic fibrosis, social worker, and LGBTQIA+ advocate
Cystic Fibrosis Foundation
Episode: Intersecting Identities: Coming Out and Living with CF

Host

Caleigh Haber
Host and cystic fibrosis survivor who shares her personal journey and advocates for the CF community.

Reviews

5.0 out of 5 stars from 5 ratings
  • Incisive and Real Conversations About CF

    Caleigh’s podcast is a masterclass in turning experience into impact. Each episode blends her lived cystic fibrosis and lung transplant stories with thoughtful perspective, and her conversations are smart and full of purpose. Highly recommend for anyone in the CF, chronic illness, or provider community.

    Apple Podcasts
    5
    AGBxCF
    United States5 months ago

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Talking Points

Recent interactions between the hosts and their guests.

Intersecting Identities: Coming Out and Living with CF
Q: How can allies within the CF community better support the LGBTQIA plus individuals, especially those who might feel isolated or misunderstood?
Be there for someone, listen to them, and create supportive environments where individuals can be accepted for who they are.
Intersecting Identities: Coming Out and Living with CF
Q: What advice do you have for someone who is struggling to balance their CF care with the process of exploring or coming out with their LGBTQIA plus identity?
You have to take care of yourself first. Lean on your care team and find supportive individuals who will accept you as you navigate your journey.
The Trikafta Experience
Q: Many people in the CF community experience survivors guilt, especially when others are still waiting for access. How do you both process those feelings and what helps you navigate them?
We use that as our fuel to advocate for those who don’t have access and continue raising awareness within the CF community.
The Trikafta Experience
Q: What would you say to someone who's just about to start their journey on Gmodulators?
Prepare for the clearing, it will be tough but there is light at the end of the tunnel.
Built to Fight: The Woman Who Raised Me
Q: Can you share about my diagnosis story with cystic fibrosis?
Caleigh's mother recounts how Caleigh was diagnosed after birth and the subsequent challenges they faced.

Audience Metrics

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Frequently Asked Questions About This Podcast

What is This Podcast about and what kind of topics does it cover?

The content primarily draws on the experiences and stories of those affected by cystic fibrosis (CF), including insights from both patients and healthcare professionals. Episodes highlight various aspects of living with CF, such as navigating daily life, mental health struggles, the role of community support, and the importance of specialized care. They also address the emotional and physical challenges faced by individuals, their families, and caregivers, offering practical advice and encouragement. Noteworthy is the focus on advocacy, empowerment, and sharing personal narratives that resonate within the CF community, creating a space for understanding and solidarity. This podcast aims to educate and inspire listeners, while fostering conn... more

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Which podcasts are similar to this podcast?

These podcasts share a similar audience with this podcast:

1. It's a Lung Story: Aging and Cystic Fibrosis

How many episodes of this podcast are there?

this podcast launched 6 months ago and published 13 episodes to date. You can find more information about this podcast including rankings, audience demographics and engagement in our podcast database.

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What guests have appeared on this podcast?

Recent guests on this podcast include:

1. Nick Di Brizzi Jr.
2. KC White
3. Ben Mudge
4. Caleb Remington
5. Tiffany Remington
6. Emily Kromar-Golinkoff
7. Aaron Stocks
8. Diane Shader Smith

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